The ALS Association Greater New York Chapter

aka The ALS Association Greater New York Chapter   |   New York, NY   |  http://www.als-ny.org

Mission

The ALS Association's mission is to lead the fight to cure and treat ALS through global, cutting-edge research and to empower people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support.

As one of The ALS Association's leading chapters, the Greater New York Chapter plays a major role in promoting the mission of The ALS Association by:

- Providing quality services to patients and families living with ALS throughout the greater New York area, including New York City, Long Island, Westchester County, the Hudson Valley, and northern and central New Jersey.

- Funding aggressive, cutting-edge research to find a cure that utilizes the newest techniques and fosters collaborative initiatives among government agencies, the private sector and scientists.

- Supporting The ALS Association's national advocacy program to expand government support of research and elicit programs to make treatments and care accessible and affordable for all ALS patients.

- Heightening awareness of ALS in order to stimulate volunteerism, scientific and healthcare community activism, and public support that is essential to the fight against ALS.

Ruling year info

1990

President and CEO

Kristen Cocoman

Main address

42 Broadway Suite 1724

New York, NY 10004 USA

Show more contact info

EIN

13-3616680

NTEE code info

Nerve, Muscle and Bone Diseases (G50)

Personal Social Services (P50)

Nerve, Muscle, Bone Research (H50)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The three-pronged mission of The ALS Association Greater New York Chapter aims to solve the following problems: to support research to find an effective treatment and cure for ALS; to provide supportive care for patients and families affected by ALS, and to advocate for the needs of people with ALS.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Research

Scientific research to discover the cause, cure, and treatment of ALS.

Population(s) Served
People with diseases and illnesses
Adults

Advocate on a national and local level for issues that affect people with ALS.

Population(s) Served
Adults

The ALS Association Greater New York Chapter provides care and support to more than 800 PALS and thousands more family members, caregivers, and friends of patients. Our patient services program represents one of the most developed networks of care for ALS patients nationwide.

Population(s) Served
People with diseases and illnesses
Caregivers

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of people with ALS, and their families, served annually throughout New York City, Long Island, Westchester, the Hudson Valley, and Northern and Central New Jersey

This metric is no longer tracked.
Totals By Year
Related Program

Patient Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

The distinct patient care services provided includes ALS treatment centers, home visits, medical equipment loans, support groups, patient transportation and respite support.

Number of support group attendees, including virtual and in-person

This metric is no longer tracked.
Totals By Year
Related Program

Patient Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Support groups are a valuable resource to help patients and families cope.They are facilitated by a social worker and nurse, welcoming all to connect, share experiences and receive information.

Number of pieces of loaned durable medical equipment and augmentative communication devices

This metric is no longer tracked.
Totals By Year
Related Program

Patient Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

These loans improve quality of life by maintaining maximum safety, mobility, comfort and the ability to communicate with loved ones. The Assistive Technology Specialist manages loans.

Number of rides for patients to medical appointments or support groups

This metric is no longer tracked.
Totals By Year
Related Program

Patient Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Patients receive free rides to medical appointments or support groups for ALS patients at Chapter-sponsored multidisciplinary programs.

Number of home visits made by ALS-GNY nurses, social workers and assistive technology specialists

This metric is no longer tracked.
Totals By Year
Related Program

Patient Services

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

These important visits to patient homes and nursing homes allow staff to assess needs in terms of medical equipment, home care and environment modifications needed during this progressive disease.

Number of attendees at the annual, federal Advocacy Day

This metric is no longer tracked.
Totals By Year
Related Program

Advocacy

Type of Metric

Other - describing something else

Direction of Success

Increasing

Context Notes

ALS-GNY advocates lead the fight to defeat ALS on the frontlines. Tasked with elevating legislative priorities at the state and federal level, ALS-GNY works with champions to change laws and policies.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The ALS Association Greater New York Chapter has a three pronged mission to provide compassionate care to those diagnosed with ALS and their families, fund cutting edge research to find a treatment and cure, and advocate on behalf of our patients.

The Greater New York Chapter has a network of donors and supporters that help make it possible to achieve our goal of providing care, funding research, and advocating on Capitol Hill.

Our events and walk team have grown the largest Walk to Defeat ALS program in the nation raising more than $2 million a year.

The Greater New York Chapter also hosts a yearly Lou Gehrig Sports Awards Dinner which since its inception has raised nearly $20 million towards our mission.

The Greater New York Chapter has a team of social workers, nurses, and Assistive Technology experts who provide our patients and families with the best care. We also sponsor 5 ALS clinics where our patients are surrounded by a team of doctors and nurses who specialize in Lou Gehrig's disease.

Our team of lobbyists every year take on Capitol Hill for advocacy week on behalf of the ALS Association and our patients.

There is still no cure for ALS. Our fight continues until ALS is no longer a death sentence.

Financials

The ALS Association Greater New York Chapter
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
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  • Compare nonprofit financials to similar organizations

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The ALS Association Greater New York Chapter

Board of directors
as of 2/26/2021
SOURCE: Self-reported by organization
Board chair

Mr. Allen Popowitz

Alan Popowitz

Wendy Schriber

Lennard Katz

Katz Realty Group

W. Marc Lane

Sanford Bernstein

Lee Brodsky

Tom Carroll

Alice Claar

Ken Dashow

Kevin Glassman

Alan Levine

David Lubars

Nancy Miringoff

Matthew Perline

Joshua Rand

Peter Rosenberger

Robert Tuchman

Eric Berniker

Organizational demographics

SOURCE: Self-reported; last updated 12/08/2020

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data