Health—General & Rehabilitative

Houston Area Parkinson Society

  • Houston, TX
  • www.hapsonline.org

Mission Statement

The mission of the Houston Area Parkinson Society is to improve the quality of life for those affected by Parkinson's disease through services, education and advocacy.

Main Programs

  1. Program 1
  2. Therapeutic Exercise Programs
  3. Social Services
  4. Educational Programs
  5. Parkinson's Enrichment Program
Service Areas

Self-reported

Texas

HAPS service area includes an eight-county area in metropolitan Houston which has a population estimated to be 5.8 million people. An estimated 21,000 of these people are living with Parkinson's.

ruling year

1975

Executive Director since 2007

Self-reported

Ms. Anne Thobae

Keywords

Self-reported

Parkinson's disease, Houston, TX

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Also Known As

HAPS

EIN

51-0138356

 Number

8498460978

Contact

Cause Area (NTEE Code)

Single Organization Support (E11)

Health (General and Financing) (E80)

Health - General and Rehabilitative N.E.C. (E99)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Overview

Self-reported by organization

Houston Area Parkinson Society (HAPS) is a nonprofit patient support organization that has served the Houston community since 1974 providing programs for people diagnosed with Parkinson's disease (PD).

HAPS offers comprehensive services and innovative programs free of charge to an estimated 24,000 Houstonians with this movement disorder, in addition to making programs available to others affected by the condition such as family members, friends and caregivers. The organization provides over 50,000 service hours annually to help those affected manage the challenges of a chronic, progressive neurodegenerative disease. HAPS remains an independent nonprofit, not a local chapter of a national organization, and is recognized as a model for the quality, breadth and scope of its services that fill critical gaps in care. As the only organization of its kind in the Houston area, HAPS makes significant community impact through its mission to improve the quality of life for individuals affected by Parkinson's disease.

Under the leadership of a Board of Directors, Board of Advisors and Medical Advisory Board—a small dedicated staff and over twenty independent contractor therapists and group leaders trained in multiple disciplines provide client-centered programs that empower families living with Parkinson's through information, tools and activities that support long-term management of the disease. HAPS has grown from the first-known independent support and discussion group for those dealing with Parkinson's disease in the United States to the organization it is today.

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

We provide thirty four weekly free therapy/support groups at seventeen sites in the eight county Houston Metropolitan Area offering a combination of exercise, OT, speech and water therapy and Tai Chi. We have a subsidized home care program and provide transportation via handicapped vans to therapy sites and doctors appointments. We have an annual conference which is free to our members and provide public education about Parkinson's through our monthly newsletter, lending library and speakers bureau. Our emergency program provides money for neurologist visits and interim medication for those without personal financial resources, insurance, Medicare or Medicaid.

Category

Population(s) Served

Budget

Program 2

Therapeutic Exercise Programs

HAPS programs, offered free of charge, totaled approximately 52,000 service hours in 2015. Therapeutic and Enrichment Programs and Support Services: HAPS provided over 180 speech and music therapy, exercise, water exercise, tai chi, yoga, dance, tango, singing and support groups each month with a combined attendance of nearly 1,600 persons monthly in 2015. Expenses: $239,692

Category

Population(s) Served

Disabled, General or Disability Unspecified

Aging/Elderly/Senior Citizens

Budget

Program 3

Social Services

HAPS social workers covering an eight-county region handled 350 intake and referral calls per month, made home visits to assess the needs of each family and conducted private consultations to help address those needs. They facilitated 12 specialized monthly support groups for people with Parkinson's disease (PD): for PD patients; caregivers of PD patients; caregivers of people with PD and related dementia; and for those who have been recently diagnosed. Additionally HAPS hosts a quarterly social gathering for those diagnosed with Parkinson’s under the age of 50 and a quarterly discussion group for those considering DBS surgery. HAPS social workers also managed ongoing care needs of families receiving respite care (respite care is coordinated and subsidized by HAPS based on a sliding scale according to family income), assigned emergency financial aid and arranged transportation totaling 2,800 rides to medical appointments and therapeutic exercise groups in 2015. Expenses: $250,514

Category

Population(s) Served

Disabled, General or Disability Unspecified

Aging/Elderly/Senior Citizens

Budget

Program 4

Educational Programs

Education about Parkinson's Disease: The HAPS monthly newsletter, HAPS Happenings, was sent to 5,000 households and email addresses each month and the organization's annual educational symposium was attended by 300 people. A Summer Lecture Series provided education to another 291 individuals. Expenses: $96,593

Category

Population(s) Served

Budget

Program 5

Parkinson's Enrichment Program

HAPS offers an extended enrichment program called the Parkinson’s Enrichment Program (PEP) with four primary objectives to be met that address the multi-faceted symptoms and issues that accompany a Parkinson’s diagnosis: physical, educational, recreational and social, providing therapeutic benefit on multiple levels. It is restricted to individuals with Parkinson’s disease to facilitate peer-led relationships and sharing, and is designed for those with moderate Parkinson’s disease who are functionally independent. Expenses: $ 60,351

Category

Population(s) Served

Budget

Service Areas

Self-reported

Texas

HAPS service area includes an eight-county area in metropolitan Houston which has a population estimated to be 5.8 million people. An estimated 21,000 of these people are living with Parkinson's.

External Reviews

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Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

Houston Area Parkinson Society
Fiscal year: Jan 01-Dec 31
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

Houston Area Parkinson Society

Leadership

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  • Forms 990 for 2015, 2014 and 2013
  • Board Chair
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Executive Director

Ms. Anne Thobae

Governance

BOARD CHAIR

Mrs. Pamela Skaufel

ExxonMobil

Term: Jan 2017 -

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization

Yes

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?


RESPONSE NOT PROVIDED

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?


RESPONSE NOT PROVIDED

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?


RESPONSE NOT PROVIDED

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?