Susan G. Komen Breast Cancer Foundation, Inc., National Office HQ

Where the end of breast cancer begins.

aka Susan G. Komen   |   Dallas, TX   |  https://ww5.komen.org/

Mission

Susan G. Komen is the world’s largest breast cancer organization, funding more breast cancer research since our inception in 1982 than any other nonprofit outside of the federal government while providing real-time help to those facing the disease. Komen has set a Bold Goal to reduce the current number of breast cancer deaths by 50% in the U.S. by 2026. Komen has funded more than $988 million in research and provided more than $2.2 billion for screening, education, treatment and psychosocial support programs serving millions of people in more than 60 countries worldwide. Komen was founded by Nancy G. Brinker, who promised her sister, Susan G. Komen, that she would end the disease that claimed Suzy’s life. That promise has become Komen’s promise to all people facing breast cancer.

Ruling year info

1992

President and CEO

Paula Schneider

Main address

13770 Noel Road Suite 801889

Dallas, TX 75380 USA

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EIN

75-1835298

NTEE code info

Cancer (G30)

Public, Society Benefit - Multipurpose and Other N.E.C. (W99)

Cancer Research (H30)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Blog

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

No matter who you are or where you live, breast cancer may touch your life. Breast cancer is the most common cancer among women in the U.S. and around the world. In 2018, about 266,120 women will be diagnosed in the U.S. alone. Progress in treatment and early detection has led to improved survival for people of all ages and races, and with all stages of breast cancer. In fact, there are more than 3.5 million breast cancer survivors in the U.S. today (more than any other group of cancer survivors). 41,000 people die from breast cancer each year in the United States. Susan G. Komen believes this is unacceptable, and is committed to reducing the current number of breast cancer deaths by 50% in the U.S. by 2026.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Research & Scientific Programs

Komen has a strong commitment to supporting research that seeks to prevent and cure breast cancer through better approaches for early detection and diagnosis; understanding metastasis and recurrence; and developing novel therapies for all stages of breast cancer, with the overarching goal of supporting work that has significant potential to lead to new treatments and technologies that will reduce the number of breast cancer deaths in the U.S. by 50% by 2026. Since its founding in 1982, Komen’s research investments have contributed to major advances in breast cancer science. The progress has been significant. Today, we know breast cancer is more than a single disease, but instead is a collection of diseases. We have a better understanding of the genetics of breast cancer and the critical need to tailor screening, diagnosis, treatment and prevention strategies to individuals through advances in personalized or precision medicine.
Komen’s research programs are guided by a scientific advisory board of the world’s leaders in breast cancer research, oncology and advocacy. The scientific advisory board assists Komen in setting its research strategy and prioritizing its research investment. The Komen Scholars , a group of 60 accomplished scientists, clinicians and patient advocates, lead and participate in Komen’s world-class scientific peer review process. Our Advocates in Science bring the patient voice to Komen’s research programs, emphasizing urgency and patient impact.

Population(s) Served
People with diseases and illnesses
Adults

Our community health programs ensure access to and utilization of timely, high-quality care for all by providing breast cancer education, screening and treatment services for those who need them most. Through local and national community needs assessments, Komen identifies unmet needs in communities and supports localized community health programs to fill these gaps. Since our founding in 1982, Komen has provided more than $2.2 billion to fund screening, education, treatment and psychosocial support programs.

Population(s) Served
People with diseases and illnesses
Adults

Breast cancer is the most common cancer in women, worldwide, and the number of cases is increasing in nearly every country. The number of new breast cancer cases has more than doubled around the world in the last three decades, with the highest increases observed in low- and middle-income countries. Breast cancer is also the leading cause of cancer death in these countries, with more than 600,000 deaths expected in 2018. These trends are concerning, which is why Komen works tirelessly to provide support to breast health programs worldwide. It takes collaboration and strong partnerships to make a global impact. Komen strives to serve as a “bridge” – collaborating with international nonprofits, corporations, and ministries of health to bring together people and organizations to develop programs that are tailored to the specific needs of the community and sensitive to cultural differences.

Population(s) Served
People with diseases and illnesses
Adults

Susan G. Komen advocates act as the voice of the more than 3.5 million breast cancer survivors and the 1 in 8 women in the U.S. who will be diagnosed with breast cancer in her lifetime. Our patient advocacy efforts are broad and deep, and we work on multiple levels to ensure the voice of breast cancer survivors and those living with metastatic breast cancer are heard in all that we do.
In order to achieve our mission, we believe scientific progress and community programming must be complemented by sound public policy and advocacy. Through government action, broad, systemic, lasting change can be made in the fight against breast cancer. This means that Komen—as a patient advocacy organization with first-hand knowledge of how breast cancer touches local communities—must engage policymakers and government as partners in our efforts to end breast cancer forever. To advance our policy priorities, Komen works with our volunteers, partners, researchers and friends in communities across the U. S., to ensure breast cancer is a priority among policymakers at the federal, state and local levels and to increase access to affordable, high-quality breast health and cancer care services.

