KENNEDY'S DISEASE ASSOCIATION

aka KDA   |   Coarsegold, CA   |  www.kennedysdisease.org

Mission

The objectives of the Kennedy's Disease Association are:
1. Financially support and promote medical research to find a treatment or cure for Kennedy's Disease
2. Improve awareness of Kennedy's Disease in the medical community
3. Create a support system for those living with Kennedy's Disease
4. Increase public awareness about Kennedy's Disease and its effects on families
5. Share information about Kennedy's Disease for those who seek it.

Ruling year info

2000

Principal Officer

Mr. Ed Meyertholen PhD

Main address

PO Box 1105

Coarsegold, CA 93614 USA

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EIN

77-0552005

NTEE code info

Neurology, Neuroscience (H96)

Nerve, Muscle, Bone Research (H50)

Nerve, Muscle and Bone Diseases (G50)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Kennedy's Disease Research Grants

Because the KDA is relatively small and funding is limited, our focus in recent years has been to provide “seed-money” to post-doc and other young researchers who do not currently have the funding or credentials to receive funding from larger organizations such as the National Institute of Health or the MDA. This “seed-money” normally provides the researcher an opportunity to further his/her research while giving him/her time to apply for other grants
In recent years, the awarding process takes place in the fall. In the late summer, the KDA announces to all known Kennedy’s Disease Researchers that anyone interested should send in their grant requests by late August.  The Scientific Review Board reviews all applications. The reviewers focus on research projects that are specific to or could be used in finding a treatment or cure for Kennedy’s Disease.  The reviewers ask three or four of the applicants to submit full grant applications by the end of September. In late October, the Scientific Review Board reviews the finalists and recommends to the Board of Directors which applicant(s) should receive research funding.  By late November, the Board of Directors awards the grants.

Population(s) Served

Where we work

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Financials

KENNEDY'S DISEASE ASSOCIATION
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Operations

The people, governance practices, and partners that make the organization tick.

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KENNEDY'S DISEASE ASSOCIATION

Board of directors
as of 06/27/2016
SOURCE: Self-reported by organization
Board chair

Ms.. Lou Tudor

None

Ed Meyertholen

None

Paul DeSchamp

None

Lou Tudor

None

Maria Montie

None

Jameson Parker

None

Andrew Cassar

None

Ronald Moffett

Louise Goforth