Human Services

Arc of the US

aka The Arc

Washington, DC

Mission

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

Ruling Year

2007

Chief Executive Officer

Mr. Peter V. Berns

Main Address

1825 K Street, NW Ste 1200

Washington, DC 20006 USA

Keywords

developmental disabilities, intellectual disabilities, disability, mental retardation, autism, public policy

EIN

13-5642032

 Number

6363022326

Cause Area (NTEE Code)

Human Service Organizations (P20)

Research Institutes and/or Public Policy Analysis (W05)

Disabled Persons' Rights (R23)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Our programs

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General Programs

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Charting Impact

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SOURCE: Self-reported by organization

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MISSION The Arc's mission is to promote and protect the human rights of people with intellectual and developmental disabilities and to actively support their full inclusion and participation in the community throughout their lifetimes. THE PEOPLE WE SERVEThe Arc is ""for people with intellectual and developmental disabilities"" and is the only national organization that serves people with Intellectual Disability, Down syndrome, Autism Spectrum Disorder, Fetal Alcohol Syndrome and many, many other diagnoses, throughout their lifetimes in communities across the United States. The Arc also serves and support the entire family, including parents, siblings, grandparents and other family members, as well as supporting professionals in the field. There are more than 7 million people with I/DD in the U.S. LONG TERM GOALS The Arc's goals over the ten year period, 2010 - 2019, are to assure that: 1. Infants, children and youth with intellectual and developmental disabilities (I/DD) have access to the supports and services they need to live in their family homes, to succeed in school and to partake in all of the experiences of childhood. 2. Adults with I/DD have the opportunity to lead lives of their own choosing, free from poverty, to be employed, to reside in the community, and to live independently with ready access to whatever services and supports they need. 3. People with I/DD have the opportunity to participate in civic activities, volunteerism and community service, religion, arts, culture and recreation alongside their peers without disabilities. 4. Individual members of the public value, respect and accept people with I/DD as equal members of society. 5. Quality health education, health promotion and health care are widely available and accessible, enabling individuals to avoid known environmental causes of I/DD and to prevent secondary health problems for people with I/DD.

The Arc's 700+ chapters serve more than 1 million people with intellectual and developmental disabilities (I/DD) and their families. The following are The Arc's strategies for getting there: Goal 1 - Strategies for Infants, Children and Youth with I/DD. * Increase the availability of early intervention services in naturally occurring environments. * Increase the full inclusion of students with I/DD in schools. * Promote best practices in school-to-community transition. * Eliminate the use of seclusion and non-emergency restraint in schools. * Increase student involvement in developing their own Individualized Education Program(IEP). * Increase access to advocates to support people with I/DD, including parent advocates and youth self-advocates. Goal 2 - Strategies for Adults with I/DD. * Increase opportunities for integrated employment at fair wages, and self-employment. * Build the capacity of businesses to employee people with I/DD.. * Identify and promote best practices in services and supports for people with I/DD relating to housing, employment and community participation. * Increase the availability of affordable, accessible rental housing and home-ownership, as well as supported and independent living* Increase access to personal supports. * Replace state institutions with community based services and supports. * Support self-determination and self-advocacy. * Rebalance the Medicaid program so that home and community based services and family support are readily available. * Improve basic income support systems to reduce the incidence of poverty. Goal 3 - Strategies to Promote Civic Participation for People with I/DD. * Build the capacity of civic, religious, and other organizations to include people with I/DD in their programs and activities.* Increase voting and participation in the political process. * Increase the availability of family support and respite services. Goal 4 - Strategies to Promote Acceptance and Respect for People with I/DD. * Publicize incidents of bigotry, discrimination, and victimization of people with IDD. * Engage in testing to identify discriminatory practices in housing and employment * Increased public awareness of people with I/DD, their needs issues and concerns, and showcase their positive role and contributions.* Monitor the media and promote more accurate, respectful and positive coverage.* Educate of legal and law enforcement officials, teachers, clergy, and others to well serve people with I/DD. * Educate people with I/DD and their families about how to protect their civil rights. Goal 5 - Strategies for Health Promotion for People with I/DD* Educate the public to avoid environmental agents known to cause I/DD. * Increase access to medical, dental, and mental health care, including making health insurance universally available. * Build the capacity of health care professionals to serve people with I/DD.

The 700+ chapters of The Arc provide the means to achieve our mission of service for people with intellectual and developmental disabilities (I/DD) and their families. Local chapters are on the front lines providing individual advocacy, programs, services and supports. Their work touches on all aspects of community life, including education, employment, health care, housing, recreation and more. The Arc serves more than 1 million people with I/DD and their families at more than 2,300 locations, while also advocating on behalf of the entire universe of more than 7 million people with I/DD in the U.S. Promoting Best Practices The Arc is the nation's largest provider of services and supports for people with I/DD, including advocacy services. Each chapter is a separate 501(c)(3) tax-exempt nonprofit. The national office advances their work by promoting best practices in programs, services and supports for people with I/DD, as well as in nonprofit governance and management. Support is provided online through websites, blogs and social media, as well as through conferences, meetings, conventions, webinars and one-to-one technical assistance. Federal Public Policy AdvocacyThe Arc's federal public policy advocacy protects and promotes the rights of people with I/DD and provides the resources they need to fully participate in community life. The Arc has a detailed Public Policy Agenda to guide our work on federal policy issues. In addition to influencing policy developments within the executive and legislative branches of government, The Arc participates in court cases when needed as a ""friend of the court."" State Public Policy Advocacy State and local chapters of The Arc engage in both individual advocacy and public policy advocacy at the state and local level. The national office supports their work by building a knowledgebase and sharing information among and between chapters, coordinating national strategies for state policy reforms, informing chapter leaders about the latest policy developments, and training chapter volunteers and staff leaders. Research and InnovationThe Arc also works to translate theory and knowledge into practice through cooperative working relationships with individual researchers and research institutions, including the university centers on disability. The Arc marshalls data, information and research from available sources, and supports or sponsors additional research where needed to fill gaps or further inform strategy and action. Communications and Public Education The Arc educates the public about the needs, issues and concerns of people with I/DD and their families. We provide timely, credible and accessible information to opinion leaders, decisionmakers and members of the public through websites, social networking sites, radio, television, print and other media, as well as through the communications channels of our extensive network of state and local chapters.

