American Sickle Cell Anemia Association

Together We Can Beat Sickle Cell

aka ASCAA   |   Cleveland, OH   |  www.ascaa.org

Mission

The American Sickle Cell Anemia Association was incorporated in 1971 as a nonprofit organization. The mission of the organization is to provide comprehensive education, testing, counseling and supportive services to the population at risk for sickle cell anemia and it's variants. Further, its intent is to insure quality and quantity care in the provision of comprehensive service to affected individuals and families.

Ruling year info

1973

Executive Director

Mrs. Ira Bragg-Grant

Main address

10900 Carnegie Ave. DD1-201

Cleveland, OH 44106 USA

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EIN

23-7178345

NTEE code info

Specifically Named Diseases (G80)

Community Health Systems (E21)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

The American Sickle Cell Anemia Association (ASCAA) is driven to bring awareness about Sickle Cell Anemia and the affect it has on those who are at risk of the disease or variants of the trait. Our main issue is the lack of education, awareness, and general knowledge of sickle cell anemia to the general public, individuals, families and the population at risk. The ASCAA's aim is to bridge that gap and spread information, and even recognition, to a devastating illness the affects hundreds of thousands of newborns, children and adults.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Education/Outreach

Education- ASCAA has distributed over 425,000 educational packages. ASCAA provides education to students, teachers, social workers, physicians, the media, and the general public. Over 130,000 one-on-one sessions have been conducted by ASCAA. Testing/Newborn Screening- ASCAA provides vital testing for parents, newborns, and the general public. ASCAA currently tests approximately 3,100 individuals annually. Community testing is also provided. Supportive Services- ASCAA provides crisis intervention support, youth programs, supportive family activities and in-hospital counseling to families and individuals living and coping with sickle cell disease. A part of ASCAA's services includes CHAMPPS. C.H.A.M.which stands for Choosing Health, Awareness, Mobility, Personal Power, and Success, is a youth program designed for children with sickle cell anemia. The mission is to help to maximize the adolescent and teenager's personal development and successful transitioning from childhood into adulthood. Also, to promote enhanced personal care and decision-making skills; and to provide a network of peer-to-peer supports among a group that is socially isolated and encumbered by a chronic illness Counseling- ASCAA provides in house and community outreach counseling to those affected by sickling diseases and trait variants, as well as to those who want to learn more about the effects on individuals and their families.

Population(s) Served

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The American Sickle Cell Anemia Association's goals are to educate, counsel, provide social services and render invaluable tools to the general public, individuals, families and the population at risk of sickle cell anemia and variants of the trait.

The American Sickle Cell Anemia Association's strategies are to participate in health fairs, resource fairs, and other public and private events that allow us to spread information and awareness to the general public, individuals, families and the population at risk of sickle cell anemia and variants of the trait. This includes, but isn't limited to, speaking with students of various educational levels, utilizing social networking sites, talking with healthcare professionals and participating in an assortment of health fairs, resource fairs, fundraising benefits (both our own and those that organize these events in the name of sickle cell) and forms speaking events, such as, panel discussions.

Financials

American Sickle Cell Anemia Association
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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American Sickle Cell Anemia Association

Board of directors
as of 12/19/2019
SOURCE: Self-reported by organization
Board chair

Mrs. Pamela Bradford

Gary Williams

Mark Worford

Wanda Blount

Edward Scott

Duncan Shepherd

LeJoyce Taylor

Brandi Dobbs

Ulesia Young

Grace Onimoe

D'Wana Davis

Amonte Littlejohn

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes