Families for Fragile X

Miami, FL   |  www.familiesforfragilex.org

Mission

Families for Fragile X is a non-profit organization run by parents, relatives, and friends of those with Fragile X.

At Families for Fragile X, our goal is to change the future of Fragile X and make it easier to for all who struggle with it.

The Families for Fragile X mission is to provide family support, promote public awareness and supports scientific research leading to better treatments and a future cure for Fragile X Syndrome. We are committed to raising the funds necessary to support these goals.

It is our belief that we need to bring the fragile x community together as one voice because, working together; we will find the cure for Fragile X.

Ruling year info

2008

Principal Officer

Michele Kaplan

Main address

8200 Northwest 33rd Street, suite 300

Miami, FL 33122 USA

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Formerly known as

FLORIDA FRAGILE X FAMILIES FOUNDATION

EIN

26-0654462

NTEE code info

Birth Defects (G20)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Families For Fragile X

Population(s) Served
Population(s) Served

Where we work

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Financials

Families for Fragile X
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Families for Fragile X

Board of directors
as of 6/7/2016
SOURCE: Self-reported by organization
Board chair

michele Kaplan

no affiliation

Michele Kaplan President

No Affiliation