Central Nervous System Vasculitis Foundation Inc

aka CNSVFOUNDATION.ORG   |   Kissimmee, FL   |  www.cnsvfoundation.org
This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.
This organization's exempt status was automatically revoked by the IRS for failure to file a Form 990, 990-EZ, 990-N, or 990-PF for 3 consecutive years. Further investigation and due diligence are warranted.

Mission

The mission of the Central Nervous System Vasculitis Foundation Inc is to bring to the forefront the need for Education and Research of the rare disease of CNSV, for the patient, as well as the Medical professional, researcher, family member and community at large.

Ruling year info

2006

Principal Officer

Mrs. Tracy Green

Main address

3001 Viscount Circle

Kissimmee, FL 34747

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EIN

34-2031537

NTEE code info

Neurology, Neuroscience (H96)

Brain Disorders (H48)

Single Organization Support (H11)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Presently our programs include support systems via internet and phone. We provided printed materials both upon request, as well as downloadable from our web site. We look forward to expanding our efforts into meetings and educational lectures with frontline persons, who would first see the cnsv patient. We offer different areas of support such as electronic message boards, where patients post in Q & A type forums.

Population(s) Served

Where we work

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Financials

Central Nervous System Vasculitis Foundation Inc

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Operations

The people, governance practices, and partners that make the organization tick.

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Central Nervous System Vasculitis Foundation Inc

Board of directors
as of 6/6/2016
SOURCE: Self-reported by organization
Board co-chair

Tracy Green

No Affiliation


Board co-chair

Cheryl Lynne Conway

No Affiliation

Cheryl Conway Interm secretary/Website

No Affiliation

Greg Clark Treasurer

No Affiliation

Tracy Latimer-Green President

No Affiliation