Population(s) Served
People with diseases and illnesses
Adults

The Race for the Cure® and MORE THAN PINK Walk™ series of events provide education and fundraising to support Komen’s work to save lives. In addition to the funds raised by these events to support Komen’s research and community health investments, the events provide the opportunity for people to take an action for the cause and share their compassion for those in their community who need support.

The Susan G. Komen 3-Day® is a three-day, 60-mile walk that is making a difference in the fight against breast cancer. Participants walk an average of 20 miles a day for three consecutive days, educating tens of thousands of people about breast health and raising funds to help support Komen’s work to save lives through breakthrough breast cancer research and ensuring all patients receive the care they need. Since 2003, over 500,000 people have participated in 3-Day walks around the country raising more than $834 million.

Population(s) Served
Adults
People with diseases and illnesses

Where we work

Accreditations

Better Business Bureau Wise Giving Alliance 2017

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

Susan G. Komen’s Bold Goal is to reduce the current number of breast cancer deaths by 50% in the U.S. by 2026. We will save lives by meeting the most critical needs in our communities and investing in breakthrough research to prevent and cure breast cancer.

Susan G. Komen® has a four-pronged approach for accomplishing our bold goal.
1. Research: We are working to understand, prevent and treat the most aggressive and deadly breast cancers, so that patients can live longer and healthier lives.
2. Care: We ensure all people have access to timely, quality breast cancer screening, diagnosis and treatment.
3. Community: We are creating communities that unite and support everyone affected by breast cancer.
4. Action: We show policymakers the realities of breast cancer and why they must fund lifesaving research and support patients. We provide information and guidance to empower people to make informed decisions about their breast health.

Komen is the only breast cancer organization attacking the disease on all fronts—in research, community health programs, education, advocacy and global work.
• Led by a Scientific Advisory Board comprised of the world’s leading breast cancer researchers and advocates. Our research investment is focused on understanding and improving treatments for metastatic breast cancer, improving treatments for aggressive subtypes of breast cancer, developing ways to detect breast cancer as early as possible (including metastatic breast cancer) and addressing disparities in breast cancer outcomes.
• Our community health programs (both domestic and global) seek to overcome barriers to care and ensure that everyone has access to and can utilize timely, high-quality breast cancer screening, diagnosis and treatment. Interventions are prioritized based on the needs within each community, which are based on breast cancer needs assessments, called Community Profiles, which are completed every five yea

We’ve educated millions on the importance of early detection, timely diagnosis and effective treatments that are proven to save lives. Millions of people are now able to talk openly about breast cancer – a major difference from a time when women suffered breast cancer in silence and even shame. We know that breast cancer is more than a single disease. We have a better understanding of the genetics of breast cancer and the critical need to tailor screening, diagnosis, treatment and prevention strategies to individuals through advances in precision medicine. From 1989-2015, breast cancer mortality decreased by 39 percent as a result of improvements in early detection and treatment.

More than 41,000 men and women still die from breast cancer each year in the U.S. There is much more to be done to understand why some with early-stage breast cancer recur with metastatic disease. We do not yet fully understand triple negative breast cancer or how to treat it effectively.

Financials

Susan G. Komen Breast Cancer Foundation, Inc., National Office
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Operations

The people, governance practices, and partners that make the organization tick.

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Susan G. Komen Breast Cancer Foundation, Inc., National Office

Board of directors
as of 1/28/2021
SOURCE: Self-reported by organization
Board chair

Mr. Peter Brundage

Kim Bohr

Innovare Group, Inc.

Kaye Ceille

Avis Budget Group

Linda Custard

Michael Greenwald

Tiedemann Advisors

Doug knutson

OhioHealth

Kristin Nimsger

Social Solutions, Inc.

Connie O'Neill

Andrew Robinson

Starr Restaurants

Meghan Shannon

Stephanie Stahl

Trish Wheaton

Angela Zepeda

INNOCEAN USA

Susie Knopf

Linda Wilkins

Olufunmilayo Olopade

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes

Organizational demographics

SOURCE: Self-reported; last updated 01/28/2021

Who works and leads organizations that serve our diverse communities? GuideStar partnered on this section with CHANGE Philanthropy and Equity in the Center.

Leadership

The organization's leader identifies as:

Race & ethnicity
White/Caucasian/European
Gender identity
Female, Not transgender (cisgender)
Sexual orientation
Heterosexual or Straight
Disability status
Person without a disability

Race & ethnicity

No data

Gender identity

No data

 

No data

Sexual orientation

No data

Disability

No data