Medical Research

LUNGEVITY FOUNDATION

Find it. Treat it. Live.

Chicago, IL

Mission

The mission of LUNGevity Foundation is to have a meaningful and immediate impact on improving lung cancer survival rates, ensure a higher quality of life for lung cancer patients, and provide a community for those impacted by lung cancer.
In order to accomplish our mission, LUNGevity funds the most promising research into the early detection and successful treatment of lung cancer as identified by our board of leading scientists. LUNGevity also supports the largest national grassroots lung cancer network.
We hope to inspire the nation to commit to ending lung cancer.

Ruling Year

2001

Chief Executive Officer

Andrea Ferris

Main Address

228 S. Wabash Avenue Suite 700

Chicago, IL 60604 USA

Keywords

lung cancer, lung, cancer, research, support, community, cure, treatment, survivors

EIN

36-4433410

 Number

3777573236

Cause Area (NTEE Code)

Cancer Research (H30)

Alliance/Advocacy Organizations (G01)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Blog

Programs + Results

What we aim to solve New!

LUNGevity envisions a world where no one dies of lung cancer. Today, the 5-year survival rate for lung cancer lags far behind most other cancers at just 17%, and both federal and private funding are disproportionately low for the nation's #1 cancer killer. Stigma and lack of awareness prevent the disease from receiving the funding it needs, and leaves patients without the support they deserve.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Funding and Conducting Lung Cancer Research

Support and Survivorship

Lung Cancer Education

Where we workNew!

Our Results

How does this organization measure their results? It's a hard question but an important one. These quantitative program results are self-reported by the organization, illustrating their committment to transparency, learning, and interest in helping the whole sector learn and grow.

SOURCE: Self-reported by organization

Number of educational materials shipped and downloaded each year

TOTALS BY YEAR
Population(s) served

Caregivers,

People with cancer

Related program

Lung Cancer Education

Number of patients, caregivers and healthcare professionals reached via email

TOTALS BY YEAR
Population(s) served

Caregivers,

People with cancer

Related program

Lung Cancer Education

Return on investment of the research we fund

TOTALS BY YEAR
Population(s) served

People with cancer

Related program

Funding and Conducting Lung Cancer Research

Context notes

Dollars of follow-on funding earned for each dollar of research we fund

Number of patients surveyed on treatments and the patient experience

TOTALS BY YEAR
Population(s) served

People with cancer

Related program

Funding and Conducting Lung Cancer Research

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

LUNGevity believes that with increased funding for research, greater awareness and empowered survivors, we will see the day when lung cancer is a chronic, treatable disease.

LUNGevity is addressing these issues by developing and implementing programs that 1) accelerate research that patients value, 2) empower patients to actively engage in their treatment decisions, and 3) identify patient preferences and challenges in areas such as treatment options and enrollment in clinical trials. We represent the patient voice through our many strategic partnerships, advisory board service and collaborations with industry, government agencies and other nonprofit organizations.

LUNGevity has gained the reputation as the go-to organization for those seeking access to lung cancer patients. Our senior management team is comprised of seasoned professionals with deep experience in the nonprofit sector. LUNGevity's reach is expansive due to participation in our Breathe Deep grassroots events program in 47 cities across the country, our survivor educational conferences, including HOPE Summit, our highly engaged online lung cancer communities, and our affiliation with the nation's leading experts in thoracic oncology.

We are a trusted partner to a wide range of organizations and government agencies, and respected for our understanding of the unmet needs of people affected by lung cancer. LUNGevity actively seeks partnerships with other advocacy organizations, health care providers and institutions, government entities and the corporate world. LUNGevity has established many rewarding relationships with corporations that support the Foundation's work and these relationships are increasingly about collaboration and less transactional in nature. As a nonprofit, we are in the unique position to bring together two important stakeholders, advocacy and industry, to partner on solutions to benefit those affected by lung cancer; these initiatives are proving to be ongoing and effective.

LUNGevity strives to ensure that the research we fund and the education, support, and advocacy programs that we provide are efficient and effective. The 'finish line' for LUNGevity will be when no one dies of lung cancer; until that time comes, the Foundation will continue to provide funding to the most promising research.

LUNGevity staff continually evaluates the success and usability of our educational materials and the effectiveness of our support programs. There is continued growth in the number of participants on our social media groups and Lung Cancer Support Community online message board.

The Foundation's grassroots events (Breathe Deep), internal events (New York Gala and Washington, DC gala) and beneficiary events are also growing – delivering not only increased revenue for research and programming, but also additional advocates and supporters to the Foundation.

The Foundation's unique HOPE Summits also continue to provide in-person education and support to survivors and caregivers. Beginning six years ago with a handful of survivors, this year we hosted over 300 patients and caregivers at the national HOPE Summit, and reached scores more across the country at Regional HOPE Summits.

The feedback we receive from those we reach is critical in determining the effectiveness of our work and fulfillment of the mission – hearing of the meaningful ways in which we impact individual lives is what drives the Foundation forward.

Research: LUNGevity is proud to be the leading lung cancer-focused private funder of research in the United States. Since 2002, LUNGevity has funded 115 scientific research projects at 58 institutions in 23 states. Whether we are supporting early-career scientists or established researchers, we work with top lung cancer experts to identify and fund promising and innovative research into the early detection and treatment of lung cancer. In fact, LUNGevity is the only lung cancer nonprofit with a programmatic focus on developing noninvasive ways to diagnose lung cancer early.
Education and Support: The organization has helped thousands of people affected by lung cancer find the support and information they need to navigate a lung cancer diagnosis. We've matched patients and caregivers with mentors, provided lists of questions for meetings with healthcare providers, convened survivors and caregivers at educational conferences to learn about advances in medicine and ways to live better with lung cancer, and updated our constituents on the latest research and treatment advances by our awardees and other researchers. And by building and mobilizing the lung cancer community through our social media, events and conferences, we are helping to make lung cancer a national priority.

With all the educational and support resources that LUNGevity can provide patients and caregivers, we are working hard to “reach the unreached" when they need help the most. There is anecdotal evidence that most lung cancer patients aren't handed materials with educational and support resources at the time of diagnosis; we know from studies that educated patients have better outcomes. LUNGevity is working with industry and healthcare providers to solve this challenge.

External Reviews

Awards & Accreditations

Charity Navigator

Better Business Bureau Wise Giving Alliance

Financials

LUNGEVITY FOUNDATION

Fiscal year: Jul 01 - Jun 30

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  • Forms 990 for 2017, 2016 and 2015
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Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
A Pro report is also available for this organization for $125.
Click here to see what's included.

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Yes

Organizational Demographics

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

SOURCE: Self-reported by organization

Gender

Race & Ethnicity

Sexual Orientation

This organization reports that it does not collect this information for Board Members and Volunteers.

Disability

This organization reports that it does not collect this information for Board Members, Senior Staff, Full-Time Staff and Part-Time Staff.

Diversity Strategies

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We track retention of staff, board, and volunteers across demographic categories
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We track income levels of staff, senior staff, and board across demographic categories
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We track the age of staff, senior staff, and board
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We track the diversity of vendors (e.g., consultants, professional service firms)
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We have a diversity committee in place
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We have a diversity manager in place
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We have a diversity plan
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We use other methods to support diversity