Disease, Disorders, Medical Disciplines

International Hyperhidrosis Society

Know Sweat

aka IHhS

Pipersville, PA

Mission

It is our mission to promote hyperhidrosis research, educate physicians in optimal diagnosis and care, raise awareness about the condition's emotional and economic impacts, and advocate for patient access to effective treatments. As part of our mission, we continuously build programs that connect those who suffer from hyperhidrosis with those who provide care, while increasing public understanding of this debilitating medical condition.

Ruling Year

2004

Executive Director

Lisa J Pieretti

President

Professor Dee Anna Glaser M.D.

Main Address

348 Cafferty Road

Pipersville, PA 18947 USA

Keywords

children's diseases, genetic disorders, skin conditions, dermatology, hyperhidrosis, excessive sweating, medical conditions, diseases, dermatology, sweat, perspire

EIN

56-2361221

 Number

7395750403

Cause Area (NTEE Code)

Alliance/Advocacy Organizations (G01)

Professional Societies & Associations (E03)

Birth Defects, Genetic Diseases Research (H20)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Programs + Results

What we aim to solve New!

Approximately 5% of the population worldwide, or 367 million people, suffer from excessive, uncontrollable sweating -- a medical condition called hyperhidrosis. Too many people suffer in silence, not realizing that their sweating is a treatable medical condition. Sufferers who do seek treatment do not always receive prompt diagnosis or care due to lack of physician awareness about hyperhidrosis, and the range of treatment options available. As a result, many are forced to develop compensating behaviors such as avoiding handshakes or certain social situations; or carrying a towel around with them. They report that their sweating has a profound effect on their emotions and confidence, which can negatively impact nearly every part of their lives-- social, professional, and at home. We want everyone to know that excessive sweating is a medical condition, we strive to improve the quality of life for those suffering from it, and we work to improve available treatment options as well.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

SweatSolutions

SweatHelp.org Official Web Site

Where we workNew!

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

We strive to improve the quality of life for the nearly 5% of the population—367 million people--with hyperhidrosis by helping to reduce the anxiety and social stigma associated with excessive sweating while also providing reliable, objective treatment and symptom management information. We want hyperhidrosis sufferers to recognize that their sweating is a medical condition so that they can discuss it with a knowledgeable healthcare provider. We also want to increase the number of healthcare providers who are aware of hyperhidrosis as a medical condition, and understand the most current treatment options. Improving the number and effectiveness of available treatment options and ensuring that treatments are affordable and accessible are other key goals. Finally, we strive to raise awareness of the emotional, practical, and economic impacts of hyperhidrosis so that, perhaps, these pervasive, long-standing secondary effects of the medical condition can be mitigated.

Our strategies include increasing public awareness about hyperhidrosis, educating healthcare providers about hyperhidrosis diagnosis and management, advocating for improved patient access to effective treatments, and promoting hyperhidrosis research among healthcare providers, scientists, and patients alike. Communicating reliable, up-to-date, useful information in an approachable manner via a variety of mediums – from low- to high-tech - is critical to helping us to meet our goals.

We increase public understanding of hyperhidrosis via our continuously evolving, expertly written and reviewed website. This website is visited by millions globally, and includes: (1) real patient stories and a powerful testimonial video, (2) a database of physicians familiar with hyperhidrosis, (3) in-depth insurance tools for patients and their physicians, and (4) descriptions of treatment options and sweat-managing products that can alleviate the impact of excessive sweating. We dispatch news blogs to over 50,000 subscribers, and answer emails to provide specific information and support. Our social media accounts enable sufferers from all over the world to connect. We facilitate physician education by holding medical education seminars and housing a plethora of on-line educational resources. We actively promote hyperhidrosis research by disseminating information about clinical trials, and keeping an up-to-date library of peer-reviewed, evidence-based research papers.

We will know that our organization is making progress by the number of visitors to our website; the number of phone calls and emails we receive for help and support; the number of physicians registered on our physician finder database and attending annual training meetings; the number of clinical trials underway; the increasing number of treatment options available; improvements made in insurance coverage of hyperhidrosis treatments; and the number of evidence-based sweat-related stories appearing in the general media.

Since 2003, we have developed: a content-rich website for both patients and physicians, another website dedicated entirely to teens with hyperhidrosis, a news blog with 50,000 subscribers, a searchable physician database, accredited medical education seminars attended by hundreds of healthcare providers, publications in peer-reviewed scientific journals, a “Know Sweat In School" program that brought information on excessive sweating to 10,000 school children and their school nurses, a powerful hyperhidrosis video filled with patient testimonials, and social media platforms so patients can make their voices heard. But there is more work to be done. We must increase public and healthcare provider awareness of hyperhidrosis and its serious quality-of-life impacts. We must also motivate medical researchers and industry professionals to develop more options for treatment. We aim to improve insurance coverage of treatments, and continue to reduce the stigma associated with this condition.

External Reviews

Affiliations & Memberships

National Organization for Rare Disorders - Member

Photos

Financials

International Hyperhidrosis Society

Fiscal year: Jan 01 - Dec 31

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Operations

The people, governance practices, and partners that make the organization tick.

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Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable