Craniosynostosis & Parents Support

Massapequa, NY   |  http://www.CAPPSkids.org
This organization has not appeared on the IRS Business Master File in a number of months. It may have merged with another organization or ceased operations.

Mission

Craniosynostosis and Positional Plagiocephaly Support, Inc. is an international nonprofit organization established in 1999 and headquartered in Massapequa, NY. We are dedicated to helping families find support and information to help deal with craniosynostosis and positional plagiocephaly. Our goals include raising awareness with the general public, doctors, health care organizations, parent's and loved ones. Offering support and information to families facing a diagnosis of these conditions so that they can prepare themselves and be an informed advocate for their child.  Most importantly so that no family feels alone during this uncertain time.

Ruling year info

2000

Principal Officer

Mrs. Amy Galm

Main address

114 N Elm Street

Massapequa, NY 11758

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EIN

57-1091027

NTEE code info

Fund Raising and/or Fund Distribution (E12)

Research Institutes and/or Public Policy Analysis (B05)

IRS filing requirement

This organization is required to file an IRS Form 990-N.

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Communication

Blog

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Craniosynostosis and Positional Plagiocephaly Support's programs include, preparing care packages for families to have during their hospital stay, these packages include many items that the parent and child need during their hospital recovery. We have a sponsor a family program where one member is matched up with a new member or a member preparing for surgery and they are there to help the new member with any questions they have or any one on one support they need. We have our awareness project to pass out information materials on craniosynostosis and positional plagiocephaly to child issue conferences, baby fairs and health care organizations to get craniosynostosis and positional plagiocephaly diagnosed earlier then it is being diagnosed now.

Population(s) Served

Where we work

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Financials

Craniosynostosis & Parents Support
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Operations

The people, governance practices, and partners that make the organization tick.

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Craniosynostosis & Parents Support

Board of directors
as of 6/5/2016
SOURCE: Self-reported by organization
Board chair

Amy Galm

no affiliation

Amy Galm President

no affiliation