Medical Research

NEPHCURE KIDNEY INTERNATIONAL

Saving Kidneys. Saving Lives.

King of Prussia, PA

Mission

NephCure Kidney International is the only nonprofit organization committed exclusively to support research seeking the cause of the potentially debilitating kidney diseases, Nephrotic Syndrome and Focal Segmental Glomerulosclerosis (FSGS), improve treatment and find a cure. NephCure is consists of patients and their families and friends, as well as researchers, physicians and other healthcare professionals joining forces to create awareness and generate funding for research.

Ruling Year

2001

CEO

JOSHUA TARNOFF

Main Address

150 S. Warner Road Suite 402

King of Prussia, PA 19406 USA

Keywords

kidney disease, FSGS, Nephrotic Syndrome, MCD, glomerular

EIN

38-3569922

 Number

8177401116

Cause Area (NTEE Code)

Kidney (H44)

Kidney (G44)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2017, 2016 and 2016.
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Social Media

Programs + Results

What we aim to solve New!

Working with all stakeholders to bring treatments for Nephrotic Syndrome and FSGS to the market.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Research Acceleration

Where we workNew!

Our Results

How does this organization measure their results? It's a hard question but an important one. These quantitative program results are self-reported by the organization, illustrating their committment to transparency, learning, and interest in helping the whole sector learn and grow.

SOURCE: Self-reported by organization

Number of patients positively affected by educating clinicians

TOTALS BY YEAR
Population(s) served

No target populations selected

Context notes

These numbers are estimated by how many clinicians attended our educational offerings and their responses to our surveys.

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

NephCure aims to accelerate research into treatments for FSGS and Nephrotic Syndrome.

NephCure is working to identify all NS/FSGS patients and educate them about clinical trials.

NephCure is the only patient advocacy group serving this population. We know the doctors who treat these patients and many of the patients already. We will be launching a new website and marketing plan to find all patients in Q4 2018.

Number of patients in our system will be indicative of our progress.

We have partnered with multiple (upwards of 20) pharmaceutical and biotech companies to help recruit for upcoming trials.

External Reviews

Affiliations & Memberships

National Organization for Rare Disorders - Member

Financials

NEPHCURE KIDNEY INTERNATIONAL

Need more info on this nonprofit?

Need more info on this nonprofit?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2016
A Pro report is also available for this organization for $125.
Click here to view a Sample Report.

Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2016
A Pro report is also available for this organization for $125.
Click here to see what's included.

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

No

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

No

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

No

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

No