Amyotrophic Lateral Sclerosis

aka ALS Association Rhode Island Chapter   |   Warwick, RI   |  www.alsari.org

Mission

To lead the fight to cure and treat ALS through global cutting-edge research, and to empower people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.

Ruling year info

1990

Executive Director

Nancy Feroldi

Main address

2374 Post Rd., Ste. 103

Warwick, RI 02886 USA

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EIN

05-0460482

NTEE code info

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

Nerve, Muscle and Bone Diseases (G50)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Handicapped Ramp Assistance

Chapter helps offset the cost of an installed handicapped ramp at the ALS patient home. A $1,500 stipend is available at completion.

Population(s) Served

Our Chapter provides the complimentary medical equipment loans such as wheelchairs, hoyer lifts, hospital beds, daily living aids and iPad communication equipment.

Population(s) Served

The Chapter pays for up to $2,500 per year per patient for in-home services such as home health aides to give the caregiver much needed respite from caring for their family member.

Population(s) Served

Pay for transporation to medical appointments for ALS patients and family and social events.

Population(s) Served

Provide telephone consultations, home visits, monthly support groups and educational symposium.

Population(s) Served

The Louise Wilcox ALS Clinic on the Rhode Island Hospital Campus offers the unique opportunity to meet with different specialists in one location, including neurology, pulmonology, pt/ot, nutrition and speech ensuring proper management of this progressive disease.

Population(s) Served

Where we work

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Financials

Amyotrophic Lateral Sclerosis
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Operations

The people, governance practices, and partners that make the organization tick.

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Amyotrophic Lateral Sclerosis

Board of directors
as of 2/23/2017
SOURCE: Self-reported by organization
Board chair

John Pagliarini