Disease, Disorders, Medical Disciplines

Gluten Intolerance Group of North America

aka GIG

Auburn, WA

Mission

Gluten Intolerance Group (GIG) empowers the gluten-free community through consumer support, advocacy, and education.

Ruling Year

1991

Principal Officer

Cynthia Kupper

Main Address

31214 124th Ave SE

Auburn, WA 98092 USA

Keywords

gluten-free certification, education, advocacy, consumer support, celiac disease, food industry

EIN

91-1458226

 Number

6640213808

Cause Area (NTEE Code)

Digestive Diseases, Disorders (G70)

Nonmonetary Support N.E.C. (P19)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Social Media

Blog

Programs + Results

What we aim to solve New!

Individuals who have been diagnosed with celiac disease or a non-celiac gluten sensitivity (NCGS) are required to maintain a gluten-free diet. Their options to dine outside of their home are limited, labels on everyday products are confusing, and they often feel isolated and overwhelmed upon diagnosis. The Gluten Intolerance Group (GIG) provides certification of products as well as food service establishments to ensure that the proper processes are followed to keep these gluten-free consumers safe. We also act as the voice of the gluten-free community in providing support groups, educational events, and informational resources to help address the questions of everyone living a gluten-free lifestyle.

Our programs

What are the organization's current programs, how do they measure success, and who do the programs serve?

SOURCE: Self-reported by organization

Support Groups

Gluten-Free Certification Organization (GFCO)

Gluten-Free Food Services (GFFS)

Generation GF

Where we workNew!

Our Results

How does this organization measure their results? It's a hard question but an important one. These quantitative program results are self-reported by the organization, illustrating their committment to transparency, learning, and interest in helping the whole sector learn and grow.

SOURCE: Self-reported by organization

Number of clients participating in support groups

TOTALS BY YEAR
Population(s) served

General/Unspecified

Related program

Support Groups

Context notes

Based on an average of 15 members per group, GIG support group participation increased by 214% from 2015 to 2016, with an additional increase from 2016 to 2017.

Number of list subscribers

TOTALS BY YEAR
Population(s) served

Children and youth (0-19 years)

Related program

Generation GF

Context notes

In year two of existence, GIG's Generation GF youth program increased membership by 867%. Membership grew by 54% during year three.

Number of unique website visitors

TOTALS BY YEAR
Population(s) served

General/Unspecified

Context notes

In 2016, gluten.org had a 262% increase in unique visitors.

Total dollar amount of scholarship awarded

TOTALS BY YEAR
Population(s) served

Families

Context notes

GIG has an open scholarship program to help qualified families by providing financial assistance for their kids to attend gluten-free summer camp.

Charting Impact

Five powerful questions that require reflection about what really matters - results.

SOURCE: Self-reported by organization

What is the organization aiming to accomplish?

What are the organization's key strategies for making this happen?

What are the organization's capabilities for doing this?

How will they know if they are making progress?

What have and haven't they accomplished so far?

The Mission of the Gluten Intolerance Group (GIG) is to empower the gluten-free community through consumer support, advocacy and education. Our Outreach programs help to create a community, both from our national level communications and from local level support groups. Our Generation GF program inspires confidence in kids, teens, and young adults and allows them to embrace who they are as a gluten-free youth. Along with our outreach, GIG's Food Safety programs provide a "symbol of trust" for consumers to look for on food packaging, restaurant menus, and store fronts. Our certification mark helps customers recognize that the product is safe for them to consume and/or the food service establishment that they go to is following approved practices and procedures benefiting their restricted diet. We want to continue to expand these certified product offerings and food service locations, while also conducting research in areas such as ingredient handling and product process, in an effort to provide our community with more options.

The Gluten Intolerance Group's (GIG's) strategic initiatives center around brand management and education. Under brand management, GIG's focus is on acquiring a significant increase in long-term supporters for GIG programs and initiatives. This includes improved cross-marketing programs with enhanced messaging promoting GIG as a global go-to leader to all audiences; including GIG members, consumers, food safety vendors, medical professionals and the general public. Our Education strategy focuses on continuing to build GIG's reputation and recognized expertise by identifying, developing and delivering education and thought leadership to critical audiences; including, consumers, medical professionals, food industry, food service agencies (e.g., senior and assisted living facilities, hospitals, educational institutions), regulators and legislators.

Staffing decisions and additions, along with the development of numerous professional relationships, has placed the Gluten Intolerance Group (GIG) in a position to succeed with our goals and to achieve our strategic initiatives. A concentration on marketing and establishing ourselves as the experts in the food service and safety fields is helpful to both our brand strength and educational focus. Also, our Gluten-Free Certification Organization (GFCO) program has received ISO/IEC 17065:2012 (ISO 17065) accreditation from the American Association for Laboratory Accreditation (A2LA). ISO 17065 is the international quality standard for organizations certifying products, processes and services.

The Gluten Intolerance Group (GIG) understands that we are an organization created by our community and our progress as a non-profit relies upon continued membership growth and brand recognition by every day (non-restricted) consumers. Progress indicators from our Outreach programs not only include a continued climb in our number of GIG members, but an increase in our efforts to get them more involved. We want our support group volunteers to continue to spread the word of our Mission and educate more of their group members on all components of GIG outreach. An additional key performance indicator is an increase in the number of expert opportunities presented to us. In establishing ourselves as the experts in the gluten-free field, we want to see continued growth in the number of information "asks" that we receive; from comments in articles and current event news to invites to speak at food safety events and symposiums. This recognition is a sign of brand strength growth. In addition to these KPIs, we will continue our market research and customer satisfaction surveys to assure that our efforts are for the benefit of our direct audience, the gluten-free community.

The Gluten Intolerance Group (GIG) has shown tremendous growth from both our Food Safety initiatives and in our Outreach to the gluten-free community. Our Gluten-Free Certification program (GFCO) is the logo that is looked for by consumers with celiac disease, gluten intolerance, and those making a personal choice to follow a gluten-free diet. It is the certification label most trusted by the community and can be found on almost 50,000 products in 29 countries around the world. Our Outreach includes over 85 community support groups in North America and 5 international affiliations. We currently have over 25,000 GIG members who receive information from us, 35,000+ social media followers, and greater than 2,200 kids who are a part of our Generation GF youth program. As GIG moves forward, we look to certifying more products, both domestically and internationally. Our Gluten-Free Food Services (GFFS) certification program will train more restaurants, dining halls, hospitals, and other establishments on how to properly prepare gluten-free food and care for their restricted diet customers. From an Outreach perspective, GIG wants to continue to be a leading resource for those looking for answers to their gluten-free questions. We are the voice of the GF community and with that comes a tremendous responsibility that we are prepared and ready to take on.

External Reviews

Financials

Gluten Intolerance Group of North America

Fiscal year: Jan 01 - Dec 31

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Operations

The people, governance practices, and partners that make the organization tick.

Need more info?

FREE: Gain immediate access to the following:

  • Address, phone, website and contact information
  • Forms 990 for 2016, 2016 and 2015
A Pro report is also available for this organization for $125.
Click here to see what's included.

Board Leadership Practices

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices.

SOURCE: Self-reported by organization

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?

Yes

Organizational Demographics

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

SOURCE: Self-reported by organization

Gender

Race & Ethnicity

This organization reports that it does not collect this information for Board Members, Senior Staff, Full-Time Staff and Part-Time Staff.

Sexual Orientation

This organization reports that it does not collect this information for Board Members, Senior Staff, Full-Time Staff and Part-Time Staff.

Disability

This organization reports that it does not collect this information for Board Members, Senior Staff, Full-Time Staff and Part-Time Staff.

Diversity Strategies

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We track retention of staff, board, and volunteers across demographic categories
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We track income levels of staff, senior staff, and board across demographic categories
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We track the age of staff, senior staff, and board
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We track the diversity of vendors (e.g., consultants, professional service firms)
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We have a diversity committee in place
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We have a diversity manager in place
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We have a diversity plan
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We use other methods to support diversity