GOLD2023

American Sickle Cell Anemia Association

Together, We Can Beat This Disease

aka ASCAA   |   Cleveland, OH   |  www.ascaa.org

Mission

The American Sickle Cell Anemia Association was incorporated in 1971 as a nonprofit organization. The mission of the organization is to provide comprehensive education, testing, counseling and supportive services to the population at risk for sickle cell anemia and it's variants. Further, its intent is to insure quality and quantity care in the provision of comprehensive service to affected individuals and families.

Ruling year info

1973

Executive Director

Mrs. Ira Bragg-Grant

Main address

2390 East 79th Street Suite LH2-218

Cleveland, OH 44104 USA

Show more contact info

EIN

23-7178345

NTEE code info

Specifically Named Diseases (G80)

Community Health Systems (E21)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The American Sickle Cell Anemia Association (ASCAA) is driven to bring awareness about Sickle Cell Anemia and the affect it has on those who are at risk of the disease or variants of the trait. Our main issue is the lack of education, awareness, and general knowledge of sickle cell anemia to the general public, individuals, families and the population at risk. The ASCAA's aim is to bridge that gap and spread information, and even recognition, to a devastating illness the affects hundreds of thousands of newborns, children and adults.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Education/Outreach

ASCAA offers counseling for individuals seeking information about the effects of sickle cell anemia on individuals and families. We do this by distributing over 425,000 educational packages. Students, teachers, social workers, physicians, the media, and the public benefit from this essential education. We provide important testing for parents, newborns, and the public. We also offer crisis intervention, youth programs, family activities, and counseling for families and individuals dealing with sickle cell disease. A major program called CHAMPPS stands for Choosing Health, Awareness, Mobility, Personal Power, and Success. The mission is to help to maximize the adolescent and teenager's personal development and successful transitioning from childhood into adulthood. This program provides a network of peer-to-peer support among a group that is socially isolated and encumbered by a chronic illness. Sickle Talk, another program offers education and support through videos and podcasts.

Population(s) Served
Adults
Families
Parents
Ethnic and racial groups

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The American Sickle Cell Anemia Association's goals are to educate, counsel, provide social services and render invaluable tools to the general public, individuals, families and the population at risk of sickle cell anemia and variants of the trait.

The American Sickle Cell Anemia Association's strategies are to participate in health fairs, resource fairs, and other public and private events that allow us to spread information and awareness to the general public, individuals, families and the population at risk of sickle cell anemia and variants of the trait. This includes, but isn't limited to, speaking with students of various educational levels, utilizing social networking sites, talking with healthcare professionals and participating in an assortment of health fairs, resource fairs, fundraising benefits (both our own and those that organize these events in the name of sickle cell) and forms speaking events, such as, panel discussions.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We shared information about our current feedback practices.

  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive

  • What challenges does the organization face when collecting feedback?

    It is difficult to get the people we serve to respond to requests for feedback

Financials

American Sickle Cell Anemia Association
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

American Sickle Cell Anemia Association

Board of directors
as of 12/11/2023
SOURCE: Self-reported by organization
Board chair

Mrs. Pamela Bradford

Gary Williams, Attorney

Mark Worford, DDS

Wanda Blount

Edward Scott

Duncan Shepherd, PhD

Grace Onimoe, MD

D'Wana Davis

Amonte Littlejohn

Artis Gaines

Jagina Mcintyre

Leah Williams, Attorney

Earsler Lesure

Deborah Friedman, MD

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 11/6/2023
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Black/African American
Gender identity
Female

Race & ethnicity

No data

Gender identity

No data

Transgender Identity

No data

Sexual orientation

No data

Disability

No data