Disease, Disorders, Medical Disciplines

American Sickle Cell Anemia Association

Together We Can Beat Sickle Cell

aka ASCAA

Cleveland, OH

Mission

The American Sickle Cell Anemia Association was incorporated in 1971 as a nonprofit organization. The mission of the organization is to provide comprehensive education, testing, counseling and supportive services to the population at risk for sickle cell anemia and it's variants. Further, its intent is to insure quality and quantity care in the provision of comprehensive service to affected individuals and families.

Ruling Year

1973

Executive Director

Mrs. Ira Bragg-Grant

Main Address

10900 Carnegie Ave. DD1-201

Cleveland, OH 44106 USA

Keywords

sickle cell, american, disease, chronic, kids, testing, sickle cell anemia, anemia, disease, genetic, trait

EIN

23-7178345

 Number

5035271909

Cause Area (NTEE Code)

Specifically Named Diseases (G80)

Community Health Systems (E21)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Programs + Results

What we aim to solve

The American Sickle Cell Anemia Association (ASCAA) is driven to bring awareness about Sickle Cell Anemia and the affect it has on those who are at risk of the disease or variants of the trait. Our main issue is the lack of education, awareness, and general knowledge of sickle cell anemia to the general public, individuals, families and the population at risk. The ASCAA's aim is to bridge that gap and spread information, and even recognition, to a devastating illness the affects hundreds of thousands of newborns, children and adults.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Education/Outreach

Where we work

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have they accomplished so far and what's next?

The American Sickle Cell Anemia Association's goals are to educate, counsel, provide social services and render invaluable tools to the general public, individuals, families and the population at risk of sickle cell anemia and variants of the trait.

The American Sickle Cell Anemia Association's strategies are to participate in health fairs, resource fairs, and other public and private events that allow us to spread information and awareness to the general public, individuals, families and the population at risk of sickle cell anemia and variants of the trait. This includes, but isn't limited to, speaking with students of various educational levels, utilizing social networking sites, talking with healthcare professionals and participating in an assortment of health fairs, resource fairs, fundraising benefits (both our own and those that organize these events in the name of sickle cell) and forms speaking events, such as, panel discussions.

External Reviews

Financials

American Sickle Cell Anemia Association

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  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
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Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
  • A Pro report is also available for this organization.

See what's included

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

No

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Yes