GREAT LAKES HEMOPHILIA FOUNDATION INC

aka GLHF   |   Milwaukee, WI   |  www.glhf.org

Mission

To educate, support and advocate for the bleeding disorders community of Wisconsin.

Ruling year info

1994

Executive Director

Danielle Leitner Baxter

Main address

638 N. 18th Street Suite 108

Milwaukee, WI 53233 USA

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EIN

23-7367636

NTEE code info

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

Fund Raising and/or Fund Distribution (E12)

Nonmonetary Support N.E.C. (G19)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Population(s) Served

GLHF’s qualified staff administers programs and resources specific to the needs of the Wisconsin bleeding disorders community. The goals of all GLHF services are to promote independence and autonomy while supporting optimal health outcomes.

Population(s) Served

Our PFA program helps economically disadvantaged patients and their families to access necessary basic medical treatment, as well as emergency care attention.

Population(s) Served

Scholarships for college or continuing education and training are made available to help our clients pursue careers that will meet their financial and insurance needs, as well as the physical considerations they may have.

Population(s) Served

The three components of our Camp Program have been thoughtfully built to provide the best possible experiences for our clients and to be accessible to all who are interested. The Medical and Scientific Advisory Council of the National Hemophilia Foundation recommends that prophylaxis is considered the optimal treatment regimen for people with bleeding disorders. Our camp program enables children to learn about their condition in a non-clinical setting, and the importance of a prophylactic treatment regimen for safely participating in both daily living and leisure activities. The three components are Family Camp, Summer Resident Camp Klotty Pine, Leader in Training Teen Program.

Population(s) Served

We encourage community members to monitor and assess state and national legislative issues pertaining to chronic disorders. Together, we share stories to explain this often unfamiliar condition and educate policymakers​ in an effort to promote services and public policy that will include the distinct needs of the bleeding disorders community.

We teach parents to be advocates for their children, regarding support and services in school, social, and health/medical related circumstances.

Population(s) Served

Where we work

Financials

GREAT LAKES HEMOPHILIA FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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GREAT LAKES HEMOPHILIA FOUNDATION INC

Board of directors
as of 02/14/2018
SOURCE: Self-reported by organization
Board chair

Pete Fisher

Thomsen Reuters Beta Systems

Term: 2016 - 2019

Jeff Koopmeiners

ORP Management LLC

Andy Barragry

Foley & Lardner LLC

Miguel Mireles

Dohmen Company

Debra Weiner

Children's Hospital of WI

Anne Nagy

Johnson Controls

Joshua Welsh

Marcus Corporation

Tom Beaudreau

Associated Benefits & Risk Consulting

Tracie Fechter

Studio 890

Robert Montgomergy, MD

Blood Research Institute

Gilbert White, MD

BloodCenter of WI