HEARING LOSS ASSOCIATION OF AMERICA INC

The nation's voice for people with hearing loss.

aka Hearing Loss Association of America (HLAA)   |   Rockville, MD   |  https://hearingloss.org

Mission

The mission of HLAA is to open the world of communication to people with hearing loss by providing information, education, support and advocacy. Founded in 1979, HLAA is the leading organization for people with hearing loss in the United States.

Ruling year info

2001

Executive Director

Ms. Barbara Kelley

Main address

6116 Executive Blvd. Suite 320

Rockville, MD 20852 USA

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Formerly known as

Self Help for Hard of Hearing People, Inc. (SHHH)

EIN

52-1177011

NTEE code info

Health Support Services (E60)

Civil Rights, Social Action, and Advocacy N.E.C. (R99)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

People served by HLAA are consumers with hearing loss who use their residual hearing along with hearing aids and/or cochlear implants to hear. HLAA constituents also use hearing assistive technology to enhance difficult listening environments. Most often, the people who come to HLAA have aged into their hearing loss, often having difficulty performing their job (or finding a job) participating fully in their communities, etc. Less than 20% of those people with hearing loss who could benefit from hearing aids actually have them. Reasons for not seeking treatment include the stigma associated with hearing loss, lack of insurance coverage for hearing health and the high cost of hearing aids. HLAA encourages people to get their hearing checked annually and to seek treatment.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

HLAA Annual Convention

Held annually, the HLAA convention is the largest communication accessible convention for people with hearing loss. Highlights inclue more than 50 workshops and demo presentations, exhibit hall with latest technology for people with hearing loss, a Research Symposium, social events, and more.

Population(s) Served
People with hearing impairments
Adults

HLAA's National Walk4Hearing takes place in cities across the country. The Walks are managed by the national office and led by local volunteer chapter members to raise public awareness and reduce the stigma of hearing loss.

Population(s) Served
People with hearing impairments
Families

Published bimonthly, Hearing Life magazine contains articles on a wide-range of topics related to hearing loss including: hearing assistive technology, personal experiences in living with hearing loss, hearing loss coping strategies and the latest news concerning the hearing loss community. The magazine is available to members, libraries and health care professionals. Hearing Life is also available online at www.hearingloss.org.

Population(s) Served
People with hearing impairments
Adults

HLAA has a national network of 200 chapters and 14 state organizations across the country that provide support, information, and advocacy in local communties for people with hearing loss.

Population(s) Served
People with hearing impairments

N-CHATT, the Network of Consumer Hearing Assistive Technology Trainers, is a volunteer, consumer train-the-trainer program. The program’s goal is to build a network of consumer trainers with the knowledge and skills necessary to train others impacted by hearing loss. Trainers will assist others in the successful integration of hearing assistive technology to support individual hearing and communication needs at home, work, school, and the community. Please see the N-CHATT Training page for more details.

Population(s) Served
Adults
People with hearing impairments

A program to educate HLAA chapters and state organizations about the many benefits of hearing loops in public and private venues, and to support efforts to loop more venues in communities across the country.

Population(s) Served
People with hearing impairments

Presented monthly, the live educational webinars are captioned and recorded for playback.

Population(s) Served
Adults
People with hearing impairments

Hearing Loss Association of American has been advocating for people with hearing loss since 1979. Whether it was the Hearing Aid Compatibility Act of 1988, the Television Decoder Circuitry Act of 1990, the Americans with Disabilities Act of 1990 as well as the ADA Amendments Act of 2008, the 21st Century Video and Communications Act of 2010, or the Over the Counter Hearing Aid Act of 2017, HLAA has been in the vanguard of advocacy for people with hearing loss.

Over the Counter Hearing Aid Legislation: Success! A new law, signed August 2017, will allow greater innovation and less expensive hearing devices with the creation of a new category of FDA-approved hearing devices sold over the counter to adults with mild to moderate hearing loss.

Hearing Aid Compatible Cell Phones: Working with the Federal Communications Commission (FCC) and Industry to ensure there are more Hearing Aid Compatible cell phones available to consumers.

Telecommunications Relay: Providing input to the FCC and industry on the need for access to captioned telephones.

Captioning of Entertainment on Airlines: Participating in the ACCESS Committee supported by U.S. Department of Transportation, advocating for captioning of entertainment on airlines and cabin announcements.
Advising the Federal Communications Commission (FCC): HLAA serves as co-chair of the FCC’s Disability Advisory Committee.

