PLATINUM2024

myFace

Changing faces, Transforming lives

aka National Foundation for Facial Reconstruction   |   New York, NY   |  www.myFace.org

Mission

myFace was founded in 1951 to address the needs of individuals and families impacted by facial differences, ensuring access to education, support, and comprehensive craniofacial team care, enabling them to lead full, productive lives. myFace provides this holistic approach through a range of programs, including support of the myFace Center at NYU Langone Health, Support Groups for parents (in Spanish & English) as well as for adolescents, adults and prenatal parents, patient focused webinars, online surgical simulator tools, and Newborn Cleft Care Kits to families with financial need through partnerships with hospitals across the country. In addition, myFace is committed to raising awareness about craniofacial differences, educating others on the importance of always choosing kindness.

Ruling year info

1953

Executive Director

Ms. Stephanie Paul

Main address

333 East 30th, Lobby Office

New York, NY 10016 USA

Show more contact info

Formerly known as

National Foundation for Facial Reconstruction

EIN

13-6013760

NTEE code info

Health Support Services (E60)

Patient Services - Entertainment, Recreation (E86)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

Every hour a child is born in the United States with a craniofacial condition which uniquely impacts both the body and spirit. 95% of them will undergo multiple surgeries and long-term medical care throughout their childhood and into their adult life. Each year, the faces of another 100,000 individuals are disfigured through accident or disease.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Travel Assistance & Housing for Out-of-Town Families

myFace provides complimentary flights through Southwest Airlines’ Medical Transportation Grant Program, as well as helps to arrange free housing to out-of-town patients in its myFace apartments to decrease the burden and expense of travel while their loved ones receive treatment.

This is truly a lifesaver for out-of-town families who would otherwise have to spend hundreds of dollars a night on a hotel room in NYC or flight travel. The myFace staff works directly with families on securing the reservations and making sure they have everything they need. This way they can focus on what's most important: getting the care for their loved ones. Families may stay for as little as 1-2 days or as long as 1-2 months. Our goal is to make sure families know they are not alone in their journey.

Population(s) Served
Children and youth
Adults
Families

myFace offers the gift of confidence and hope to children and adults with craniofacial conditions and their families by ensuring them access to cutting-edge care from the world-class practitioners of The myFace Center for Craniofacial Care at NYU Langone Health.

The myFace Center provides integrative, highly specialized and personalized team care. It is staffed with leading experts in every facial anomaly, and every member of the attending staff holds NYU School of Medicine academic appointments. Embracing a team approach, specialists meet weekly to evaluate patients with complex problems and formulate comprehensive treatment plans.

The myFace Center includes the most comprehensive psychosocial team of any craniofacial center in the US. Complementing the medical and dental care provided to patients, these psychosocial services include: speech therapy sessions and consultations, nutrition consultations, psychosocial assessments, psychological evaluations.

It is this comprehensive approach that makes The myFace Center one-of-a kind and the gold standard for craniofacial care.

Population(s) Served
Adults
Children and youth
Families

Ensuring that individuals impacted by craniofacial differences and family members across the country have a place to turn for support is critical to the work of myFace. Parent (Spanish and English), Prenatal Parent, Adult, and Adolescent support groups are a cornerstone of the help myFace offers to the craniofacial community. These support groups are offered virtually and meet regularly throughout the month. They are designed to provide guidance, counsel and community for those living with craniofacial conditions and their families. They provide an environment where participants can feel safe, hopeful, and never alone.

Population(s) Served

, myFace is providing Newborn Craniofacial Care Kits are distributed to families in need through partner hospitals across the country. The kits to contain items parents will need for their child in the first weeks of life. This free kit contains items such as a layette, baby carrier wrap, diapers, socks, creams, wipes, and Dr. Brown’s bottles and pacifiers, specially designed for cleft babies. In addition to the normal stresses of a newborn, parents with a craniofacial baby have so much more to navigate, including breathing and feeding issues. This important program helps to take one worry off the minds of new parents with a child impacted by a craniofacial difference. myFace aims to be a resource for these parents and helps to assure them they are not alone.

Population(s) Served
Children and youth
Adults
Families
Children and youth
Adults
Families

Harnessing the power of technology to reach as many people as possible, myFace has developed a special webinar series that presents a range of topics directed towards individuals and families. It is a public facing, free program focused on educating the craniofacial community nationwide, with topics such as, the importance of craniofacial team care, prenatal counseling, navigating the insurance landscape, and the importance of psychosocial care. These one-hour webinars feature experts in their fields. Viewers also have the opportunity to ask the expert panel live questions after the presentation. All webinars are archived on myFace.org so individuals and families can access this important educational resource whenever they need.

Population(s) Served
Families
Adults
Caregivers

With statistics showing that 1 in 4 kids in the US say they’ve been regularly bullied at school, the need to promote empathy and kindness and teach acceptance is more important than ever before. The myFace Wonder Project’s pro-compassion English Language Arts Curriculum is based on the best-selling book, Wonder, by R.J. Palacio.
During in-school assemblies, students learn about craniofacial differences and how to be kind. They then are encouraged to develop and launch their very own acts of kindness campaigns in their communities. Students hear personal stories of those with facial differences and learn about respect for others. Participating in this project provides students an opportunity for growth both inside the classroom and beyond. The aim is to move students towards creating positive change in the world and to celebrate the uniqueness of others.

