Disease, Disorders, Medical Disciplines

CURE STARTS NOW INC

aka Monkey in My Chair   |   Cincinnati, OH   |  www.thecurestartsnow.org

Mission

Our mission is to educate and aid families battling cancer with patient centered programs focusing on facilitating continued interaction between school and patients through Monkey In My Chair program. As well as fund cures for pediatric brain cancer.

Ruling year info

2007

Principal Officer

Ms Brooke Desserich

Main address

10280 Chester Rd % Brooke Desserich

Cincinnati, OH 45215 USA

Show more addresses

EIN

26-0269131

Cause area (NTEE code) info

Cancer (G30)

Fund Raising and/or Fund Distribution (E12)

Children's and Youth Services (P30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2018, 2017 and 2016.
Register now

Communication

Programs and results

What we aim to solve

This profile needs more info.

If it is your nonprofit, add a problem overview.

Login and update

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Pediatric Cancer Research Funding

The Cure Starts Now Cancer Research Foundation
(501c3 Federal Non-Profit) is one of the only cancer foundations dedicated to a
“homerun” cure for all cancers, starting first with one of the most deadly and
difficult cancers: pediatric brain cancer.Many experts believe that the lessons we learn from fighting pediatric
cancer may in fact provide us the critical first step in winning the battle
against all forms of cancer, both pediatric and adult.
The Cure Starts Now represents a revolutionary new
strategy in cancer research; one that fights cancer not according to numbers
but instead based on knowledge and research.And isn’t that the way we’ll ultimately win the battle?
The Cure Starts Now’s mission is one that knows no
boundaries and stops at no borders.It
is an international effort of families, friends, businesses and even strangers,
united in the desire to cure cancer, one child at a time.And it all started with one child, but today
the inspiration is carried with us all.

  

In our search for the cure, we are not alone.Joined by institutions, foundations and
individuals, The Cure Starts Now has been involved with the funding of over
$1,000,000 in pediatric cancer research since its creation occurring at over 17
of the best hospitals and institutions worldwide.From state-of-the-art mouse modeling to
unprecedented registry cooperation and drug screening, some of the very best in
cancer research is possible because of your support.

Population(s) Served
Children and Youth (infants - 19 years.)

Primary aged children diagnosed with cancer are often
removed from school for extended amounts of time to tend to medical needs.The majority of these children return to
school, but often find difficulty with maintaining a relationship with
classmates.Teachers often are
ill-trained for these situations and struggle to help both the patient and the
classmates with the overwhelming questions and feelings associated with the
cancer diagnosis and absence from the classroom.Monkey in My Chair program eases the divide
created by removing cancer patients from the classroom during treatment and
provides teachers valuable resources to manage a classroom devastated by a
cancer diagnosis.
Monkey in My Chair provides a monkey pack to any child
diagnosed with cancer.The large monkey
serves as a physical reminder to the classroom that their classmate is still a
part of the classroom community.Materials
are provided to the teacher to help train them on managing the questions and
feelings.Patients are provided with a
smaller monkey to remind them that a “buddy” is holding their place in the
classroom.Online interaction tools such
as “Monkey Mail” and online educational games, keep lines of communication open
between classmates and patients.In this
online community, suggested activities for both patients and classrooms offer
ways to keep the relationship strong through the absences while still providing
educational content.The program
provides a supportive atmosphere for both parties through a difficult and
emotional time while making re-entry into the classroom effortless for the
patient.

Population(s) Served
Children and Youth (infants - 19 years.)

2012 The Cure Starts Now became a founding member of
the Diffuse Intrinsic Pontine Glioma Collaborative.  Initially a product of the DIPG Symposium of
2011 held in Cincinnati, today the DIPG Collaborative involves the combined
efforts of 12

foundations, all unified in the pursuit of the cure to DIPG.Common to our own origins, this cancer not
only plagues our children, but has also been identified as one of the main
battles in our fight for a “homerun” cure for all cancers, principally because
of its natural resiliency to most treatment methods thereby forcing us to do more.

Population(s) Served
Children and Youth (infants - 19 years.)

Where we work

This profile needs more info.

If it is your nonprofit, add geographic service areas to create a map on your profile.

