Carcinoid Cancer Foundation, Inc.
If You Don't Suspect It, You Can't Detect It
Mission
The mission of the Carcinoid Cancer Foundation is to increase awareness and educate the general public and healthcare professionals regarding carcinoid and related neuroendocrine tumors (NETs), to support NET cancer patients and their families, and to serve as patient advocates.
Ruling year
1968
Chief Executive Officer
Keith Warner
Main address
118 North Bedford Road, Suite 100
Mount Kisco, NY 10549 USA
Formerly known as
The Carcinoid Tumor and Serotonin Research foundation, Inc
EIN
13-6277875
NTEE code
Cancer (G30)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Communication
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Carcinoid Cancer Foundation, Websites
The CCF's primary website (www.carcinoid.org) provides a wealth of information for, patients, basic and clinical researchers, and healthcare professionals. This website provides valuable information regarding many topics about the disease and living with neuroendocrine cancer including FAQ's frequently asked questions; nutritional issues; quality of life and psychosocial issues; support and discussion groups; online discussion and support groups; survivor stories; videos on neuroendocrine cancer and specific aspects of the disease as well as patient journeys; links to relevant other medical information sites; information on current neuroendocrine tumor clinical trials and a list of clinicians and centers throughout the USA, as well as in other parts of the world, with expertise in carcinoid/neuroendocrine cancer.
The foundation also has two websites devoted to aspects of living with neuroendocrine cancer: www.carcinoidsyndrome.org and www.prrtgalliumcenters.org.
Carcinoid Cancer Foundation, Support
The Carcinoid Cancer Foundation provides email support and a toll-free telephone line for information and support. CCF receives over 500 inquiries annually by phone and email with questions ranging from “How do I find a neuroendocrine cancer expert physician?” to “Can you help me locate a support group?” to specifics about the disease, We help people seeking a diagnosis, those who are newly diagnosed, people who have been living with the disease for many years, and loved ones.
Carcinoid Cancer Foundation, Luncheon with the Experts
In 2020 and 2021 the Foundation is presenting a weekly Facebook Live series, Luncheon with the Experts, featuring physicians and healthcare professionals, support group leaders, patients, and colleagues who are key opinion leaders in the neuroendocrine cancer community worldwide. This weekly series is presented via Facebook Live on Thursdays from 12 noon to 1 pm, Eastern Time. Join us for unique discussions on a wide variety of topics for everyone in the NET community!
To view the program come to CCF’s Facebook page, https://www.facebook.com/Carcinoid/, at noon Eastern Time. There is no need to register and there is no special link.
If you are on Facebook but unable to join at the scheduled time, the presentations will remain permanently on CCF’s Facebook page in the Video section, https://www.facebook.com/pg/Carcinoid/videos/. You can view all of the earlier presentations at that link too.
And for anyone not on Facebook, each of the presentations in the series is available on CCF’s YouTube channel, https://www.youtube.com/user/CarcinoidNETs.
Where we work
External reviews
Videos
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
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Connect with nonprofit leaders
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Carcinoid Cancer Foundation, Inc.
Board of directorsas of 7/27/2021
Richard Warner
No Affiliation
Term: 2015 - 2020
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No
Organizational demographics
Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
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