ALS Association Orange County Chapter

aka The ALS Association Orange County Chapter   |   Tustin, CA   |  www.alsaoc.org

Mission

To lead the fight to cure and treat ALS through global cutting-edge research and to empower people with Lou Gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.

Ruling year info

1990

Executive Director

Natalie Villegas

Main address

3002 Dow Avenue UNIT 524

Tustin, CA 92780 USA

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EIN

33-0282720

NTEE code info

Patient Services - Entertainment, Recreation (E86)

Health Support Services (E60)

Health Support Services (E60)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Patient Services

The ALS Association's patient Services Department helps patients and their families cope with the day-to-day challenges of living with ALS by providing, case management, medical equipment loans, communication device loans, patient support groups and respite care for families.

Population(s) Served

The Association plays a lead role in advocating for increased public and private policies that respond to the needs of people with ALS. Staff and volunteers assemble, at our annual "Advocacy Days" in Washington D.C., with their counterparts statewide to advocate for legislative issues affecting ALS in California, and with their counterparts nationwide for legislative issues affecting ALS in the U.S. Attendees meet with their representatives and carry letters of support from local constituents. State and national meetings and vigils are held in support of the issues.

Population(s) Served

Where we work

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Awards

Proclamations and Certificates of Recognition for ALS Month of May 2008

Proclamations from cities of Irvine, Santa Ana, Anaheim; Certificates of Recognition from CA State Senate and Assembly

Affiliations & memberships

Affiliate/Chapter of National Organization (i.e. Girl Scouts of the USA, American Red Cross, etc.) - Affiliate/chapter 1987

Financials

ALS Association Orange County Chapter
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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ALS Association Orange County Chapter

Board of directors
as of 1/24/2019
SOURCE: Self-reported by organization
Board chair

Dr. William Collins

Doctor

Term: 2015 - 2018

Mark Hershey

Star Landscape

Chad Kessler

TIAA Cref

Carol Pierson

St. Jude Hospital

Bill Collins

Board President

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No