Carcinoid Cancer Foundation, Inc.

If You Don't Suspect It, You Can't Detect It

aka CCF   |   Mount Kisco, NY   |  http://www.carcinoid.org

Mission

The mission of the Carcinoid Cancer Foundation is to increase awareness and educate the general public and healthcare professionals regarding carcinoid and related neuroendocrine tumors (NETs), to support NET cancer patients and their families, and to serve as patient advocates.

Ruling year info

1968

Chief Executive Officer

Keith Warner

Main address

118 North Bedford Road, Suite 100

Mount Kisco, NY 10549 USA

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Formerly known as

The Carcinoid Tumor and Serotonin Research foundation, Inc

EIN

13-6277875

NTEE code info

Cancer (G30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Carcinoid Cancer Foundation, Websites

The CCF's primary website (www.carcinoid.org) provides a wealth of information for, patients, basic and clinical researchers, and healthcare professionals. This website provides valuable information regarding many topics about the disease and living with neuroendocrine cancer including FAQ's frequently asked questions; nutritional issues; quality of life and psychosocial issues; support and discussion groups; online discussion and support groups; survivor stories; videos on neuroendocrine cancer and specific aspects of the disease as well as patient journeys; links to relevant other medical information sites; information on current neuroendocrine tumor clinical trials and a list of clinicians and centers throughout the USA, as well as in other parts of the world, with expertise in carcinoid/neuroendocrine cancer.

The foundation also has two websites devoted to aspects of living with neuroendocrine cancer: www.carcinoidsyndrome.org and www.prrtgalliumcenters.org.

Population(s) Served

The Carcinoid Cancer Foundation provides email support and a toll-free telephone line for information and support. CCF receives over 500 inquiries annually by phone and email with questions ranging from “How do I find a neuroendocrine cancer expert physician?” to “Can you help me locate a support group?” to specifics about the disease, We help people seeking a diagnosis, those who are newly diagnosed, people who have been living with the disease for many years, and loved ones.

Population(s) Served

In 2020 and 2021 the Foundation is presenting a weekly Facebook Live series, Luncheon with the Experts, featuring physicians and healthcare professionals, support group leaders, patients, and colleagues who are key opinion leaders in the neuroendocrine cancer community worldwide. This weekly series is presented via Facebook Live on Thursdays from 12 noon to 1 pm, Eastern Time. Join us for unique discussions on a wide variety of topics for everyone in the NET community!

To view the program come to CCF’s Facebook page, https://www.facebook.com/Carcinoid/, at noon Eastern Time. There is no need to register and there is no special link.

If you are on Facebook but unable to join at the scheduled time, the presentations will remain permanently on CCF’s Facebook page in the Video section, https://www.facebook.com/pg/Carcinoid/videos/. You can view all of the earlier presentations at that link too.

And for anyone not on Facebook, each of the presentations in the series is available on CCF’s YouTube channel, https://www.youtube.com/user/CarcinoidNETs.

Population(s) Served

Where we work

Financials

Carcinoid Cancer Foundation, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Carcinoid Cancer Foundation, Inc.

Board of directors
as of 7/27/2021
SOURCE: Self-reported by organization
Board chair

Richard Warner

No Affiliation

Term: 2015 - 2020

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 07/27/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Male, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data