Login and update

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Average grant amount

This metric is no longer tracked.
Totals By Year
Population(s) Served

K-12 (5-19 years),Adolescents (13-19 years)

Related Program

Pediatric Cancer Research Funding

Context Notes

Average amount granted to hospitals, researchers and institutions for DIPG research for the year.

Total number of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

Children and youth (0-19 years),K-12 (5-19 years)

Related Program

Pediatric Cancer Research Funding

Context Notes

Number of research grants awarded each year. DIPG Symposium years (2015 + 2017) is significantly higher than non-DIPG Symposium years ( 2016 + 2014).

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Population(s) Served

K-12 (5-19 years),Adolescents (13-19 years)

Related Program

Pediatric Cancer Research Funding

Context Notes

Amount of research grants awarded each year. DIPG Symposium years (2015 + 2017) is significantly higher than non-DIPG Symposium years ( 2016 + 2014).

Number of conference attendees

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers,Families,People with cancer

Related Program

DIPG Symposium & Collaborative

Context Notes

Number of people attending the DIPG Symposiums hosted each year. DIPG Symposium is bi-annual and are scheduled for 2011, 2013, 2015 & 2017.

Total number of organization members

This metric is no longer tracked.
Totals By Year
Population(s) Served

Caregivers,Families,Parents

Related Program

DIPG Symposium & Collaborative

Number of conferences held

This metric is no longer tracked.
Totals By Year
Population(s) Served

Families,Parents,People with cancer

Related Program

DIPG Symposium & Collaborative

Context Notes

Number of DIPG Symposiums hosted each year. DIPG Symposium is bi-annual and are scheduled for 2011, 2013, 2015 & 2017.

Average number of dollars received per donor

This metric is no longer tracked.
Totals By Year
Related Program

Pediatric Cancer Research Funding

Context Notes

Average donation amount.

Number of clients participating in educational programs

This metric is no longer tracked.
Totals By Year
Population(s) Served

K-12 (5-19 years),Academics,People with cancer

Related Program

Monkey In My Chair Program

Context Notes

This tracks number of people receiving Monkey in My Chair kits each year.

Charting impact

SOURCE: Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

What is the organization aiming to accomplish?

Educate, Aid and Fund Cures for Pediatric Brain Cancer.The Cure Starts Now represents a revolutionary new strategy in cancer research; one that fights cancer not according to numbers but instead based on knowledge and research. The Cure Starts Now’s mission is one that knows no boundaries and stops at no borders. It is an international effort of families, friends, businesses and even strangers, united in the desire to cure cancer, one child at a time. And it all started with one child, but today the inspiration is carried with us all.

We seek to educate through awareness campaigns and our bi-annual DIPG Symposium. The Cure Starts Now aids families battling cancer with our Monkey in My Chair program as well as our assistance funds. Lastly, each year, thanks to our extensive network of chapters and families, we are able to use money raised to fund research selected through an extensive grant process with our highly specialized Medical Advisory Council.

Through our extensive network of chapters and families, we are able to use money raised to fund research selected through an extensive grant process with our highly specialized Medical Advisory Council. We are also able to provide unlimited quantities of Monkey in My Chair kits to hospitals and families nationwide. With our bi-annual DIPG Symposium, we work with researchers and institutions to ensure that research data is being shared and efforts are made to collaborate on research.

For our Monkey in My Chair program our success indicators are a growth not only in the number of hospitals the program is activ ein, but also the number of kits shipped and registered. Each year this number increases. For research, our success indicators are the amount of money that is spent on research each year.

Since the inception of the charity we have raised over $2.6 million in research funded and held two successful DIPG Symposiums.

Financials

CURE STARTS NOW INC
lock

Unlock financial insights by subscribing to our monthly plan.

Subscribe

Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more about GuideStar Pro.

Operations

The people, governance practices, and partners that make the organization tick.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

CURE STARTS NOW INC

Board of directors
as of 4/29/2019
SOURCE: Self-reported by organization
Board chair

Mr. Keith Desserich

Keith Desserich Chairman of the Board

Doug Desserich Treasurer

Ginny Pritchett Board of Directors

Kyle McLaughlin Board of Directors

Tamara Ekis Board of Directors

Trent Hummel Board of Directors

Gavin Baumgardner

Melissa Saladonis Board of Directors

Deanna Morgan

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Keywords

pediatric cancer research monkey in my chair