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Charge Syndrome Foundation, Inc.

A better world for people with CHARGE syndrome.

Buffalo Grove, IL   |  www.chargesyndrome.org

Mission

The mission of the CHARGE Syndrome Foundation is to provide support to individuals with CHARGE syndrome and their families; to gather, develop, maintain and distribute information about CHARGE syndrome; and to promote awareness and research regarding its identification, cause and management.

Ruling year info

1993

Executive Director

Lisa Cunningham

Main address

318 Half Day Road #305

Buffalo Grove, IL 60089 USA

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EIN

43-1642150

NTEE code info

Single Organization Support (G11)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Charge Syndrome Foundation, Inc.

We sponsor a biennial conference for families and professionals providing many speakers with childcare on site. Our conference has over 1200 attendees.

Population(s) Served
Families

Where we work

Financials

Charge Syndrome Foundation, Inc.
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

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Charge Syndrome Foundation, Inc.

Board of directors
as of 09/19/2022
SOURCE: Self-reported by organization
Board chair

David Wolfe

Amrit Mehta

Joanne Lent

Neal Stanger

Anne Swenson

Penni Echols

Ben Daigle

Allie Jones

Lily Slavin

Minnie Lambert

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? No
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No

Organizational demographics

SOURCE: Self-reported; last updated 9/19/2022
info Candid has made improvements to the race and ethnicity options.

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or straight
Disability status
Person without a disability

Race & ethnicity

Gender identity

 

Sexual orientation

Disability