Disease, Disorders, Medical Disciplines

Churg Strauss Syndrome Association Inc

aka CSSA

Montgomery, MA

This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.

This organization's exempt status was automatically revoked by the IRS for failure to file a Form 990, 990-EZ, 990-N, or 990-PF for 3 consecutive years. Further investigation and due diligence are warranted.

Mission

The Churg Strauss Syndrome Association is dedicated to the identification, treatment and cure of Churg Strauss Syndrome, a very rare autoimmune disease. Because Churg Strauss Syndrome is so rare and because it manifests itself in many ways, diagnosis and treatment can be problematic and confusing.
The CSSA is operated and supported by volunteer efforts and is a network of patients, friends, and medical professionals. Our mission is threefold:
1) To offer support and guidance to those afflicted with this rare disease through patient networking.
2) To provide education and promote public awareness through seminars and workshops, publicity campaigns and literature.
3) To promote and support research to improve treatment and ultimately find a cure for Churg Strauss Syndrome as well as related vasculitic diseases.

Ruling Year

2005

President

Jane Dion

Secretary

Lynn Corwin

Main Address

82 Pine Ridge Rd

Montgomery, MA 01085 USA

Keywords

Vasculitis, Churg Strauss, rare disease, autoimmune, EGPA, eosinophilic granulomatosis with polyangiitis

EIN

56-2490671

 Number

2792510226

Cause Area (NTEE Code)

Alliance/Advocacy Organizations (G01)

IRS Filing Requirement

This organization is required to file an IRS Form 990-N.

Programs + Results

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Our programs

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SOURCE: Self-reported by organization

Patient Support

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External Reviews

Financials

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Operations

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Board Leadership Practices

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SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable