ALS Association Rocky Mountain Chapter

aka The Amyotrophic Lateral Sclerosis Association Rocky Mountain Chapter   |   Westminster, CO   |  www.alsarockymountain.org

Mission

o discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

Ruling year info

1990

CEO

Pamela Rush-Negri

Main address

10855 Dover St. Ste. 500

Westminster, CO 80021 USA

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EIN

84-1337868

NTEE code info

Diseases, Disorders, Medical Disciplines N.E.C. (G99)

Alliance/Advocacy Organizations (H01)

Alliance/Advocacy Organizations (G01)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Respite Care

The  Respite Care Program Offers grant funding to ALS caregivers who need time away to tend to personal and professional tasks but need professional assistance in caring for their ALS patient.  The grant presently affords $1,000 per patient per year.

Population(s) Served

The Durable Medical Equipment Loan Program offers the use of needed medical equipment - wheel chairs, lifts and other assistive devices as the patient’s needs progress.

We provide for basic daily needs - shower and commode chairs, eating utensils, etc. as well as larger more expensive equipment such as wheel chairs and lifts

At present, we have many types of wheel chairs - from the very basic and least expensive ($200) to the very intricate and costly ($30,000).

Population(s) Served

The Newly Diagnosed Workshop is a 4-week series of speakers and discussion about topics that pertain to people new to ALS.  We cover the chapter services, medical team, community resources, funding & insurance, and caring for the caregiver.  This workshop is held Quarterly, 3 times per year.

Population(s) Served

The ALS Association partners with four separate ALS clinics - three in Colorado and one in Utah. The one-stop-shop approach of the clinic brings together neurologists, physical and occupational therapists, speech therapists,
respiratory therapists, and nutritionists, as well
as others as needed, to develop a comprehensive,
coordinated treatment plan.

Population(s) Served

The Learning Lab is a place to "test drive" equipment in order to find what is right for you, receive one-on-one training about caring for someone with ALS, and learn the tools and tricks for both the caregiver and person with ALS live with ALS.

Population(s) Served


• Provided by during visits and groups, via phone and emails.
• Related to all aspects of living with the disease, including disease progression, treatment options, therapies, research, equipment information, insurance information, home care, hospice information and more.
• Also provided via monthly newsletter, chapter website and Information Packet sent upon registration

Population(s) Served

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

1. Build out all services and programs in the state of Utah.
2. Conduct fundraising events in Utah.
3. Engage more ALS patients and families throughout the 3-state territory.
4. Continue all established programs in Colorado and Wyoming while introducing and implementing them in Utah.

1. Employ Care Services staff based in Salt Lake City.
2. Work with local volunteers to produce a Walk to Defeat ALS in 2017.
3. Continue outreach through social media and local interaction
4. Providing professional staff for all targeted areas

The ALS Association Rocky Mountain Chapter is fully staffed.

All 4 items mentioned above have been accomplished or are ongoing.

Financials

ALS Association Rocky Mountain Chapter
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

ALS Association Rocky Mountain Chapter

Board of directors
as of 4/29/2019
SOURCE: Self-reported by organization
Board chair

Josh Rudin

Oracle

Marty Skolnick

Siemens Building Technologies

Josh Rudin

Oracle

Mark Williams

Sherman & Howard

Brian Cook

Perfect Processing

Mike Newman

Capital Pacific Homes

Jarod Smilkstein

Solidyn Solutions

Mike Newman

Lennar Homes

Chris Gordon

Shupe & Associates

Suzanne Birkans

Peter Hegg

Mountain States Marketing, Inc.

Dan Linseman

University of Denver

Becci Matheson

Todd Reed

Gale Marie Collins

Employment Recruiter

Lauren Garner

Inspirato

Richard Garner

Inspirato

Larry Harms

Peter McKown

POM Consulting, Inc.

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? Yes