Medicare and hearing aids: Supporting federal legislation that would provide Medicare coverage of hearing aids.
Transportation: Participating in the Access Board’s work to make rail vehicles more accessible.

Employment: providing one-to-one guidance to employees experiencing discrimination in the workplace.
Emergencies: supporting Text to 9-1-1, Real Time Text, and participating in the 9-1-1 Location Accuracy Advisory Group.

Population(s) Served
People with hearing impairments
Adults

Where we work

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Average online donation

This metric is no longer tracked.
Totals By Year
Population(s) Served

Families, People with hearing impairments, Adults

Related Program

Advocacy

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This represents online donations for general use. These donations fund the mission of opening the world of communication through education, information, support and advocacy.

Number of community events or trainings held and attendance

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, People with hearing impairments

Related Program

National Consumer Hearing Assistive Technology Training (N-CHATT)

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

N-CHATT trainers conduct educational sessions demonstrating hearing assistive technology for people with hearing loss in their communities. The role of the trainers are to inform, support & train.

Number of individuals attending community events or trainings

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Families, People with hearing impairments

Related Program

National Walk4Hearing

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Walk4Hearing is held in cities across the country. These events include a call to action and hearing screenings. The Walks create awareness and fund local and national programs.

Number of invitations for advocates to speak as experts

This metric is no longer tracked.
Totals By Year
Population(s) Served

Adults, Veterans, People with hearing impairments

Related Program

Chapters and State Organizations

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

People at the national and local levels about communication access at national conferences and at local/ state events. HLAA has chapters who advocate/educate.

Number of list subscribers

This metric is no longer tracked.
Totals By Year
Population(s) Served

People with hearing impairments, Adults, Veterans

Related Program

Hearing Life

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

This is HLAA's reach through digital and print media.

Number of public events held to further mission

This metric is no longer tracked.
Totals By Year
Type of Metric

Output - describing our activities and reach

Direction of Success

Holding steady

Context Notes

2020 Walk4Hearing (20) 2020 Experience HLAA - Convention (1)

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

HLAA's mission is to open the world of communication to people with hearing loss by providing information, education, support and advocacy.

HLAA represents the 48 million (20%) Americans with hearing loss, making it the third largest public health issue after heart disease and arthritis. However, fewer than 20% of those with hearing loss, who require intervention and treatment, seek help for their condition. HLAA helps consumers with hearing loss to live successfully with hearing loss.

Untreated hearing loss has been shown to impact a person's overall health and quality of life, sometimes leading to social isolation, depression and even dementia. People with hearing loss face significant barriers in seeking to access the central elements of mainstream American culture and earn less on average than the rest of the American workforce.

HLAA works to eradicate the stigma associated with hearing loss and raise public awareness about the need for prevention, treatment, and regular hearing screenings. HLAA works to make hearing assistive technology accessible and affordable for all Americans with hearing loss.

Education: Our primary purpose is to educate ourselves, our families, friends, co-workers, teachers, hearing health care providers, industry, government and others about hearing loss. HLAA seeks to help people with hearing loss become informed and educated consumers on options that are available and to make the best decisions on how to live well with hearing loss.

Advocacy: HLAA is the nation's leading consumer voice in improving communication access for people with hearing loss. HLAA advocates for communication access in public and private venues. HLAA promotes emerging and assistive technologies, medical research and legislation that will alleviate the effects of hearing loss. HLAA pushes for research on understanding the causes of hearing loss and for the development of new treatments.

Self-Help: HLAA promotes self-confidence; empowers individuals with skills to improve their lives; and provides an opportunity for affiliation among people with hearing loss, their friends, families and professionals. We work to develop options for ourselves and open doors for others and provide assistance in setting up local support groups.

1 – Advocacy
Our advocacy focuses on gaining access to mainstream American culture for people with hearing loss in such areas as technology, telecommunications, hearing health care, employment, education and leadership, to name a few. HLAA continues to build on this legacy of success by: supporting expanded options to access hearing health care; promoting affordable hearing technologies; advocating for access to mainstream consumer technologies in the marketplace. HLAA will pursue opportunities for collaboration on local, regional and national advocacy efforts.

2 – Collaboration with the Grassroots Base
HLAA is working to build a more robust collaborative network among the national headquarters, chapters, state organizations and other elements of our base of support which is critical to the long-term health of HLAA. This requires a vibrant multi-directional and ongoing dialogue so that HLAA leverages all our strength in our undertakings.

