The ALS Association Wisconsin Chapter

#vsALS

aka ALS Association, Inc., Wisconsin Chapter   |   Wauwatosa, WI   |  www.alsawi.org

Mission

The ALS Association Wisconsin Chapter mission is to lead the fight to cure & treat ALS thru global, cutting-edge research & to empower people living with ALS in Wisconsin & their families to live fuller lives by providing them with compassionate care & support.

Ruling year info

1990

President

Kathryn Keppel

Main address

3333 N. Mayfair Road Suite 104

Wauwatosa, WI 53222 USA

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Formerly known as

ALS Association Southeast Wisconsin

EIN

39-1600965

NTEE code info

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

Specifically Named Diseases (G80)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Care Services Staff

The Chapter’s Care Services Staff provides services to people living with ALS, their families and their caregivers, helping them learn about the disease, locate resources in the community and cope with the changes occurring in their lives.

Population(s) Served

The Chapter reaches out to people living with ALS, their families and their caregivers through support groups in Milwaukee, Oshkosh, Manitowoc, Wisconsin Rapids, La Crosse and Green Bay. Support group meetings are upbeat gatherings that focus on coping with ALS and its challenges in the best way possible. Speakers discuss topics such as nutrition, insurance, communication devices, legal and financial issues, breathing and swallowing problems with coping strategies. The meetings provide a supportive environment where tears, smiles and laughter are all part of the sharing experience.

Population(s) Served

The ALS Clinic at Froedtert Hospital/Medical College of Wisconsin received certification as a Center of Excellence by The ALS Association National Office in March 2006 and was recertified in 2014 at the highest level of recognition as a Certified Treatment Center of Excellence. The clinic provides neurological diagnostics and imaging, as well as access to the services of a team of highly trained health care professionals specializing in ALS.

Population(s) Served

In early 2019, the Clement J. Zablocki Milwaukee VA Medical Center ALS Clinic received status and recognition from The ALS Association as a Certified Treatment Center of Excellence for meeting the highest national standards of care in the management of ALS. The clinic provides neurological diagnostics and imaging, as well as access to the services of a team of highly trained health care professionals specializing in ALS.

Population(s) Served

The Chapter has an inventory of gently used durable medical equipment and assistive devices for loan at three sites in Wisconsin, thanks to the generous support and partnership of a statewide medical equipment company. The inventory includes: wheelchairs, scooters, canes, walkers, grab bars, toilet seat risers, special utensils and other supplies and devices. The Equipment Loan Program has locations in the Milwaukee area, Appleton and Eau Claire.

Population(s) Served

The Chapter maintains an inventory of augmentative communication devices for loan for individuals with no or limited insurance coverage to obtain such devices. Devices available range from low- to high-tech devices, based on individual need. The Chapter networks with and can provide referrals to Speech Therapists, who are able to assess specific needs with respect to communication and communication aids.

Population(s) Served

The Chapter is pleased to provide transportation and flex grants through the Brian Trinastic Memorial Grant Program. These grants provide some financial relief from costs associated with ALS for individuals living in Wisconsin who are registered Chapter members. Two different reimbursement-type grants are offered under this program. Transportation grants help with the costs of travel and lodging associated with medical visits and Chapter events. Flex grants provide assistance with costs for medical equipment, home modifications, communication devices, ramps and other needs.

Population(s) Served

The Chapter’s ALS Care and Research Symposium has been held annually in the Milwaukee area for 13 years. The Symposium’s speakers include scientists conducting cutting-edge ALS research, Chapter board members, staff and supporters who provide updates on matters such as advocacy, fundraising, and volunteerism, and families who discuss living with ALS, the choices they have made along their journeys and the reasons for their choices. In 2016, the Chapter formally added “Youth Day” to the event, recognizing the important role youth in the home play in providing support for their loved one and our responsibility to in turn educate and support them.

Population(s) Served

Where we work

Financials

The ALS Association Wisconsin Chapter
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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The ALS Association Wisconsin Chapter

Board of directors
as of 4/28/2020
SOURCE: Self-reported by organization
Board chair

Thomas Kettler

Joanne Blaesing

Executive Vice President, Marine Bank

Mary Beth Schlecht

Accounting & Finance Consultant

Laura Hinrichsen

Media Director, STIR Advertising & Integrated Messaging

Kathryn Keppel

Partner, Gimbel, Reilly, Guerin & Brown

Holly Blake

Community Volunteer

Mary Brennan-Druml

Community Volunteer

Ben Becker

Senior Vice President, Securant Bank and Trust

Robb Slak

Owner, Birch Tree Real Estate LLC

Terri McKenzie

Underwriting Consultant, IBU, Inc.

Meg Posorske

Organization Transformation Strategy Leader, Kimberly-Clark Corp.

Manis Mullarkey

US Bank

Thomas Kettler

Community Volunteer (formerly M&I Bank)

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes