Disease, Disorders, Medical Disciplines

APS Foundation of America, Inc.

Antiphospho.....what?!?!

aka APSFA, APS Foundation

La Crosse, WI

Mission

Founded in 2005, the APS Foundation of America, Inc. is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Syndrome (APS), the major cause of multiple miscarriages, thrombosis, young strokes and heart attacks. We are a volunteer run, community based 501(c)3 non-profit Public Charity organization and is dedicated to fostering and facilitating joint efforts in the areas of education, support, public awareness, research and patient services. The APSFA's Medical Advisory Team includes nationally & internationally recognized experts on Antiphospholipid Syndrome.

Notes from the Nonprofit

The whole board had a lot of medical problems beyond our control during Fiscal Year 2014 that really slowed us up.

Ruling Year

2006

President & Treasurer

Ms. Christina Pohlman

Main Address

Post Office Box 801

La Crosse, WI 54602 USA

Keywords

antiphospholipid, antibody, syndrome, lupus, stroke, dvt, pe, migraine, hughes, syndrome, miscarriage, thrombosis, embolism, APS, antiphospholipid antibody syndrome, APLS, HSF, APLA, heart, attack

EIN

20-3085295

 Number

8060733169

Cause Area (NTEE Code)

Specifically Named Diseases (G80)

Specifically Named Diseases Research (H80)

IRS Filing Requirement

This organization is required to file an IRS Form 990-N.

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Social Media

Programs + Results

What we aim to solve New!

We are working on getting more volunteers on board and delegating the responsibilities out for the smaller tasks such as the newsletters and graphics. It is a work in progress, but we are going to give everyone a chance. We have found a new webmaster and are looking forward to those changes to come. We now need to tackle the fundraising issues as to why they are happening.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

International Congress of Antiphospholipid Antibodies

Anitphospholipid Syndrome Research

Scholarship/Grant

How Else Are Donations Spent?

Antiphospholipid Syndrome Awareness

Where we workNew!

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

Continue to find more avenues for fundraising. Get back to publishing quarterly newsletters. Continue to collaborate with more organizations (both lay & professional). Attend or have materials available for more conferences. Apply for more grants. Continue to search for more medical advisors that truly want to help. Continue to attempt APS mentioned in more publications, including magazines. Continue to making more videos and learn how to make podcasts. Considering doing Facebook Live Chats. Consider going to a Board of Directors of 7, including one medical advisor & one public non-APS person. Consider making June 9th World APS Awareness Day formally via a bill through Congress. Consider making June APS Awareness Month formally via a bill through Congress. Consider making a Scholarship fund for those going into the Medical Field. Consider making a formal Scholarship fund for APS Research. Consider spending the money to get professional press releases written and sent out at $1000+ each. Consider working with the FDA on getting a Black Box Warning regarding the Finger Stick Machines and APS since the vendors and manufactures do not openly disclose this. Find dedicated volunteers. Find pro-bono Wisconsin Attorney.

The APSFA's strategies for accomplishing its long-term goals of awareness, education and support of those with APS, include three main parts- fundraising, promotion/publication, and advocacy. For the first part- fundraising- we have implemented a full spectrum of options for our members, supporters, and volunteers to run their own fundraising drives, give individual donations, or to make a purchase of APSFA merchandise which the proceeds go back to the organization. We believe that by making fundraising a central part of involvement with the APSFA, we help spread our message on a more personal level as we also earn the funds which will lead us to new growth as an organization and advancing our primary goals as an organization. Our second strategy of promotion and publication is to get information on APS out to the media, the public and to those who have APS and their families. To this end our mission is to have APS become a household name in the coming years. By volunteers and members publishing articles, blogging, vlogging, being hosted on syndicated radio, the APSFA buying air-time for PSA's, and many more ends we believe we will accomplish this goal. Lastly, advocacy for our clients is the most important human impact the APSFA has. Because we were founded by members who have APS, we truly know the struggle of getting a correct diagnosis and treatment plan, and we currently help those with APS with emotional support, and while we do not give medical advice we do give practical advice on how to approach their diagnosis and share general information of our experiences with getting proper diagnosis and treatments for APS.

We currently have a relatively limited budget, but that being said, we have low overhead and an endless potential for growth. Our biggest assets are our human assets and our potential to grow these assets exponentially in the coming years. We currently are restructuring our staff and are also working on implementing an intern program with two local universities and coming out of that we should have an extreme increase in our capacity to fundraise and bring awareness to the APSFA and APS. Lastly, bringing on more dedicated medical advisers is going to be a critical part of our mission for advocacy and we are currently implementing a plan to bring more dedicated advisers on board with APSFA.

In tracking our progress we have established both qualitative and quantitative indicators to assess whether or not we are achieving our goals successfully. For financial/fundraising growth, exclusively we are quarterly goal setting and tracking to see if we made our goal for that period. For our awareness and advocacy goals we have quantitative metrics such as tracking meta-data on our forums and webpage, and quantitative analysis such as follow up surveys on client outcomes. Though we haven't currently employed it yet, in the future we will enlisted polling firms to check to to see the relative level of awareness concerning APS.

Continue to find more avenues for fundraising. Get back to publishing quarterly newsletters. Continue to collaborate with more organizations (both lay & professional). Attend or have materials available for more conferences. Apply for more grants. Continue to search for more medical advisors that truly want to help. Continue to attempt APS mentioned in more publications, including magazines. Continue to making more videos and learn how to make podcasts. Considering doing Facebook Live Chats. Consider going to a Board of Directors of 7, including one medical advisor & one public non-APS person. Consider making June 9th World APS Awareness Day formally via a bill through Congress. Consider making June APS Awareness Month formally via a bill through Congress. Consider making a Scholarship fund for those going into the Medical Field. Consider making a formal Scholarship fund for APS Research. Consider spending the money to get professional press releases written and sent out at $1000+ each. We thought our followers would help us so we could use our donated dollar towards research needs but without awareness we have nothing. Consider working with the FDA on getting a Black Box Warning regarding the Finger Stick Machines and APS since the vendors and manufactures do not openly disclose this. Find a webmaster to maintained our webpage better; consider paying for one. Find a graphic designer. Find volunteers that truly want to help. Discontinue WOWBB and just use Facebook for support group.

External Reviews

Financials

APS Foundation of America, Inc.

Fiscal year: Jan 01-Dec 31

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Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2016, 2015 and 2014
  • Access to the GuideStar Community
A Pro report is also available for this organization for $125.
Click here to see what's included.

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Yes