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DISABILITY POLICY CONSORTIUM

About Us, By Us

Boston, MA   |  www.dpcma.org

Mission

Disability Policy Consortium’s credo is “About Us, By Us”: the belief that when decisions are made about people with disabilities, people with disabilities must play a lead role in making them. Our mission is to ensure the voice of people with disabilities is heard on key issues, to support the health of our community through participatory research and expert policy analysis, to and empower grassroots disability leaders to transform their communities. DPC promotes inclusion, independence, and empowerment by guiding statewide development of policies that ensure that programs and services enable people with disabilities to participate in the political, economic, and social mainstream of the Commonwealth of Massachusetts.

Ruling year info

2002

Executive Director

Colin Killick

Main address

25 Kingston St.

Boston, MA 02111 USA

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EIN

04-3570281

NTEE code info

Disabled Persons' Rights (R23)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Disability Housing Advocacy

Lack of affordable, accessible, integrated housing is one of the greatest crises impacting people with disabilities. Nationwide, people with disabilities are more than twice as likely as those without disabilities to be homeless or housing insecure, and this problem is exacerbated in Massachusetts by our aging, inaccessible housing stock. In 2014, DPC and Boston Center for Independent Living co-founded the Housing Advocacy Leadership Team (HALT) to push Massachusetts to invest more money in its Alternative Housing Voucher Program (AVHP) for low-income people with disabilities. Thanks to HALT's work, since 2014 funding for AHVP has more than quadrupled, from $3.45 million to $14.2 million, enough to fund over 1000 new vouchers. We have also worked to pass legislation that would increase production of wheelchair-accessible housing units to make sure that people with disabilities have places to live that meet their needs.

Population(s) Served
People with disabilities
People with diseases and illnesses
Economically disadvantaged people
Homeless people
Unemployed people

Our core mission is advocating for the civil rights of people with disabilities. Across societal domains from housing, to employment, to family law, to criminal justice, and especially healthcare, people with disabilities are subject to rampant and sometimes life-threatening discrimination. At DPC, we use grassroots organizing, and policy development to fight back against this discrimination and to protect and expand civil rights protections for our community. At present, we are working to pass legislation that would ensure disabled parents do not have their children taken away because of an ableist presumption that their disabilities make them unfit parents. We also led the successful campaign to overturn Massachusetts' Crisis Standards of Care, which would have deprioritized people with disabilities for COVID-19 treatment, and have now written and are working to pass legislation that would protect people with disabilities from discrimination throughout the healthcare system

Population(s) Served
Parents

My Ombudsman works with MassHealth (Massachusetts Medicaid) Enrollees, especially those with disabilities, and their healthcare plans to resolve disputes, help enrollees respond to denials of care, and ensure that they get the care they need to be healthy and independent. This program has helped thousands of low-income people with disabilities, and is available in English, Spanish, Portuguese, French, Haitian Creole, and American Sign Language (ASL). Our staff hold outreach events and office hours with partner organizations that serve low-income populations across the state, and can provide support by phone, email, video call, or in person.

Population(s) Served
Low-income people

DPC is one of the only independent organizations run by people with disabilities that conducts research. Historically, people with disabilities have been the objects of research, sometimes even without our consent. Instead, at DPC our research is led *by* people with disabilities, and we use Community-Based Participatory Action Research methods to ensure that people in the communities we are doing research in are deeply involved in the work at every stage. We have worked with partners including Academy Health, Mathematica, Brandeis University, the MGH Mongan Institute for Health Policy, and more, on issues ranging from the future of healthcare for people with disabilities to the impact of opiates and opiate policy on our community. In 2022, we were selected as an inaugural Community Support for Health Equity grantee by the Robert Wood Johnson Foundation, and will be conducting a three year study on barriers to home based care for disabled BIPOC in Springfield, MA.

Population(s) Served
People with disabilities
Economically disadvantaged people
People with diseases and illnesses
People with disabilities
Economically disadvantaged people
People with diseases and illnesses
People with disabilities
Economically disadvantaged people
People with diseases and illnesses
Ethnic and racial groups
Substance abusers

Where we work

Financials

DISABILITY POLICY CONSORTIUM
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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DISABILITY POLICY CONSORTIUM

Board of directors
as of 05/31/2022
SOURCE: Self-reported by organization
Board chair

Cheryl Cumings

Our Space Our Place, Inc

Joe Bellil

Easter Seals Massachusetts

Heather Watkins

DPC Advocacy Subcommittee

Crystal Evans

Massachusetts Executive Office of Health and Human Services

Jini Fairley

Metrowest Center for Independent Living

Allegra Heath-Stout

JOIN for Justice

Carol Hilbinger

DEAF, Inc.

Jennifer Lee

Josh Montgomery

Ari Ne'eman

Havard Law School Project on Disability

Sandy Novack

Jason Savageau

Calabrese Law Associates

Penny Shaw

Jeff Keilson

Advocates, Inc.

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes

Organizational demographics

SOURCE: Self-reported; last updated 5/6/2022

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Gay, Lesbian, Bisexual, or other sexual orientations in the LGBTQIA+ community
Disability status
Person with a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability

Equity strategies

Last updated: 05/06/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We analyze disaggregated data and root causes of race disparities that impact the organization's programs, portfolios, and the populations served.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.