3 – Services to Constituents
HLAA offers a wide array of services to our constituents through our local, state, regional and national arms including personal support and training in self-advocacy. Informational resources, including those available and downloadable from our website, cover a wide breadth of topics.

4 – Growing the Grassroots Base of Support
HLAA seeks to expand its reach and build its effectiveness to attract a larger number of people with hearing loss to our cause by leveraging our contacts in the hearing health community and related organizations.



B. Organizational Strength

1 – Finances
HLAA must grow and diversify its revenue base while positioning ourselves to leverage unanticipated opportunities. HLAA continues to be fiscally responsible and prudent in the utilization of resources and strive to maintain 'added value' for our donors, members and constituents.

2 – Organization and Leadership
HLAA is a network of chapters and state organizations along with a substantial number of donors, supporters and volunteers across the country. To strengthen our network HLAA seeks to create a better integrated network, collaborating more effectively and learning from the many successes we have achieved across the country and grow our base of support, recognizing that there is power in numbers, which will enhance our ability to influence public policy and engage with the private sector.

3 – Name Recognition and Branding
HLAA seeks to enhance our name recognition in the marketplace and elevate and protect the brand. We seek to work with ways to increase our visibility across the country; work closely with our chapters, state organizations and local Walk4Hearing volunteers to foster consistent use of our branding elements to assure that the image of HLAA is consistent, effective and relevant.

HLAA has an active board of trustees and an experienced staff at the national office, comprised of both people with hearing loss and those with hearing, who are dedicated to the success of the mission of the organization. The grassroots network is comprised of volunteers and supporters in 140 local chapters and state organizations that work in their communities and states on behalf of people with hearing loss and provide information, education, advocacy and support.

HLAA's signature public awareness program is the Walk4Hearing which takes place in 19 cities across the country. Since the program began in 2006, more than 107,000 walkers have raised over $16 million to advance the cause for people with hearing loss. The Walk4Hearing is the only nationwide event bringing attention to hearing loss and promoting the importance of hearing health. The Walks brings together a diverse group of participants, including families and hearing health professionals, and offers local nonprofits an opportunity to partner with HLAA to raise funds for their organization to provide services for people with hearing loss. The number of Walks, the amount of funds raised at each Walk, the support from national corporate sponsorships, and public recognition of the Walks has potential for continued growth.

HLAA's Annual Convention brings together attendees and participants from across the country. The educational programs include consumer, chapter and advocacy workshops; the highly regarded, Research Symposium; along with networking and social events, that bring together people with hearing loss, their families, hearing health care professionals and as well as manufacturers of hearing assistive, emerging and consumer technologies. The number of Convention attendees has grown to between 1,200-1,500 participants attending each year with potential for continued growth. A small, but growing number of young adults are also choosing to attend. The number of corporate sponsorships and tradeshow exhibitors has increased and has the potential for continued growth.

HLAA's successful national, state and local advocacy efforts in public policy and before regulatory agencies continue to impact the lives of millions of Americans with hearing loss. HLAA's advocacy, particularly at the national level, has led to significant advances in communication access, public policy, research, public awareness and improved service delivery related to hearing loss.

HLAA has a long history of working collaboratively with like-minded groups, organizations and individuals who share our mission and goals. HLAA continues to build new partnerships and others continue to seek to partner with HLAA.

HLAA's financial position remains sound and diversified revenue continues to grow through individual and corporate donations, sponsorships, foundation and corporate grants, membership planned gifts and advertising.

Since its founding in 1979, HLAA has grown from a small grassroots movement to a nationally recognized organization. In 2016, HLAA revised its Statement of Strategic Intent, identifying HLAA's new goals. The Statement is the result of a year-long organizational review, with input from many stakeholders, of the organization's strengths and weaknesses. The Statement sets forth a plan to address the current and future needs of the organization that will best meet the mission of the organization and the needs of the 48 million Americas with hearing loss.

