ANGELMAN SYNDROME FOUNDATION INC

aka ASF   |   Aurora, IL   |  www.angelman.org

Mission

Our mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, advocacy,  and support for individuals with Angelman Syndrome, their families, and other concerned parties.

Ruling year info

2001

Principal Officer

Eileen Braun

Main address

75 Executive Drive Suite 327

Aurora, IL 60504 USA

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EIN

59-3092842

NTEE code info

Health (General and Financing) (E80)

Birth Defects (G20)

Single Organization Support (H11)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Research

Largest programmatic expenditure for ASF. Focus is to the find the cause of AS, regulatory affects of UBE3A, and to effectively treat and cure Angelman syndrome.

Population(s) Served

Provide daily and continual 1:1 family support to individuals with AS and their families through information, networking, ASF Resource Team, phone and electronic support.

Population(s) Served
Population(s) Served

Where we work

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Financials

ANGELMAN SYNDROME FOUNDATION INC
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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ANGELMAN SYNDROME FOUNDATION INC

Board of directors
as of 6/13/2019
SOURCE: Self-reported by organization
Board chair

Timothy McCarty

No Affiliation

Term: July 2009 - July 2013

Mitchell Caspert Secretary

No Affiliation

Robert Schiller Director

No Affiliation

Susan Ravellette Director

No Affiliation

Timothy McCarty President

No Affiliation

John Sugden Director

No Affiliation

Frank McCullough Treasurer

No Affiliation

Greg Dohrmann Vice President

No Affiliation

Steve Katz Director

No Affiliation

Mary Wagstaff Director

No Affiliation

Charles Williams Director

No Affiliation

Jim Dalton Director

No Affiliation

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes