A L S FAMILY CHARITABLE FOUNDATION INC

Bourne, MA   |  www.alsfamily.org

Mission

The A.L.S. Family Charitable Foundation, Inc. is a federally recognized 501(c)(3) non-profit organization dedicated to raising funds for cutting edge research to cure A.L.S. in the future and providing patient services for those suffering from Amyotrophic Lateral Sclerosis today.

Ruling year info

2001

Principal Officer

Mary Ann Sciaba Singersen

Main address

One Trowbridge Road Suite 322

Bourne, MA 02532 USA

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EIN

04-3549335

NTEE code info

Fund Raising and/or Fund Distribution (G12)

Fund Raising and/or Fund Distribution (P12)

Fund Raising and/or Fund Distribution (G12)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

DAY NEUROMUSCULAR RESEARCH LAB - RESEARCH FUND

Population(s) Served

ALS THERAPY DEVELOPMENT FOUNDATION - RESEARCH FUND

Population(s) Served

DIRECT FINANCIAL SUPPORT FOR ALS PATIENTS

Population(s) Served

COMPASSIONATE CARE/GORDON T. HEALD ALS

Population(s) Served

Where we work

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Goals & Strategy

SOURCE: Self-reported by organization

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Charting impact

Four powerful questions that require reflection about what really matters - results.

MISSION STATEMENT
● To provide patients and their families with the best possible financial and emotional support through their unique ALS journey.

VALUES
● Family Connection: The needs of our ALS families are best served by those who have shared the
experience.
● Family Support: We are committed to making a difference in people's lives by providing emotional
support and financial assistance through our patient service programs, which gives them hope for
tomorrow and strength for today.
● Family Fun: We help families enjoy their time together.

"Cliff Walk" for ALS Fundraiser
Held every September, along the Cape Cod Canal, our "Cliff Walk" for ALS Fundraiser is our Signature Event. We routinely welcome 1,000 walkers and their families and have raised over two million dollars for our Foundation's In-House Programs and research efforts. The Walk is held in loving memory of Clifford Jordan, Edward J. Sciaba, Sr. and Janice Ferreira

Each September, our signature event – The “Cliff Walk" for A.L.S., takes place along the Cape Cod Canal. This tradition began in 1997 when 35 year-old Cliff Jordan had been living with Lou Gehrig's Disease for two years; his ability to speak or swallow had been taken by this incapacitating disease.

Cliff decided to hold a fundraising walk along the Cape Cod Canal accompanied by friends and family with proceeds going to Dr. Robert Brown, a leader in A.L.S. research. With only three week's notice, the first walk drew sixty people and raised $6,000. While Cliff rode his bike seven miles closer to a cure, he was also marking the start of an amazing tradition.

Thanks to our supporters, on Sunday, September 11, 2016, we raised over $210,000 for the fight against A.L.S. These much needed funds will benefit our Foundation's In House Patient Programs as well as research headed by ALS Therapy Development Institute and Dr. Robert Brown at UMass Medical Center.

Financials

A L S FAMILY CHARITABLE FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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A L S FAMILY CHARITABLE FOUNDATION INC

Board of directors
as of 6/15/2017
SOURCE: Self-reported by organization
Board co-chair

Mary Ann Sciaba Singersen

President, Co-Founder

Term: Jan 2001 -


Board co-chair

Donna Jordan

Co-Founder

Term: Jan 2001 -

DAVID PHILLIPS DIRECTOR

DONNA JORDAN DIRECTOR

WILLIAM MACLEOD DIRECTOR

JEFFREY BEALS TREASURER & DIRECTOR

MARY SINGERSEN PRESIDENT & DIRECTOR

Tim Denmark Director

No Affiliation