Disease, Disorders, Medical Disciplines

Apraxia Kids

aka Apraxia Kids

Pittsburgh, PA

Mission

Childhood Apraxia of Speech Association of North America (Apraxia Kids) was founded in 2000 to address the need to have a national voice for children with apraxia of speech and their families. Our mission is to improve the systems of support in the lives of children with apraxia so that each child is afforded their best opportunity to develop speech. We do this through dissemination of information, support to families and professionals, educational programs, awareness activities and research support.

Ruling Year

2000

Executive Director

Angela Grimm

Main Address

1501 Reedsdale Street Ste. 202

Pittsburgh, PA 15233 USA

Keywords

children, speech, language, impairment, communication, disorder, disability, apraxia, dyspraxia, verbal dyspraxia, verbal apraxia, childhood apraxia of speech

EIN

25-1858159

 Number

2681003275

Cause Area (NTEE Code)

Alliance/Advocacy Organizations (G01)

Pediatrics (G98)

Alliance/Advocacy Organizations (E01)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Programs + Results

What we aim to solve New!

The ability to communicate is perhaps the most human of all skills and helps form our identities. Speech also allows us to take our unique place in the world. Childhood apraxia of speech, one of the most severe of childhood speech disorders, makes it difficult or impossible for children to plan the movements of speech structures (i.e. lips, tongue, soft palate, jaw) that make intelligible speech possible. While there is still much to understand about the causes, children who receive appropriate, early and intensive therapy are usually able to become effective verbal communicators. Children who do not get proper therapy are at risk to never develop understandable speech.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

National Conference

Webinars

Advanced Trainings

Professional Directory

Research Grants

Professional Advisory Council

Presentations

Speech Tablet Program

Where we workNew!

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

- To provide high quality information on childhood apraxia of speech and spread awareness to families, professionals, policy-makers and other members of the public.
- To provide practical support to families by assisting with small therapy grants and communication tools for affected children.
- To facilitate better public policy and services for children affected by the disorder.
- To provide training and educational opportunities for families and professionals.
- To increase the level of expertise available throughout North America to diagnose and treat childhood apraxia of speech
- To encourage/fund research in childhood apraxia of speech and sponsor scientific research meetings.

Apraxia Kids accomplishes its mission through eight programs:

1. National Conference - Each year, APRAXIA KIDS holds a unique educational and support-building experience for professionals and parents through its 3-day National Conference. What makes this conference stand out is the almost even mix of Speech-Language Pathologists and parents/family members of children with apraxia who attend. As they sit side-by-side to attend the many diverse presentations that are offered, an appreciation of what each participant brings to the journey emerges.

2. Webinars - Not only does APRAXIA KIDS sponsor 10-15 live webinars per year, but it has moved “outside the box" to offer creative 3-session webinars that allow for interactive critical thinking and discussion. An often visited on-demand webinar library provides the potential viewer a wide variety of options that range from speech and language topics specific to childhood apraxia to related critical issues such as bullying and academic challenges.

3. Advanced Trainings - APRAXIA KIDS offers a 4-day Intensive Training Institute for Speech Language Pathologists, known to most as “Apraxia Boot Camp." Participants come from across the country and into Canada for this experience of a lifetime to absorb as much as they can about evaluating and treating this complex motor speech disorder.

4. Professional Directory - Parents can find a speech-pathologist with at least foundational knowledge and experience in evaluating and treating childhood apraxia, as close to home as possible through APRAXIA KIDS Professional Directory.

5. Speech Tablet Program - Each year, APRAXIA KIDS provides free speech tablets to children and families in need throughout the USA and Canada.

6. Research Grants - Each year, APRAXIA KIDS grants up to $25,000 per applicant to researchers who submit proposals for treatment research pilot studies. These studies over the years have proven to be invaluable to the apraxia community in driving therapy decision-making. They also provide a foundation for further critical research that is desperately needed.

7. Professional Advisory Council - APRAXIA KIDS is fortunate to have the expertise and support of a 24 member Professional Advisory Council. The esteemed members of the council advise on such matters as program development, research grant awards, conference speakers, and advanced training participant selection.

8. Presentations - APRAXIA KIDS supports half and full-day presentations on various topics related to childhood apraxia of speech. Talks are provided to private agencies, school districts, and universities to spread the word about current ideas in diagnosing and treating childhood apraxia of speech.

We have been able to achieve a great deal over the years due to the increasing commitment of parents, families, professionals and researchers. Our organization has planned well for long-term sustainability through close guidance of a committed board of directors and advisors.

APRAXIA KIDS actively tracks participation in webinars, workshops, and conferences. We seek out feedback during and after events to identify areas for improvement. We also track participation and financial giving from events such as our regional walks, Apraxia Awareness Month, and other campaigns.

- APRAXIA KIDS created and guided an annual Apraxia Awareness Day (May 14) which has served to rally and galvanize the Apraxia community as well as achieve incredible outreach to communities, providing materials and tools to local and regional volunteers. Starting in 2018, APRAXIA KIDS will celebrate May as Apraxia Awareness Month.
- Our Walk for Apraxia program has grown since it began in 2007. In 2017, 75 communities participated in the Walk for Apraxia raising significant funding and awareness for the Apraxia cause.
- Each year we educate OVER 2,000 people through our one-day workshops, online and on-demand webinars, and our annual National Conference on Childhood Apraxia of Speech
- We provide direct support to children through the iPads for Apraxia project which has provided speech tablets and protective cases to children and through our small speech therapy grants program (administered by a partner) which has helped decrease the financial burden for families of low to moderate income.
- APRAXIA KIDS has been funding research grants to advance the science of Childhood Apraxia of Speech. The program's success can be seen by a dozen new research journal articles published in the last several years from our grantees.
- APRAXIA KIDS serves as a trusted information clearinghouse for over 2 million worldwide visitors annually to our acclaimed Apraxia-KIDS.org website.

External Reviews

Financials

Apraxia Kids

Fiscal year: Jan 01-Dec 31

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  • Forms 990 for 2015, 2014 and 2013
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Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2015, 2014 and 2013
  • Access to the GuideStar Community
A Pro report is also available for this organization for $125.
Click here to see what's included.

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

No

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

No

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

No

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

No

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

No