Charge Syndrome Foundation, Inc.

A better world for people with CHARGE syndrome.

Buffalo Grove, IL   |  www.chargesyndrome.org

Mission

The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management.

Ruling year info

1993

President

David Wolfe

Main address

318 Half Day Road #305

Buffalo Grove, IL 60089 USA

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EIN

43-1642150

NTEE code info

Single Organization Support (G11)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Charge Syndrome Foundation, Inc.

We sponsor a biennial conference for families and professionals providing many speakers with childcare on site. Our conference has over 1200 attendees.

Population(s) Served

Where we work

Financials

Charge Syndrome Foundation, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Charge Syndrome Foundation, Inc.

Board of directors
as of 5/10/2018
SOURCE: Self-reported by organization
Board chair

David Wolfe

Amrit Mehta

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No