Cleft Palate Foundation
Committed to Team Care
Programs and results
What we aim to solve
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
ACPA Family Services
ACPA and the Cleft Palate Foundation (CPF) merged in 2017 to better achieve their common mission: to optimize outcomes for individuals with oral cleft and craniofacial conditions through education, support, research, advocacy and interdisciplinary team care. Professionals and families are now working more closely together to build cleft and craniofacial awareness and improve care.
After the merger, CPF’s patient and family programs have continued under the ACPA Family Services program. ACPA Family Services is dedicated to providing comprehensive resources and individualized support. Education is the center of ACPA Family Services, and family-centered team care is the goal for every patient.
Where we work
External reviews
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Each year it is our goal to continue to grow our existing programs (i.e. Cleftline services, research grants, college scholarships, team listings, and teddy bears) while implementing new initiatives to better serve individuals affected by cleft lip/palate and other craniofacial conditions.
In FY14 (July 1, 2013-June 30, 2014) CPF developed a blog to address various topics of concern for patients and families and to provide a forum for these individuals to ask questions, give feedback, and interact with one another.
In the coming year we will publish our "Prenatal Diagnosis" booklet, a resource for expecting parents who have just received a prenatal diagnosis of cleft lip/palate or other craniofacial condition.
CPF also particpates and plans donor events at the Annual American Cleft Palate-Craniofacial Association Conference. In 2017, the 74th Annual Conference is held in Colorado Springs, CO on March 13, 2017- March 18th.
What are the organization's key strategies for making this happen?
CPF hired a full-time Director of Family Services (as of August 1, 2013) whose time is dedicated to supporting and growing CPF's Cleftline services.
CPF has hired a Director of Operations (2013) and a Development Consultant (2017) to enrich the foundations revenue.
CPF has utilized social networking for donations and will continue to connect with their more than 10,000 followers to keep them up to date with the foundations happenings, events, and medical updates concerning CP and CL.
Increased support from donors has ensured growth for our college scholarship and research grant programs.
Three CPF staff members are collaborating to implement the CPF blog, contribute content, and provide moderation and responses for participants.
What are the organization's capabilities for doing this?
CPF has a full-time staff of 8employees and a number of outside consultants. CPF was founded in 1973 and has been run effectively and efficiently with a small staff ever since. We enjoy a close partnership with our founding organization, the American Cleft-Palate Craniofacial Association (ACPA) which provides valuable relationships with thousands of medical professionals in national and international cleft communities.
What have they accomplished so far and what's next?
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Cleft Palate Foundation
Board of directorsas of 10/13/2017
Robert Havlik, MD
Medical College of Wisconsin
Term: 2017 - 2017
Amelia F. Drake, MD
UNC Chapel Hill
Bernard J. Costello, DMD, MD, FACS
Eye and Ear Institute UPMC
Patricia H. Glick, DMD, MS
Barrow Children's Cleft and Craniofacial Center
Carrie L. Heike, MD, MS
Seattle Children's Hospital
John A. Girotto, MD, MMA, FAAP, FACS
Helen DeVos Children's Hospital
Patricia D. Chibarro, RN, MS, CPNP
NYU Langone Medical Center
Scott A. Daily, PhD
Univeristy of Iowa Hospitals and Clinics
Lynn M. Fox, MA MEd
UNC Crnaiofacial Center, School of Dentistry
Oksana Jackson, MD
Children's Hospital of Philadelphia
Ana M. Mercado, DMD, PhD
Kristina Wilson, PhD, CCC-SLP
Texas Children's Hospital