Disease, Disorders, Medical Disciplines

Cleft Palate Foundation

Committed to Team Care

aka American Cleft Palate- Craniofacial Association

Chapel Hill, NC

This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.

Mission

The Cleft Palate Foundation is currently branded as ACPA Family Services and is part of the American Cleft Palate-Craniofacial Association (ACPA), an international non-profit association of health care professionals and others who treat oral cleft and craniofacial conditions. ACPA also provides funding for research, advocates for family-centered team care, and awards scholarships to health care professionals and college students who are affected by cleft and craniofacial conditions. ACPA Family Services serves individuals and families across the U.S. who are affected by cleft lip/palate and other craniofacial conditions, by connecting them to team care, providing education, and offering personal support.

Ruling Year

1988

Executive Director

Ms. Wendy-Jo Toyama

Main Address

1504 E Franklin St Ste 102

Chapel Hill, NC 27514 USA

Keywords

cleft, cleft lip, cleft palate, birth defects, face, smile, facial, craniofacial, patient education, advocacy, family support, research

EIN

25-1572666

 Number

1706693002

Cause Area (NTEE Code)

Birth Defects (G20)

Birth Defects, Genetic Diseases Research (H20)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs + Results

What we aim to solve New!

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Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

ACPA Family Services

Where we workNew!

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

Each year it is our goal to continue to grow our existing programs (i.e. Cleftline services, research grants, college scholarships, team listings, and teddy bears) while implementing new initiatives to better serve individuals affected by cleft lip/palate and other craniofacial conditions.

In FY14 (July 1, 2013-June 30, 2014) CPF developed a blog to address various topics of concern for patients and families and to provide a forum for these individuals to ask questions, give feedback, and interact with one another.

In the coming year we will publish our "Prenatal Diagnosis" booklet, a resource for expecting parents who have just received a prenatal diagnosis of cleft lip/palate or other craniofacial condition.

CPF also particpates and plans donor events at the Annual American Cleft Palate-Craniofacial Association Conference. In 2017, the 74th Annual Conference is held in Colorado Springs, CO on March 13, 2017- March 18th.

CPF hired a full-time Director of Family Services (as of August 1, 2013) whose time is dedicated to supporting and growing CPF's Cleftline services.

CPF has hired a Director of Operations (2013) and a Development Consultant (2017) to enrich the foundations revenue.

CPF has utilized social networking for donations and will continue to connect with their more than 10,000 followers to keep them up to date with the foundations happenings, events, and medical updates concerning CP and CL.

Increased support from donors has ensured growth for our college scholarship and research grant programs.

Three CPF staff members are collaborating to implement the CPF blog, contribute content, and provide moderation and responses for participants.

CPF has a full-time staff of 8employees and a number of outside consultants. CPF was founded in 1973 and has been run effectively and efficiently with a small staff ever since. We enjoy a close partnership with our founding organization, the American Cleft-Palate Craniofacial Association (ACPA) which provides valuable relationships with thousands of medical professionals in national and international cleft communities.

External Reviews

Financials

Cleft Palate Foundation

Fiscal year: Jul 01 - Jun 30

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Operations

The people, governance practices, and partners that make the organization tick.

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  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
A Pro report is also available for this organization for $125.
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Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable