To find a cure for Crohn's disease and ulcerative colitis and to improve the quality of life of children and adults affected by these diseases. Crohn's disease and ulcerative colitis are collectively known as inflammatory bowel diseases (IBD).
President / CEO
Mr. Michael Osso
733 Third Ave Suite 510
New York, NY 10017 USA
united states, charity, IBD, ulcerative, disease, clinical research, take steps, team challenge, spin4, camp, empower patients, inflammation, bowel, inflammatory bowel disease, research, cure, health, crohn's, colitis, digestive health,
Specifically Named Diseases (G80)
Digestive Diseases, Disorders (G70)
Other Medical Research N.E.C. (H99)
IRS Filing Requirement
This organization is required to file an IRS Form 990 or 990-EZ.
Programs + Results
What we aim to solve New!
To find a cure for Crohn's disease and ulcerative colitis and to improve the quality of life of children and adults affected by these diseases. The Crohn’s & Colitis Foundation is dedicated to accelerating research to drive the continuum from new discovery to optimal care. To accomplish this, every five years the Foundation convenes leading researchers to update the Foundation’s research agenda and identify new priorities in inflammatory bowel diseases (IBD) research.
What are the organization's current programs, how do they measure success, and who do the programs serve?
SOURCE: Self-reported by organization
The Crohn's & Colitis Foundation is a leading supporter and founder of medical research in Crohn's disease and ulcerative colitis—collectively known as inflammatory bowel diseases (IBD). We invest our dollars wisely, funding the best IBD research anywhere in the world and implementing a peer-review process that insures that only the most promising and relevant grant applications are funded. With more than 1000 grants awarded the foundation has played a role in every major scientific breakthrough in IBD, from generating data that led to new therapies to the discovery of the first gene for Crohn's disease. The foundation supports both Basic and Clinical research. Basic research studies the complex interactions between genes, bacteria, and the immune response in IBD. Foundation-sponsored research has led to breakthrough discoveries in the role that genetics and the human microbiome play in IBD onset and progression, and we are establishing the largest research and information exchange ever created to accelerate the development of better treatments and cures. Our grants and fellowships nurture and enable researchers at every stage of their careers.
Take Steps walks offer a wonderful day for family, friends and the community to celebrate all of the efforts that have been put forth in raising funds towards our mission. Our walk events are filled with live music, food, kids’ entertainment, educational materials, and, of course, wonderful exposure for our corporate partners. Take Steps for Crohn’s & colitis is a family friendly community walk dedicated to raising awareness and mission-critical funds for cures for digestive diseases. In the past five years alone, we succeeded in bringing together over 240,000 people and raised nearly $60 million to help further the Foundation's mission.
Team Challenge is an endurance training and fundraising program unlike any other. Team Challenge is one of the premier endurance training programs in the country. As a Team, participants will challenge themselves, change lives and fundraise for cures for Crohn's disease and ulcerative colitis - two painful, debilitating, and seldom-discussed digestive diseases that affect 1 in 200 Americans, including 80,000 children nationwide. Participants can either run, walk a half marathon, train for a triathlon, or ride in a great cycling event at one of our amazing destination races. In exchange for fundraising, Team Challenge participants receive a custom training plan and professional coaching throughout the season. Additionally, the training program includes clinics and helpful tips on topics like nutrition, hydration, and injury prevention. Participants also receive an expenses-paid weekend at a great destination race including race registration fees, lodging, pasta party and post race celebration.
Patient and Professional Education Services
As part of our mission to educate and inform the public about inflammatory bowel disease (IBD), the Crohn's & Colitis Foundation publishes free educational brochures and fact sheets that provide current information and treatment options about this condition for patients. The Foundation hosts educational programs across the country for patients, also provides a list consisting of leading Crohn’s and ulcerative colitis doctors, researchers, nurses and other healthcare professionals.
Where we workNew!
Five powerful questions that require reflection about what really matters - results.
SOURCE: Self-reported by organization
What is the organization aiming to accomplish?
What are the organization's key strategies for making this happen?
What are the organization's capabilities for doing this?
How will they know if they are making progress?
What have and haven't they accomplished so far?
OVERARCHING AIM: Research The Foundation will focus efforts to accelerate and overcome hurdles to drive the continuum from new discovery to optimal care. OVERARCHING AIM: Education, Support & Advocacy Leveraging the potential for interconnections and synergies among patient education and support, professional education and advocacy, we will address: Cost and access to care, shared decision making, and maximizing the quality of care, while acknowledging and concentrating on the patient journey. OVERARCHING AIM: Traditional Revenue The Foundation will empower volunteers to expand the network of donors and volunteers, develop enduring relationships, and drive increased contributed support. OVERARCHING AIM: Non-Traditional Revenue The Foundation will form strategic partnerships with entities that emanate from and advance specific mission activities.
1. Mindful of the patient journey, we embrace a patient-centric approach to all decision-making and mission delivery. 2. We generate, disseminate, and use data to inform and drive decisions to maximize revenue generation and mission activities. 3. We demonstrate measureable impact by tailoring communications to segmented stakeholder groups to inspire hope and action. 4. We ensure a Class A team of staff and volunteers to power organizational priorities. 5. We build partnership and collaboration into every aspect of the business.
The organization has a community of support, volunteers, outreach, and support groups. Today, both the Crohn's & Colitis Foundation and the National Institutes of Health (NIH) actively support research in the field, and there are approximately 80 new therapies in the pipeline.
The Strategic Planning Taskforce meets to assess the progress of each objective (three times a year) at committee meetings.
Crohn's & Colitis Foundation research has contributed significantly to the current hypothesis of the cause of IBD. The Crohn's & Colitis Foundation has sponsored comparative drug trials to find new uses for existing therapies—to enhance the effectiveness of these medications or to minimize harmful side effects. New surgical technique: improving ileoanal pouch surgery by sparing the anal transition zone. In people who have undergone colectomy, this operation eliminates the need to wear an external pouch in order to eliminate body wastes. The foundation contributes with funding government studies the Foundation deems essential to IBD, understanding the psychological impact of ostomy surgery, and building resources that benefit the entire scientific community.
Awards & Accreditations
Better Business Bureau Wise Giving Alliance
Affiliations & Memberships
Better Business Bureau
Combined Federal Campaign
Community Health Charities
United Way Member Agency
Crohn's & Colitis Foundation Inc.
Need more info on this nonprofit?
The people, governance practices, and partners that make the organization tick.
Board of Directors
as of 8/10/2018
John Crosson Esq.
Robert "Van" Pully
SOURCE: Self-reported by organization
Board Leadership Practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.SOURCE: Self-reported by organization
BOARD ORIENTATION & EDUCATION
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?
Has the board conducted a formal, written assessment of the chief executive within the past year?
ETHICS & TRANSPARENCY
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?
Has the board conducted a formal, written self-assessment of its performance within the past three years?