TMJ Association, Ltd.
Changing the Face of TMJ
Programs and results
What we aim to solve
Approximately 12% of the population or 35 million people in the U.S. are affected by from temporomandibular disorders (TMD) at any given time. TMD are a complex and poorly understood set of conditions. Most of the 50+ treatments for TMD lack scientific evidence underlying them. There is no medical or dental specialty of qualified experts trained in the care and treatment of TMD. Irreversible treatments such as surgery and TMJ implants have no long-term clinical trials to study the safety and efficacy of these procedures. Over the years the TMJ Association has heard from hundreds of thousands of people who have been harmed by TMJ treatments.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Educational Outreach
The TMJ Association will develop new educational materials to help people understand the impact of TMJ disorders on society which will promote support for more scientific research.
Chronic Pain Research Initiative
Chronic Pain Research Alliance (CPRA) is working collaboratively across all necessary sectors to drive a comprehensive, rigorous and coordinated effort to advance our understanding of the risks, causes, mechanisms and treatments of chronic overlapping pain conditions (COPCs). We seek to translate novel research findings into educational programs for clinicians and patients and drive therapeutic development for COPC treatment (therapies that work across multiple conditions.) As the country’s first and only research-led collaborative advocacy effort dedicated to addressing these specific chronic overlapping pain conditions (COPCs), we work with a variety of invested stakeholders - leaders from the clinical and scientific community, patients, advocacy organizations, industry and federal health research and policy agencies – to improve the lives of millions of pain sufferers worldwide.
TMJ Patient-Led RoundTable
The TMJ Patient-Led RoundTable was established to address the array of issues experienced by TMJ implant patients. The RoundTable is comprised of all key stakeholders as partners. These would include patients, the FDA, the National Institute of Dental and Craniofacial Research (NIDCR), the Agency for Health Care Research and Quality (AHRQ), the American Association of Oral and Maxillofacial Surgeons (AAOMS), TMJ device manufacturers, clinicians, scientists, advocacy organizations, and other experts, all under the auspices of MDEpiNet. The initial goal was to explore ways to improve TMJ implant treatment outcomes. However, in planning meetings it became clear that the scope of the meeting needed to expand to achieve meaningful results.
Where we work
Awards
Best in American Seal 2023
Independant Charities of America
Affiliations & memberships
MDEpiNet 2023
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of new website visitors
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
In 2020 we relaunched our website therefore the traffic reflects the relaunch of our site.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
We envision a future where individuals with Temporomandibular Disorders and chronic overlapping pain conditions will receive a timely and accurate diagnosis, followed by high-quality comprehensive medical care, and safe and effective treatment, that is informed by the latest and most rigorous scientific evidence.
What are the organization's key strategies for making this happen?
We achieve our mission by advocating for the needs of TMJ patients, promoting awareness of temporomandibular disorders among the public, policy makers, research and health care communities, connecting TMJ patients with those who can provide knowledgeable support and empathetic understanding, encouraging basic and clinical research, periodically convening international scientific meetings, serving as a resource for the collection and dissemination of information on advances of research, treatment, insurance practices, patient's rights, and legal and ethical issues, and communicating with elected officials, government agencies, professional organizations, community leaders and other policy makers concerning TMD issues.
What are the organization's capabilities for doing this?
The TMJ Association is led by Terrie Cowley, a TMJ patient and co-founder. Terrie's enduring work and dedication has been instrumental in increasing awareness of the needs of Temporomandibular Disorders (TMD) patients among key groups, including the public, patients, health care providers, policy makers, Congress, the NIH and media. Through her leadership the Association works toward its goal to establish safe and effective means of diagnosis, treatment and ultimately, prevention of TMD.
Christin Veasley is the Director and Co-Founder of the TMJ Association's Chronic Pain Research Alliance Initiative. Chris has spent her career advocating for rigorous multidisciplinary pain research. She currently serves as a member of several other collaborative alliances, federal committees/initiatives, and public-private partnerships working to promote pain research, education, treatment and prevention. She is the former Executive Director of the National Vulvodynia Association.
What have they accomplished so far and what's next?
The TMJ Association (TMJA) has co-sponsored eight scientific meetings with the National Institutes of Health (NIH) resulting in recommendations that set the direction for future Temporomandibular Disorders (TMD) research and NIH funding opportunities. These meetings have been critical to leading the paradigm shift in research from TMD as solely as a localized orofacial pain condition to a complex multisystem disorder with overlapping comorbidities.
The TMJA has had over 30 consecutive years of advocacy efforts which have resulted in report language for TMD and chronic overlapping pain conditions. We will continue our efforts until individuals with TMD and chronic overlapping pain conditions receive timely and accurate diagnosis, followed by high-quality comprehensive medical care, and safe and effective treatment, that is informed by the latest and most rigorous scientific evidence.
Financials
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Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
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Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
TMJ Association, Ltd.
Board of directorsas of 09/13/2023
Terrie Cowley
The TMJ Association, Ltd.
Terrie Cowley
No affiliation
Charles M Sturm
Sturm & Associates
Joan B. Wilentz
No affiliation
Allen Cowley
Medical College of Wisconsin
Christin Veasley
The TMJ Association
Lisa Schmidt
No affiliation
Michelle Reardon
No affiliation
John Kusiak
No affiliation
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Not applicable -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
The organization's leader identifies as:
The organization's co-leader identifies as:
Race & ethnicity
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Disability
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