Ellie's Army Foundation
Be a warrior, Join Ellie's Army
Programs and results
What we aim to solve
Many families of children or young adults that are living with life-threatening illnesses are faced with enormous medical bills. Because of this, they experience tremendous financial pressures. Many are unable to pay these medical bills and also afford to pay for their daily living expenses (i.e. rent/mortgage, electric, automobile payments, food etc.). Ellie's Army Foundation's mission is to help these families with financial assistance so that all they need to focus on is helping their child survive.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Medical Assistance
We help pay for medical bills and insurance co-pays, therapies (i.e. respiratory, physical, occupational), nutritional supplements, and additional medical costs associated with a child or young adult’s specific needs.
Emergency Expenses
We also help pay for mortgage, rent and utility bills in an effort to alleviate financial stress for families and provide a safe place for critically-ill children and young adults. Other items we cover include food, clothing, fund relocation and individual emergency expenses as they arise.
Transplants
In order for many patients to be accepted into a transplant program, they are required to show proof that they have thousands of dollars in liquid assets. We provide these funds in order for children to have access to these life-saving transplants.
Ellie's Fund at Duke
The purpose of Ellie’s Fund is to provide financial assistance to lung transplant recipients at Duke Univeristy Medical Center.
Where we work
External reviews

Our results
How does this organization measure their results? It's a hard question but an important one.
Number of fiscal sponsor applicants sponsored
This metric is no longer tracked.Totals By Year
Related Program
Emergency Expenses
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Our goal is to alleviate the financial burdens and stressors that families of children and young adults with life-threatening illnesses are experiencing. By providing them with much needed financial assistance, these families are able to then focus on their child's fight to survive (rather than how they are going to pay their next bill).
What are the organization's key strategies for making this happen?
Ellie's Army Foundation has several strategies that are in place to help address the myriad of problems that children, young adults, and their families face due to the diagnosis of life-threatening illness. Through social media, contact with doctors, nurses, hospital social workers, and word of mouth, we reach out to families dealing with financial insecurity. We then work with each applicant on an individual basis to help ascertain how to best meet their needs. We provide assistance with medical bills, Insurance co-pays, and other medical costs associated with each child's or young adult's specific needs. We help pay for mortgage, rent and utility bills, food, clothing, and emergency expenses. In an effort to address the specific population of cystic fibrosis patients that have had a transplant and are facing financial issues, we have set up Ellie's Fund at Duke University Medical center.
What are the organization's capabilities for doing this?
Ellie's Army Foundation has a completely voluntary staff, led by the Founder who was a parent of a child with a life-threatening illness. This dedicated staff has an understanding and depth of knowledge regarding the issues faced by these families. Historically, we have taken a "hands-on approach" with each individual applicant and therefore have the ability to identify the problem and form an action plan that is most helpful in each case. Through a large network of doctors, nurses, social workers, and social media support groups and awareness groups, we are able to reach out to these families. Our fundraising efforts have helped us meet the needs of the families that have applied for assistance. We look forward to growing our network and funds so that we can continue to help more of these families in need.
What have they accomplished so far and what's next?
Ellie's Army has been able to expand its original mission from an organization that only offered assistance to families of children afflicted with cystic fibrosis, to now offering assistance to all families of children and young adults with any life-threatening illness. We have expanded our program at Duke University Hospital (Ellie's Fund) to assist more families there dealing with needs of assistance, related to double lung transplants. As we continue to help many families in need, we are receiving phenomenal feedback on what we are doing for them. Our ability to tell the individual stories through the family's testimonies helps raise awareness and funding. These stories are critical in our success in attracting new donors, in that they are able to see, directly, where their donations are being put to use.
Financials
Unlock nonprofit financial insights that will help you make more informed decisions. Try our monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights?
Learn more
about GuideStar Pro.
Operations
The people, governance practices, and partners that make the organization tick.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Connect with nonprofit leaders
SubscribeBuild relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.
- Analyze a variety of pre-calculated financial metrics
- Access beautifully interactive analysis and comparison tools
- Compare nonprofit financials to similar organizations
Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.
Ellie's Army Foundation
Board of directorsas of 9/18/2020
Stacey Levy
Stacey Levy
STACEY LEVY
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
-
Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? No -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? No -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? No -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? No -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? No