Health—General & Rehabilitative

Be The Match Foundation

We Save Lives Through Cellular Therapy

Quick Facts

aka Be The Match

Minneapolis, MN

Mission

Be The Match Foundation supports the life-saving mission of Be The Match/National Marrow Donor Program, ensuring that patients diagnosed with blood cancers such as leukemia and other diseases get the stem cell transplant they need for a second chance at life. A transplant offers hope for a cure. We connect patients with their genetically matched stem cell donors and provide comprehensive support throughout the transplant journey, from diagnosis through recovery, and we conduct medical research to improved outcomes and quality of life for transplant patients. Our patients and stem cell donors are primarily in the United States, but many donors and patients served by our mission are based internationally; at locations throughout the globe.

Ruling Year

1992

Executive Director, Be The Match/ Senior Vice President of Philanthropy, National Marrow Donor Program

Joy King

Main Address

500 N 5th St.

Minneapolis, MN 55401 USA

Keywords

Be the Match, bone marrow, transplantation, transplant research, blood cancers, leukemia, patient support, medical education,cellular therpies,

EIN

41-1704734

 Number

1514869618

Cause Area (NTEE Code)

Organ and Tissue Bank (E65)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2017, 2016 and 2015.
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Social Media

Programs + Results

What we aim to solve New!

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Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Be The Match Registry

Patient Assistance Program

Center for International Blood and Marrow Transplant Research (CIBMTR)

Where we workNew!

Our Results

How does this organization measure their results? It's a hard question but an important one. These quantitative program results are self-reported by the organization, illustrating their committment to transparency, learning, and interest in helping the whole sector learn and grow.

SOURCE: Self-reported by organization

Total number of volunteer hours contributed to the organization

TOTALS BY YEAR
Population(s) served

No target populations selected

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

We are a community of donors, volunteers, health care professionals and researchers who deliver cures by helping patients get the life-saving marrow or cord blood transplant they need. Our passion to save lives drives us to help more patients survive each year. We continually strive to improve access to transplant, to remove barriers to treatment and strengthen our ability to meet the growing need.

A patient's likelihood of finding a matching bone marrow donor or cord blood unit on Be The Match Registry® ranges from 66% to 97%, depending on ethnic background. Adding more members who increase the ethnic diversity of the registry increases the variety of tissue types available. This helps more patients find the match they need.

Every dollar we raise helps more patients afford transplant, adds potential marrow donors to the registry and funds our life-saving research. We help patients and their families from diagnosis through survivorship. We understand the unique needs of transplant patients, and offer tailored one-on-one support, resources and a variety of services, including financial assistance.

Be The Match is the hub of a global transplant network, including partner centers throughout the U.S. and registries
in 42 countries. We lead efforts in the world-wide transplant community to improve access to care and strengthen our ability to meet the growing need.

We grow and maintain the world's largest and most diverse donor registry, with 537,000 new potential donors added last year. 50% of new registry members are racially and ethnically diverse, which increases all patients' chances of finding a match. We have 13.5 million registry members and 225,000 umbilical cord blood units on the Be The Match Registry®, and access to 27 million potential donors and 680,000 umbilical cord blood units worldwide.

With our research partners, we improve outcomes and enrich the quality of life for thousands of patients. We have published more than 800 articles in peer-reviewed medical journals since inception; 76 published last year. More than 350 transplant centers participate in our research. We have more than 390,000 patients in our research database, and are conducting more than 250 active studies. We make available for research HLA samples which are in storage – buccal swabs, frozen aliquots and filter paper. Samples from more than 22,000 donor/recipient pairs are available for use in research studies. More than 1 million stored samples are available for retrospective studies to determine transplant outcomes.

Be The Match's research improves matching and makes it easier and faster to find the best donor or cord blood unit.

Our research has also advanced the science that proves that younger donors and improved timing leads to better transplant outcomes.

Be The Match's research has also led to treatment advances that make transplant a better option for patients 51-75 years of age.

Be The Match's ongoing education on advances in transplant research, clinical practice and patient care is offered to transplant doctors throughout the world.

Each year, more young, diverse and available members have joined the Be The Match Registry, we grow the funding available to increase the number of research programs and trials each year and we fulfill the unmet need for patients and their families facing uninsured costs associated with transplant.

The need for young, diverse registry members still exists. We have recruited millions of people to the Be The Match Registry to help bridge the gap for those unable to find a match in their family, but not all people are able to find a match. Research shows that younger donors provide the best outcomes for patients, and we will continue to recruit young, diverse registry members until all patients in need find their match. Patient assistance grants have helped patients and their families with the uninsured costs of transplant, although the need far exceeds available funding. Ongoing research will continue to advance the science of transplant for years to come. We continue to raise awareness of the need for registry members, research initiatives and financial support.

External Reviews

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Financials

Be The Match Foundation

Fiscal year: Oct 01 - Sep 30

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  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
A Pro report is also available for this organization for $125.
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Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2017, 2016 and 2015
A Pro report is also available for this organization for $125.
Click here to see what's included.

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Yes