American Cleft Palate-Craniofacial Association

Committed to Team Care

aka ACPA   |   Chapel Hill, NC   |  www.acpa-cpf.org

Mission

The American Cleft Palate-Craniofacial Association (ACPA) is an international non-profit association of health care professionals and others who treat oral cleft and craniofacial conditions. ACPA has more than 2,500 members representing 30+ disciplines in 60 countries. Its mission is to optimize outcomes for individuals with oral cleft and craniofacial conditions through education, support, research, advocacy and interdisciplinary team care. ACPA Approved Teams are comprised of qualified professionals from medical, surgical, dental, and other health disciplines. ACPA also provides funding for research, advocates for family-centered team care, and awards scholarships to health care professionals and college students who are affected by cleft and craniofacial conditions.

Ruling year info

1956

Executive Director

Wendy-Jo Toyama

Main address

1504 E Franklin St Ste 102

Chapel Hill, NC 27514 USA

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EIN

43-0793521

NTEE code info

Medical Disciplines (G90)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

ACPA Family Services

ACPA and the Cleft Palate Foundation (CPF) merged in 2017 to better achieve their common mission: to optimize outcomes for individuals with oral cleft and craniofacial conditions through education, support, research, advocacy and interdisciplinary team care. Professionals and families are now working more closely together to build cleft and craniofacial awareness and improve care.

After the merger, CPF’s patient and family programs have continued under the ACPA Family Services program. ACPA Family Services is dedicated to providing comprehensive resources and individualized support. Education is the center of ACPA Family Services, and family-centered team care is the goal for every patient.

Population(s) Served

CPA’s Annual Meeting is a general scientific meeting with over 300 presentations. The program includes general and concurrent specialty sessions, poster sessions, panel presentations, and short courses including eye openers, study sessions, and advanced courses. ACPA provides continuing medical, speech, and nursing education through ACCME, ASHA, and ANCC. The meeting also includes networking opportunities such as discipline forums, special interest groups, and social events.

Population(s) Served

ACPA’s mission is to optimize team care for patients, and the ACPA Team Approval process plays a major part in ensuring this mission becomes a reality. Cleft and craniofacial teams from the US and Canada can apply to be recognized as an ACPA Approved Team. This distinction is for teams that demonstrate they meet the Standards for Approval of Cleft Palate and Craniofacial Teams – standards that identify essential characteristics of quality for team composition and functioning. The standards are based off The Parameters for Evaluation and Treatment of Patients with Cleft Lip/Palate or Other Craniofacial Anomalies, which identify recommended practices for the care of patients.

Teams are comprised of experienced and qualified professionals from medical, surgical, dental, and allied health disciplines working in an interdisciplinary and coordinated system.

The purpose and goal of ACPA Team Approval is to ensure that care is provided in a coordinated and consistent manner with the proper sequencing of evaluations and treatments within the framework of the patient’s overall developmental, medical and psychological needs.

The approval process helps teams ensure that they meet all the needs of their patients. ACPA Approved Teams are listed on the website and are the only teams ACPA recommends when working with patients and families.

Although ACPA Team Approval does not extend beyond teams outside of the U.S. and Canada, the website also lists teams from around the world as a resource for patients and families. Find out about international treatment programs providing cleft care to different regions of the world.

Population(s) Served

ACPA strives to enhance and expand educational opportunities for professionals so that they can provide the best possible care to patients. ACPA also offers educational materials about cleft and craniofacial care, specifically for affected individuals and families.

Population(s) Served

The Cleft Palate-Craniofacial Journal, a bi-monthly international journal on craniofacial differences, is the official publication of ACPA.

The journal draws from around the world for its interdisciplinary approach to growth, development, diagnosis, and treatment — the provision of optimal clinical services — in all areas pertaining to craniofacial differences. In addition, it explores and reports on the study and treatment, including experimental and proven surgical procedures, of cleft lip, cleft palate and craniofacial anomalies. It also keeps readers in touch with the latest research in related laboratory sciences.

To access The Cleft Palate-Craniofacial Journal, visit www.cpcjournal.org.

ACPA Members receive a subscription to the Journal as part of their member benefits. View individual subscription prices without ACPA Membership or Join ACPA.

Population(s) Served

Where we work

Financials

American Cleft Palate-Craniofacial Association
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Operations

The people, governance practices, and partners that make the organization tick.

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American Cleft Palate-Craniofacial Association

Board of directors
as of 8/23/2018
SOURCE: Self-reported by organization
Board chair

Amelia Drake, MD

University of North Carolina

Term: 2018 - 2018

Amelia Drake, MD

University of North Carolina

Bernard Costello, DMD, MD, FACS

Eye and Ear Institute UPMC

Patricia Glick, DMD, MS

Barrow Children's Cleft and Craniofacial Center

Carrie Heike, MD, MS

Seattle Children's Hospital

John Girotto, MD, MMA, FAAP, FACS

Helen DeVos Children's Hospital

Patricia Chibarro, RN, MS, CPNP

NYU Langone Medical Center

Scott Daily, PhD

University of Iowa Hospitals and Clinics

Lynn Fox, MA, MEd

UNC Craniofacial Center, School of Dentistry

Oksana Jackson, MD

Childrens Hospital of Philadelphia

Ana Mercado, DMD, PhD

Krstina Wilson, PhD, CCC-SLP

Texas Children's Hospital