Alpha Epsilon Omega Foundation
Programs and results
What we aim to solve
OUR VISION
To find a cure for Congenital Disorders of Glycosylation (CDG)
OUR MISSION
Fund research for developing a cure and treatment for CDG, advocate for CDG screening, raise awareness about CDG and provide assistance to CDG families.
This organization has not yet reported any program information.
Where we work
This profile needs more info.
If it is your nonprofit, add geographic service areas to create a map on your profile.
Login and updateExternal reviews

Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
To find a cure for Congenital Disorders of Glycosylation (CDG)
What are the organization's key strategies for making this happen?
Fund research for developing a cure and treatment for CDG
Advocate for CDG screening
Raise awareness about CDG
Provide assistance to CDG families
What are the organization's capabilities for doing this?
Fund medical research for CDG
Raise awareness of CDG and CDG treatment
Assist in ongoing treatments
Add CDG to newborn screening programs
Provide educational assistance
Provide durable medical equipment to children in need
Assist with school placement and education for CDG children
Provide assistance to disadvantaged kids
What have they accomplished so far and what's next?
Were able to have California recognize May 16th as World CDG Awareness Day
Organized the 2017 NOLA CDG Parent, Patient and Physician Meeting
Funded Glycomine who started the first ever clinical trial for PMM2-CDG (CDG-Ia)
Reached 10,000+ views for "What is CDG" video, which was translated to 9 languages
Regularly collaborate with researchers, patient advocates, and scientists
Funded research on liver involvement in CDG
Funded the development of the PMM2-CDG mouse model
Part of the Frontiers in Congenital Disorders of Glycosylation Consortium (FCDGC)
And that's just a few of so many successes.
Financials
Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more
about GuideStar Pro.
Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Alpha Epsilon Omega Foundation
Board of directorsas of 12/23/2021