1-HLAA successfully advocated for mandated closed captioning and hearing assistive technology in public movie theaters.
2-HLAA successfully advocated for carriers to agree to deliver text messages to 911 public safety answering points.
3-HLAA renewed a grant from a private foundation to support a national consumer advocacy and training program on hearing loops for HLAA chapters.
4-HLAA was recommended by international columnist Dear Abby.
5-HLAA is conducting the Walk4Hearing program in 21 communities across the country to raise funds and increase public awareness.
6-HLAA produced its HLAA2019 Convention in Rochester, N.Y. − offering a well-regarded Research Symposium, educational workshops, networking and social opportunities and scholarships for Veterans with hearing loss to attend.
7-HLAA is offering more technical support to build chapter capacity.
8-HLAA offers a free Hearing Life e-News twice monthly.
9-HLAA continues to bring the latest news and information via HLAA's website hearingloss.org
10-HLAA has social media presence on Facebook, Twitter and Instagram
11-HLAA publishes Hearing Life magazine four times a year and makes an abbreviated version available for free on its website.
12-HLAA is enhancing national, state and local advocacy efforts.
13-HLAA is partnering with more organizations that share our mission.
14-HLAA received GuideStar's Gold Star Exchange Participant status for organizational transparency.
15-HLAA approved and published HLAA's Charitable Gift Acceptance Policies and Guidelines on our website hearingloss.org
16-HLAA increased our foundation and corporate grants.
17-HLAA offers free webinars for people with hearing loss on timely topics.
18-HLAA is recognized by BBB Wise Giving Alliance (give.org)
19-HLAA is recognized as a 2020 Top-Rated Nonprofit by GreatNonProfits.org
20-HLAA continues to participate in the Combined Federal Campaign
21-HLAA is recognized as a Best in America - Charities Seal of Excellence
22-HLAA is rated 4 stars by Charity Navigator.
23-HLAA was the only consumer organization to sponsor the National Academies of Sciences study,
Hearing Health Care for Adults: Priorities for Improving Access and Affordability

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization collecting feedback from the people you serve?

    Electronic surveys (by email, tablet, etc.), Focus groups or interviews (by phone or in person), Community meetings/Town halls,

  • How is your organization using feedback from the people you serve?

    To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve,

  • What significant change resulted from feedback?

    We surveyed our HLAA Convention attendees. One major change was the format of the annual Research Symposium. We strcutured the program to include shorter scientific talks then have breakout sessions with the scientists. We also recorded the plenary session and put it on our website so a wider audience could benefit.

  • With whom is the organization sharing feedback?

    The people we serve, Our staff, Our board, Our community partners,

  • Which of the following feedback practices does your organization routinely carry out?

  • What challenges does the organization face when collecting feedback?

    We don’t have the right technology to collect and aggregate feedback efficiently, Staff find it hard to prioritize feedback collection and review due to lack of time,

Financials

HEARING LOSS ASSOCIATION OF AMERICA INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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Connect with nonprofit leaders

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Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

HEARING LOSS ASSOCIATION OF AMERICA INC

Board of directors
as of 3/10/2021
SOURCE: Self-reported by organization
Board chair

Kevin Franck, Ph.D.

Michael Stone

Donatelli Development

Donald Doherty

Retired - Marines

Jan Blustein, M.D., Ph.D.

Robert F. Wagner Graduate School of Public Service, New York University

Shari Eberts

Peter Fackler

Kelly Tremblay

Dept. of Speech and Hearing Science Eagleson Hall, University of Washington

Cheri Perazzoli

Retired

Michael Meyer

Larry Guterman

Zina Jawadi

Elaine McCaffrey

Esq.

Carrie Nieman

M.D.

Roxana Rotundo

Kevin Franck

Ph.D.

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 3/5/2021,

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

 

Sexual orientation

No data

Disability

We do not display disability information for organizations with fewer than 15 staff.

Equity strategies

Last updated: 07/08/2020

Policies and practices developed in partnership with Equity in the Center, a project that works to shift mindsets, practices, and systems within the social sector to increase racial equity. Learn more

Data
  • We review compensation data across the organization (and by staff levels) to identify disparities by race.
  • We ask team members to identify racial disparities in their programs and / or portfolios.
  • We employ non-traditional ways of gathering feedback on programs and trainings, which may include interviews, roundtables, and external reviews with/by community stakeholders.
  • We have long-term strategic plans and measurable goals for creating a culture such that one’s race identity has no influence on how they fare within the organization.
Policies and processes
  • We use a vetting process to identify vendors and partners that share our commitment to race equity.
  • We have a promotion process that anticipates and mitigates implicit and explicit biases about people of color serving in leadership positions.
  • We seek individuals from various race backgrounds for board and executive director/CEO positions within our organization.
  • We have community representation at the board level, either on the board itself or through a community advisory board.
  • We help senior leadership understand how to be inclusive leaders with learning approaches that emphasize reflection, iteration, and adaptability.
  • We engage everyone, from the board to staff levels of the organization, in race equity work and ensure that individuals understand their roles in creating culture such that one’s race identity has no influence on how they fare within the organization.