Alpha Epsilon Omega Foundation

aka Alpha Epsilon Omega Foundation Amour Fund   |   Los Angeles, CA   |  https://www.aeofoundation.org/

Mission

This organization has not provided GuideStar with a mission statement.

Ruling year info

2007

Principal Officer

Zetilyan

Main address

5429 Cahuenga Blvd

Los Angeles, CA 91601 USA

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EIN

36-4611397

NTEE code info

Fund Raising and/or Fund Distribution (H12)

Specifically Named Diseases Research (H80)

Alliance/Advocacy Organizations (G01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

SOURCE: Self-reported by organization

OUR VISION
To find a cure for Congenital Disorders of Glycosylation (CDG)

OUR MISSION
Fund research for developing a cure and treatment for CDG, advocate for CDG screening, raise awareness about CDG and provide assistance to CDG families.

This organization has not yet reported any program information.

Where we work

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Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To find a cure for Congenital Disorders of Glycosylation (CDG)

Fund research for developing a cure and treatment for CDG
Advocate for CDG screening
Raise awareness about CDG
Provide assistance to CDG families

Fund medical research for CDG
Raise awareness of CDG and CDG treatment
Assist in ongoing treatments
Add CDG to newborn screening programs
Provide educational assistance
Provide durable medical equipment to children in need
Assist with school placement and education for CDG children
Provide assistance to disadvantaged kids

Were able to have California recognize May 16th as World CDG Awareness Day
Organized the 2017 NOLA CDG Parent, Patient and Physician Meeting
Funded Glycomine who started the first ever clinical trial for PMM2-CDG (CDG-Ia)
Reached 10,000+ views for "What is CDG" video, which was translated to 9 languages
Regularly collaborate with researchers, patient advocates, and scientists
Funded research on liver involvement in CDG
Funded the development of the PMM2-CDG mouse model
Part of the Frontiers in Congenital Disorders of Glycosylation Consortium (FCDGC)
And that's just a few of so many successes.

Financials

Alpha Epsilon Omega Foundation

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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Alpha Epsilon Omega Foundation

Board of directors
as of 12/23/2021
SOURCE: Self-reported by organization