Population(s) Served
Children and youth
Teachers

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of patients and families housed during medical care.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Families, People with disabilities

Related Program

Travel Assistance & Housing for Out-of-Town Families

Type of Metric

Output - describing our activities and reach

Direction of Success

Decreasing

Context Notes

Due to the Covid19 global pandemic we did see a drop in both apartment stays and issuing of travel vouchers, thus the 2020 decrease in both sets of metrics.

Number of patients provided with airline tickets to and from NYC

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Caregivers, People with disabilities

Related Program

Travel Assistance & Housing for Out-of-Town Families

Type of Metric

Output - describing our activities and reach

Direction of Success

Decreasing

Context Notes

Due to the Covid19 global pandemic we did see a drop in both apartment stays and issuing of travel vouchers, thus the 2020 decrease in both sets of metrics.

Number of patients and families receiving comprehensive care.

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth, Families, People with disabilities

Related Program

The myFace Center for Craniofacial Care at NYU Langone Health

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Includes but not limited to: INDIVIDUAL & GROUP COUNSELING, NUTRITIONAL COUNSELING, SPEECH EVALUATION & THERAPY.

Number of support groups offered

This metric is no longer tracked.
Totals By Year
Population(s) Served

Families, Parents, Adolescents, Adults

Related Program

Virtual Support Groups

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

A highlight in 2023: we introduced an adolescent Theater Therapy Group. We offer the Parent Group in English and in Spanish, and we have a Pre-natal/New Parent Group all led by licensed practitioners.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

myFace is a non-profit organization dedicated to transforming the lives of patients with facial differences. With a special focus on children and their families, myFace funds medical, surgical, dental, speech and psychosocial services as well as research and public awareness.

Through our grants and initiatives which include the Travel Assistance & Housing for Out-of-Town Families, Virtual Support Groups, Newborn Craniofacial Care Kit for Craniofacial Families, Transforming Lives Webinar Series and our Wonder Project we hope to raise awareness about myFace and it's cause.

The myFace Center for Craniofacial Care at NYU Langone Health:

The team at The myFace Center for Craniofacial Care at NYU Langone Health includes a Social Worker, Clinical Psychologist, Geneticist, Pediatric Nurse Practitioner, Speech Pathologist, Nutritionist, and Family Program Coordinator. The team provides counseling for genetic, psychiatric, behavioral, social, pre-natal and post-natal, speech, mentoring, resource and medical issues.

myFace also hosts networking, therapeutic and educational programs for patients and their families. Finally, we provide an apartment for out-of-town families while their child is undergoing surgery and treatment, as well as complimentary round trip tickets on Southwest Airlines. With 70% of our patients living in poverty our support services have proved instrumental in empowering families.

The Wonder Project:

The myFace Wonder Project is structured thematically, rather than chronologically. This allows for flexibility in that some classrooms might only be looking at this book for a few days or a week; others might be exploring for longer – you, as a teacher or administrator, can determine the entry-point. Although each of the six sections focuses narrowly on one specific theme, all of the themes weave throughout the curriculum. These themes, Exploration of Self, The Masks We Wear, Friendships/Relationships, Bullying, Empathy, and Choosing Kindness are all explored through a variety of educational activities and exercises.

Thanks to myFace's annual support of $3 million dollars, as well as the generosity of the NYU's doctors who provide their services pro bono for our neediest patients, all children at the myFace Center receive the same quality care. Since children with severe conditions often need 40-80 procedures during their childhood years, treating these patients is our greatest challenge.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

  • What challenges does the organization face when collecting feedback?

    We don't have any major challenges to collecting feedback

Financials

myFace
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Operations

The people, governance practices, and partners that make the organization tick.

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

myFace

Board of directors
as of 06/12/2024
SOURCE: Self-reported by organization
Board chair

Mr. William Villafranco

Frederick M Friedman

TDA Industries, Inc.

Jeremiah M Bogert

Silvercrest Asset Management Group LLC

Sondra Neuschotz

Charles Beever

Rexahn Pharmaceuticals

Craig Dugan

Dugan, Scotti & Zoch, PA

Robin Krause, Esq.

Patterson Belknap Webb & Tyler LLP

Alexandra C. Kay, Esq.

Robinhood Foundation

Sean McGould

Lighthouse Partners

Barbara H. Zuckerberg

William S. Villafranco

Villafranco Wealth Management

Erin Ashayeri

Ravi Desai

Blackstone

Vincent DeLuca

Vincent Hom

EY

John Gordon

David Santiago

Maxwell Kahn

Coresight

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 10/27/2023

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 08/15/2022

GuideStar partnered with Equity in the Center - an organization that works to shift mindsets, practices, and systems to increase racial equity - to create this section. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We disaggregate data to adjust programming goals to keep pace with changing needs of the communities we support.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
Policies and processes
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.