Disease, Disorders, Medical Disciplines

Crohn's & Colitis Foundation Inc.

Uniting to Care and Cure

New York, NY

Mission

To find a cure for Crohn's disease and ulcerative colitis and to improve the quality of life of children and adults affected by these diseases. Crohn's disease and ulcerative colitis are collectively known as inflammatory bowel diseases (IBD).

Ruling Year

1966

President / CEO

Mr. Michael Osso

Main Address

733 Third Ave Suite 510

New York, NY 10017 USA

Keywords

united states, charity, IBD, ulcerative, disease, clinical research, take steps, team challenge, spin4, camp, empower patients, inflammation, bowel, inflammatory bowel disease, research, cure, health, crohn's, colitis, digestive health,

EIN

13-6193105

 Number

1290927471

Cause Area (NTEE Code)

Specifically Named Diseases (G80)

Digestive Diseases, Disorders (G70)

Other Medical Research N.E.C. (H99)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Programs + Results

What we aim to solve New!

To find a cure for Crohn's disease and ulcerative colitis and to improve the quality of life of children and adults affected by these diseases. The Crohn’s & Colitis Foundation is dedicated to accelerating research to drive the continuum from new discovery to optimal care. To accomplish this, every five years the Foundation convenes leading researchers to update the Foundation’s research agenda and identify new priorities in inflammatory bowel diseases (IBD) research.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Research Programs

Take Steps

Team Challenge

Patient and Professional Education Services

Where we workNew!

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

OVERARCHING AIM: Research The Foundation will focus efforts to accelerate and overcome hurdles to drive the continuum from new discovery to optimal care. OVERARCHING AIM: Education, Support & Advocacy Leveraging the potential for interconnections and synergies among patient education and support, professional education and advocacy, we will address: Cost and access to care, shared decision making, and maximizing the quality of care, while acknowledging and concentrating on the patient journey. OVERARCHING AIM: Traditional Revenue The Foundation will empower volunteers to expand the network of donors and volunteers, develop enduring relationships, and drive increased contributed support. OVERARCHING AIM: Non-Traditional Revenue The Foundation will form strategic partnerships with entities that emanate from and advance specific mission activities.

1. Mindful of the patient journey, we embrace a patient-centric approach to all decision-making and mission delivery. 2. We generate, disseminate, and use data to inform and drive decisions to maximize revenue generation and mission activities. 3. We demonstrate measureable impact by tailoring communications to segmented stakeholder groups to inspire hope and action. 4. We ensure a Class A team of staff and volunteers to power organizational priorities. 5. We build partnership and collaboration into every aspect of the business.

The organization has a community of support, volunteers, outreach, and support groups. Today, both the Crohn's & Colitis Foundation and the National Institutes of Health (NIH) actively support research in the field, and there are approximately 80 new therapies in the pipeline.

The Strategic Planning Taskforce meets to assess the progress of each objective (three times a year) at committee meetings.

Crohn's & Colitis Foundation research has contributed significantly to the current hypothesis of the cause of IBD. The Crohn's & Colitis Foundation has sponsored comparative drug trials to find new uses for existing therapies—to enhance the effectiveness of these medications or to minimize harmful side effects. New surgical technique: improving ileoanal pouch surgery by sparing the anal transition zone. In people who have undergone colectomy, this operation eliminates the need to wear an external pouch in order to eliminate body wastes. The foundation contributes with funding government studies the Foundation deems essential to IBD, understanding the psychological impact of ostomy surgery, and building resources that benefit the entire scientific community.

External Reviews

Awards & Accreditations

Better Business Bureau Wise Giving Alliance

Charity Navigator

Affiliations & Memberships

Better Business Bureau

Combined Federal Campaign

Community Health Charities

United Way Member Agency

Financials

Crohn's & Colitis Foundation Inc.

Fiscal year: Jan 01-Dec 31

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  • Address, phone, website and contact information
  • Forms 990 for 2016, 2015 and 2014
  • Access to the GuideStar Community
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Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2016, 2015 and 2014
  • Access to the GuideStar Community
A Pro report is also available for this organization for $125.
Click here to see what's included.

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Yes