Cleft Palate Foundation

Committed to Team Care

aka American Cleft Palate- Craniofacial Association   |   Chapel Hill, NC   |  www.acpa-cpf.org
This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.

Mission

The Cleft Palate Foundation is currently branded as ACPA Family Services and is part of the American Cleft Palate-Craniofacial Association (ACPA), an international non-profit association of health care professionals and others who treat oral cleft and craniofacial conditions. ACPA also provides funding for research, advocates for family-centered team care, and awards scholarships to health care professionals and college students who are affected by cleft and craniofacial conditions. ACPA Family Services serves individuals and families across the U.S. who are affected by cleft lip/palate and other craniofacial conditions, by connecting them to team care, providing education, and offering personal support.

Ruling year info

1988

Executive Director

Ms. Wendy-Jo Toyama

Main address

1504 E Franklin St Ste 102

Chapel Hill, NC 27514 USA

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EIN

25-1572666

NTEE code info

Birth Defects (G20)

Birth Defects, Genetic Diseases Research (H20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

ACPA Family Services

ACPA and the Cleft Palate Foundation (CPF) merged in 2017 to better achieve their common mission: to optimize outcomes for individuals with oral cleft and craniofacial conditions through education, support, research, advocacy and interdisciplinary team care. Professionals and families are now working more closely together to build cleft and craniofacial awareness and improve care.

After the merger, CPF’s patient and family programs have continued under the ACPA Family Services program. ACPA Family Services is dedicated to providing comprehensive resources and individualized support. Education is the center of ACPA Family Services, and family-centered team care is the goal for every patient.

Population(s) Served

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Each year it is our goal to continue to grow our existing programs (i.e. Cleftline services, research grants, college scholarships, team listings, and teddy bears) while implementing new initiatives to better serve individuals affected by cleft lip/palate and other craniofacial conditions.

In FY14 (July 1, 2013-June 30, 2014) CPF developed a blog to address various topics of concern for patients and families and to provide a forum for these individuals to ask questions, give feedback, and interact with one another.

In the coming year we will publish our "Prenatal Diagnosis" booklet, a resource for expecting parents who have just received a prenatal diagnosis of cleft lip/palate or other craniofacial condition.

CPF also particpates and plans donor events at the Annual American Cleft Palate-Craniofacial Association Conference. In 2017, the 74th Annual Conference is held in Colorado Springs, CO on March 13, 2017- March 18th.

CPF hired a full-time Director of Family Services (as of August 1, 2013) whose time is dedicated to supporting and growing CPF's Cleftline services.

CPF has hired a Director of Operations (2013) and a Development Consultant (2017) to enrich the foundations revenue.

CPF has utilized social networking for donations and will continue to connect with their more than 10,000 followers to keep them up to date with the foundations happenings, events, and medical updates concerning CP and CL.

Increased support from donors has ensured growth for our college scholarship and research grant programs.

Three CPF staff members are collaborating to implement the CPF blog, contribute content, and provide moderation and responses for participants.

CPF has a full-time staff of 8employees and a number of outside consultants. CPF was founded in 1973 and has been run effectively and efficiently with a small staff ever since. We enjoy a close partnership with our founding organization, the American Cleft-Palate Craniofacial Association (ACPA) which provides valuable relationships with thousands of medical professionals in national and international cleft communities.

Financials

Cleft Palate Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Cleft Palate Foundation

Board of directors
as of 10/13/2017
SOURCE: Self-reported by organization
Board chair

Robert Havlik, MD

Medical College of Wisconsin

Term: 2017 - 2017

Amelia Drake, MD

UNC Chapel Hill

Bernard Costello, DMD, MD, FACS

Eye and Ear Institute UPMC

Patricia Glick, DMD, MS

Barrow Children's Cleft and Craniofacial Center

Carrie Heike, MD, MS

Seattle Children's Hospital

John Girotto, MD, MMA, FAAP, FACS

Helen DeVos Children's Hospital

Patricia Chibarro, RN, MS, CPNP

NYU Langone Medical Center

Scott Daily, PhD

Univeristy of Iowa Hospitals and Clinics

Lynn Fox, MA MEd

UNC Crnaiofacial Center, School of Dentistry

Oksana Jackson, MD

Children's Hospital of Philadelphia

Ana Mercado, DMD, PhD

Kristina Wilson, PhD, CCC-SLP

Texas Children's Hospital