Disease, Disorders, Medical Disciplines

TMJ Association, Ltd.

Milwaukee, WI

Mission

The TMJ Association's mission is to improve the quality of health care and lives of everyone affected by Temporomandibular (jaw) Disorders. We envision a future where individuals with Temporomandibular Disorders will receive a timely and accurate diagnosis, followed by high-quality comprehensive medical care, and safe and effective treatment, that is informed by the latest and most rigorous scientific evidence.

Ruling Year

1991

Principal Officer

Ms. Terrie Cowley

Co-founder and Director, Chronic Pain Research Alliance Initiative

Ms. Christin Veasley

Main Address

PO Box 26770

Milwaukee, WI 53226 USA

Keywords

jaw, TMJ, TMJD, pain, women, temporomandibular, chronic pain, implant

EIN

39-1691109

 Number

1432274740

Cause Area (NTEE Code)

Alliance/Advocacy Organizations (G01)

Diseases of Specific Organs (G40)

IRS Filing Requirement

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Social Media

Blog

Programs + Results

What we aim to solve New!

Approximately 12% of the population or 35 million people in the U.S. are affected by from temporomandibular disorders (TMD) at any given time. TMD are a complex and poorly understood set of conditions. Most of the 50+ treatments for TMD lack scientific evidence underlying them. There is no medical or dental specialty of qualified experts trained in the care and treatment of TMD. Irreversible treatments such as surgery and TMJ implants have no long-term clinical trials to study the safety and efficacy of these procedures. Over the years the TMJ Association has heard from hundreds of thousands of people who have been harmed by TMJ treatments.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Educational Outreach

Chronic Pain Research Initiative

TMJ Patient-Led RoundTable

Where we workNew!

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

We envision a future where individuals with Temporomandibular Disorders and chronic overlapping pain conditions will receive a timely and accurate diagnosis, followed by high-quality comprehensive medical care, and safe and effective treatment, that is informed by the latest and most rigorous scientific evidence.

We achieve our mission by advocating for the needs of TMJ patients, promoting awareness of temporomandibular disorders among the public, policy makers, research and health care communities, connecting TMJ patients with those who can provide knowledgeable support and empathetic understanding, encouraging basic and clinical research, periodically convening international scientific meetings, serving as a resource for the collection and dissemination of information on advances of research, treatment, insurance practices, patient's rights, and legal and ethical issues, and communicating with elected officials, government agencies, professional organizations, community leaders and other policy makers concerning TMD issues.

The TMJ Association is led by Terrie Cowley, a TMJ patient and co-founder. Terrie's enduring work and dedication has been instrumental in increasing awareness of the needs of Temporomandibular Disorders (TMD) patients among key groups, including the public, patients, health care providers, policy makers, Congress, the NIH and media. Through her leadership the Association works toward its goal to establish safe and effective means of diagnosis, treatment and ultimately, prevention of TMD. Christin Veasley is the Director and Co-Founder of the TMJ Association's Chronic Pain Research Alliance Initiative. Chris has spent her career advocating for rigorous multidisciplinary pain research. She currently serves as a member of several other collaborative alliances, federal committees/initiatives, and public-private partnerships working to promote pain research, education, treatment and prevention. She is the former Executive Director of the National Vulvodynia Association.

The TMJ Associatoin (TMJA) regularly assess the state of science by reviewing the NIH grant portfolio for Temporomandibular Disorders and reviews the quality of science being funded toward these disorders. Additionally, the TMJA continuously monitors the scientific literature for gaps and advances in research. The TMJA annually surveys its stakeholders for their feedback on their current needs, concerns as well as input on future activities of the TMJA. All of this information helps the TMJA refines its efforts.

The TMJ Association (TMJA) has co-sponsored eight scientific meetings with the National Institutes of Health (NIH) resulting in recommendations that set the direction for future Temporomandibular Disorders (TMD) research and NIH funding opportunities. These meetings have been critical to leading the paradigm shift in research from TMD as solely as a localized orofacial pain condition to a complex multisystem disorder with overlapping comorbidities. The TMJA has had over 20 consecutive years of advocacy efforts which have resulted in report language for TMD and chronic overlapping pain conditions. We will continue our efforts until individuals with TMD and chronic overlapping pain conditions receive timely and accurate diagnosis, followed by high-quality comprehensive medical care, and safe and effective treatment, that is informed by the latest and most rigorous scientific evidence.

External Reviews

Financials

TMJ Association, Ltd.

Fiscal year: Jan 01 - Dec 31

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Operations

The people, governance practices, and partners that make the organization tick.

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FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2016, 2016 and 2015
A Pro report is also available for this organization for $125.
Click here to see what's included.

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Yes

Organizational Demographics

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

SOURCE: Self-reported by organization

Gender

Race & Ethnicity

Sexual Orientation

This organization reports that it does not collect this information for Board Members and Full-Time Staff.

Disability

This organization reports that it does not collect this information for Board Members.

Diversity Strategies

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We track retention of staff, board, and volunteers across demographic categories
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We track income levels of staff, senior staff, and board across demographic categories
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We track the age of staff, senior staff, and board
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We track the diversity of vendors (e.g., consultants, professional service firms)
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We have a diversity committee in place
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We have a diversity manager in place
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We have a diversity plan
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We use other methods to support diversity