Disease, Disorders, Medical Disciplines

The ALS Association Indiana Chapter

  • Indianapolis, IN
  • www.alsaindiana.org

Mission Statement

To lead the fight to cure and treat ALS through global, cutting-edge
research, and to empower people with Lou Gehrig’s disease and their
families to live fuller lives by providing them with compassionate care
and support.

Service Areas

Self-reported

Indiana

Serving ALS patients and families throughout the State of Indiana

ruling year

1990

Principal Officer since 2008

Self-reported

Ms. Jennifer Lewellen

Keywords

Self-reported

ALS, amyotrophic, Lou Gehrig's disease, ALSA, The ALS Association, ALS Association of Indiana

Sign in or create an account to view Form(s) 990 for 2016, 2015 and 2015.
Register now

Also Known As

The ALS Association Indiana Chapter

EIN

35-2029321

 Number

4643595685

Physical Address

7202 E. 87th St., Ste. 102

Indianapolis, 46250

Contact

Cause Area (NTEE Code)

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

Nerve, Muscle and Bone Diseases (G50)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Overview

Self-reported by organization

Expanding access to consistent care, treatment and community-based resource and support services to enhance quality of life for all affected by ALS.

Funding and accrediting Clinical Centers of Excellence that provide multidisplinary care proven to extend the lives of people living with ALS.

Supporting patients, caregivers, and their families in the most important and difficult journey of their life.

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

ALS's operating programs focus on educating people with ALS (PALS) and their families about living with ALS. This is done through: a comprehensive network of support groups; providing financial support for respite care services, workshops including our Annual Caregivers Conference, Ask the Doctor and a 3-part series for Newly Diagnosed Patients and seminars for respite care providers; The ALS Informer, our quarterly newsmagazine, provides practical information for PALS, their families and caregivers; and our support groups offer PALS and their families an opportunity to talk with and share information with other people in similar situations. Additionally, our medical social worker links people with critically needed community services and helps them through the health care insurance system. For those in need, the Equipment Loan Closet provides needed durable medical equipment to PALS free of charge.

Category

Population(s) Served

Budget

Charting Impact

Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

  1. What is the organization aiming to accomplish?
    People with ALS and their families have:
    o Access to consistent care, treatment and services
    o Resource and support services that enhance quality of life
    o Quality care and support leveraged by collaboration with partners
  2. What are the organization's key strategies for making this happen?
    ALS Multidisciplinary Clinics: Critical Support for Quality of Care
    The Chapter currently support two ALS multidisciplinary clinics in partnership with local hospitals VA Medical Center and IU Neuroscience Center. These clinics provide the highest quality of care available and give people with ALS the opportunity to address all of their medical needs in one place at one time. The Chapter recognizes the importance of a continued focus on our clinic partnerships and will continuously explore new ways to better support our clinic teams.

    Support Groups: Meeting the Area Demand
    Support Groups provide an essential service to people living with ALS and their caregivers. They provide families the opportunity to receive resources, comfort and support from our caseworkers and from each other. The Chapter will be offers five support groups for people with ALS and their caregivers throughout Indiana. We will continue our efforts to enhance the support group experience by listening and responding to the feedback of the families we serve.

    Advocacy: Building ALS Awareness
    To improve the awareness of the ALS community and the needs of our patients. We are identifying partnerships with media outlets to expand our voice. The Chapter supports volunteers, patients and caregivers to travel and represent the Indiana Chapter on Capitol Hill twice a year. This will increase education and build strong relationships with key federal and state lawmakers, healthcare thought leaders and agencies that influence ALS research and ALS healthcare delivery.

    Home Healthcare Benefits: Respite Care
    We asked and listened to our patients and their caregivers. They need additional day to day support from a professional caregiver. We are evaluating our patients needs to devise a plan to increase Respite Care by 100% within 2 years. Allowing the Chapter to support additional family needs.
  3. What are the organization's capabilities for doing this?
    We have evaluated internal staff capabilities. We are in the process of hiring one additional development staff to support increase need for funding to implement goals. The Chapter is financial sustainable without negatively impacting other programs and service lines.

    Impact of current operations- will not disrupt or negatively impact the delivery of current services and programs.

    There is no competition with other organizations providing this program/service. We offer a clear advantage.

    The Board of Directors are partnering to identify additional resources and other types of support to achieve success.
  4. How will they know if they are making progress?
    The Chapter has quarterly benchmarks:
    1. Increase funding to underwrite strategic plan programs and services
    2. Annual needs assessment from patients and their caregivers
    3. Annual satisfaction survey from patients, caregivers, and physicians.
    4. Quarterly increase of participation from patients, utilizing programs and services. Percentage of change.
  5. What have and haven't they accomplished so far?
    1. Needs assessment is in progress. Stage 4 of 6 to completion. Data analysis has begun.
    2. Strategic plan submitted to Board of Directors
    3. Execution- has not begun
    4. Development director- interviews have begun
Service Areas

Self-reported

Indiana

Serving ALS patients and families throughout the State of Indiana

Funding Needs

The ALS Association of Indiana is completely donor and grant funded. We need financial assistance with operations, awareness initiatives, patient services programming, funding our multidisciplinary clinic, new laptops, a server and staffing.

External Reviews

Source: greatnonprofits.org

The review section is powered by Great Nonprofits

Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC
Fiscal year: Feb 01-Jan 31
Yes, financials were audited by an independent accountant.

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2016, 2015 and 2015
  • Board Chair and Board Members
  • Access to the GuideStar Community
Get all this now for free
Need the ability to download nonprofit data and more advanced search options? Consider a Premium or Pro Search subscription.

Operations

The people, governance practices, and partners that make the organization tick.

The ALS Association Indiana Chapter

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2016, 2015 and 2015
  • Board Chair and Board Members
  • Access to the GuideStar Community
Need the ability to download nonprofit data and more advanced search options? Consider a Premium or Pro Search subscription.

Principal Officer

Ms. Jennifer Lewellen

STATEMENT FROM THE Principal Officer

"Jennifer Lewellen officially became the Executive Director of the ALS Association of Indiana in February of 2008. Prior to joining the organization, she was on the Board of Directors for nearly 5 years, captained two walk teams and volunteered for the Central Indiana walks. Jennifer?s expertise is in developing relationships and partnerships, growing programs and organizations, building awareness, and fundraising. Some of Ms. Lewellen's past roles include Independent Consultant, Director of Career Services for a large proprietary college, Director of a state-wide workforce development initiative, and Vice President of an entrepreneurial computer solutions company."

Governance

BOARD CHAIR

Ms Elizabeth Stahl

EJ Stahl

Term: Oct 2009 - Nov 2011

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization


RESPONSE NOT PROVIDED

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?


RESPONSE NOT PROVIDED

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?