The Goals and Strategies, listed above, are excerpted from the Strategic Framework for the Future of The Arc, 2010 - 2019. The full plan may be found on The Arc's website, www.thearc.org. Based on this long-term plan, The Arc prioritizes among the multiple goals and strategies and develops two-year operational plans to guide the work of the national organization. State and local chapters are free to develop their own priorities, drawing on the nationally established goals and strategies, as well as to develop additional goals and strategies that are consistent with the unique needs within their own local communities. Near-term objectives and indicators vary depending on the particular goal and strategy, as well as the methods and tactics employed in pursuit of the particular strategy. Overall Impact is gauged by measureable changes in the residential status, employment and other life circumstances of people with intellectual and developmental disabilities, as well as by monitoring the level and adequacy of funding for the programs, supports and services that assist them in being included in society. Data sources include independent research by academics and other third parties, surveys and information collected from chapters of The Arc, individuals with I/DD and their family member, public opinion surveying and other market research. As described in response to question 3, identifying and promoting the replication of best practices in services and supports for people with I/DD by chapters of The Arc is a method used to pursue numerous of the goals and strategies. Typically, this method involves ""near term objectives"" and ""indicators"" such as: * Identifying evidence-based, best practices in a specific area of program service delivery; * Supporting demonstration or pilot programs engaged in promising practices; * Establishing learning communities for practitioners interested in the specific program area; * Attaining meaningful program evaluation and outcome data regarding the pilot projects; * Disseminating knowledge attained about what works; * Replication of programs, services and supports that have been demonstrated to work at additional sites.Federal and state public policy advocacy are additional methods used to pursue many of the goals and strategies. With advocacy ""near term objectives"" and ""indicators"" include: * Obtaining congressional staff interest in addressing the particular issue; * Obtaining congressional member commitment to introduce legislation; * Introduction of the legislation; * Sign-on of additional sponsors for legislation; * Successful hearing presentation regarding proposed legislation; * Favorable consideration of legislation in committee of legislative body; * Favorable consideration of legislation by full legislative body;* Signature by Executive;* Successful implementation.

The following are selected accomplishments in 2011 & 2012. Full copies of the Strategic Framework for the Future of The Arc progress reports are available on The Arc's website, www.thearc.org.
Goal 1: Accomplishments for Infants, Children and Youth with I/DD.
-Successfully advocated for Medicaid, Supplemental Security Income and Social Security disability programs to be
held harmless in the federal budget.
-Funded 55 pilot sites focusing on transition to post-secondary education and employment, and maximizing
self-determination in transition planning.
-Autism NOW National Autism Resource and Information Center launched new interactive website features. Overall,
the program reached more than 2.8 million people.
Goal 2: Accomplishments for Adults with I/DD.
-Advocated to preserve the Work Incentives Planning Assistance and Protection and Advocacy for Beneficiaries of
Social Security programs.
-eXplore eRecycling Project provided grants to ten sites to identify and pilot employment opportunities for people with
I/DD in e-recycling.
-Convened ad hoc work group on increasing employment of people with I/DD in federal government.
-Successfully advocated for extension of the Work Opportunity Tax Credit.
-Began development of new Justice and Disability Project.
-Successfully advocated for reforms to the Section 8 Housing Choice Voucher program.
-Established new National Council of Self-Advocates.
-With the University of Minnesota, launched new interactive website for self-advocates. www.selfadvocacyonline.org.
Goal 3: Accomplishment Promoting Civic Participation by People with I/ DD
-Advocated for the U.N. Convention on the Rights of Persons with Disabilities.
-We've Got the Power – developed and implemented non-partisan election year activities
-Published comparison of the 2012 Democratic and Republican party platforms on disability issues.
-Co-sponsored National Forum on Disability Issues for 2012 Presidential candidates.
Goal 4: Accomplishments Promoting Acceptance and Respect for People with I/DD
-Issued 30 press releases on issues and concerns of people with I/DD.
-Launched The Arc Audi Racing Program, with events featuring self-advocate participating on pit crew of professional
race team.
-White House Community Leaders Briefing - organized briefing
for 150 chapter leaders, including visit by President Barack Obama.
-Launched new Autism NOW YouTube series and Autism Awareness Month kit.
-Launched new blog, www.wearethearc.org, featuring state and
local chapters of The Arc.
-Launched The Arc & Sprout Disability Film Festival - 15 national
film festival events held in 2012.
Goal 5: Accomplishments Promoting Health for People with I/DD.
-Launched HealthMeet, new project which will pilot health screening, health education and health professional
education at multiple sites throughout the U.S.

External Reviews

Financials

Arc of the US

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Operations

The people, governance practices, and partners that make the organization tick.

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Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Yes

Organizational Demographics

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

SOURCE: Self-reported by organization

Gender

Race & Ethnicity

Sexual Orientation

Disability

Diversity Strategies

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We track retention of staff, board, and volunteers across demographic categories
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We track income levels of staff, senior staff, and board across demographic categories
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We track the age of staff, senior staff, and board
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We track the diversity of vendors (e.g., consultants, professional service firms)
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We have a diversity committee in place
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We have a diversity manager in place
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We have a diversity plan
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We use other methods to support diversity