American Sickle Cell Anemia Association
Together, We Can Beat This Disease
Mission
The American Sickle Cell Anemia Association was incorporated in 1971 as a nonprofit organization. The mission of the organization is to provide comprehensive education, testing, counseling and supportive services to the population at risk for sickle cell anemia and it's variants. Further, its intent is to insure quality and quantity care in the provision of comprehensive service to affected individuals and families.
Ruling year
1973
Executive Director
Mrs. Ira Bragg-Grant
Main address
2390 East 79th Street Suite LH2-218
Cleveland, OH 44104 USA
EIN
23-7178345
NTEE code
Specifically Named Diseases (G80)
Community Health Systems (E21)
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
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Communication
Programs and results
What we aim to solve
The American Sickle Cell Anemia Association (ASCAA) is driven to bring awareness about Sickle Cell Anemia and the affect it has on those who are at risk of the disease or variants of the trait. Our main issue is the lack of education, awareness, and general knowledge of sickle cell anemia to the general public, individuals, families and the population at risk. The ASCAA's aim is to bridge that gap and spread information, and even recognition, to a devastating illness the affects hundreds of thousands of newborns, children and adults.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Education/Outreach
ASCAA offers counseling for individuals seeking information about the effects of sickle cell anemia on individuals and families. We do this by distributing over 425,000 educational packages. Students, teachers, social workers, physicians, the media, and the public benefit from this essential education. We provide important testing for parents, newborns, and the public. We also offer crisis intervention, youth programs, family activities, and counseling for families and individuals dealing with sickle cell disease. A major program called CHAMPPS stands for Choosing Health, Awareness, Mobility, Personal Power, and Success. The mission is to help to maximize the adolescent and teenager's personal development and successful transitioning from childhood into adulthood. This program provides a network of peer-to-peer support among a group that is socially isolated and encumbered by a chronic illness. Sickle Talk, another program offers education and support through videos and podcasts.
Where we work
External reviews
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
The American Sickle Cell Anemia Association's goals are to educate, counsel, provide social services and render invaluable tools to the general public, individuals, families and the population at risk of sickle cell anemia and variants of the trait.
What are the organization's key strategies for making this happen?
The American Sickle Cell Anemia Association's strategies are to participate in health fairs, resource fairs, and other public and private events that allow us to spread information and awareness to the general public, individuals, families and the population at risk of sickle cell anemia and variants of the trait. This includes, but isn't limited to, speaking with students of various educational levels, utilizing social networking sites, talking with healthcare professionals and participating in an assortment of health fairs, resource fairs, fundraising benefits (both our own and those that organize these events in the name of sickle cell) and forms speaking events, such as, panel discussions.
What are the organization's capabilities for doing this?
What have they accomplished so far and what's next?
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
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- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
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American Sickle Cell Anemia Association
Board of directorsas of 11/06/2023
Mrs. Pamela Bradford
Gary Williams, Attorney
Mark Worford, DDS
Wanda Blount
Edward Scott
Duncan Shepherd, PhD
Grace Onimoe, MD
D'Wana Davis
Amonte Littlejohn
Artis Gaines
Jagina Mcintyre
Leah Williams, Attorney
Earsler Lesure
Deborah Friedman, MD
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
Race & ethnicity
No data
Gender identity
No data
No data
Sexual orientation
No data
Disability
No data
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