AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION

aka ALS Association or ALSASD   |   San Diego, CA   |  http://www.alsasd.org/

Mission

Our Mission:
Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.

Ruling year info

1990

Executive Director

Steve Becvar

Main address

9929 Hibert St. Ste. A

San Diego, CA 92131 USA

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EIN

04-3651272

NTEE code info

Neurology, Neuroscience (G96)

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

ALS's operating programs focus on education people with ALS (PALS) and their families about living with ALS. This is done through: a comprehensive network of support groups; providing financial support for respite care services, workshops including our Annual Caregivers Conference, Ask the Doctor and a 3-part series for Newly Diagnosed Patients and seminars for respite care providers; The ALS Informer, our quarterly newsmagazine, provides practical information for PALS, their families and caregivers; and our support groups offer PALS and their families an opportunity to talk with and share information with other people in similar situations. Additionally, our medical social worker links people with critically needed community services and helps them through the health care insurance system. For those in need, the Equipment Loan Closet provides needed durable medical equipment to PALS free of charge.

Population(s) Served

Where we work

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Financials

AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION
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Operations

The people, governance practices, and partners that make the organization tick.

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AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION

Board of directors
as of 3/6/2017
SOURCE: Self-reported by organization
Board chair

Adam Garson

Adam Garson

Finlay Drake

Tracy Weaver

Philip Lewis

Eugene Brandon

Joe Collins

Jerry Huang

Jim Kitchen

Coreen Petti

Russ Sieger

Max Stone

Jim Waddell