Health—General & Rehabilitative

Craniosynostosis & Parents Support

Massapequa, NY

This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.

Mission

Craniosynostosis and Positional Plagiocephaly Support, Inc. is an international nonprofit organization established in 1999 and headquartered in Massapequa, NY. We are dedicated to helping families find support and information to help deal with craniosynostosis and positional plagiocephaly. Our goals include raising awareness with the general public, doctors, health care organizations, parent's and loved ones. Offering support and information to families facing a diagnosis of these conditions so that they can prepare themselves and be an informed advocate for their child.  Most importantly so that no family feels alone during this uncertain time.

Ruling Year

2000

Principal Officer

Mrs. Amy Galm

Main Address

114 N Elm Street

Massapequa, NY 11758

Keywords

Children, health, surgery, birth defect, awareness, care package, inform, doctors, general public

EIN

57-1091027

 Number

2313750704

Cause Area (NTEE Code)

Fund Raising and/or Fund Distribution (E12)

Research Institutes and/or Public Policy Analysis (B05)

IRS Filing Requirement

This organization is required to file an IRS Form 990-N.

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Programs + Results

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Our programs

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SOURCE: Self-reported by organization

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External Reviews

Financials

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Operations

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Board Leadership Practices

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SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Not Applicable

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Not Applicable

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Not Applicable

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Not Applicable

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Not Applicable