Amyotrophic Lateral Sclerosis Association

Create a World without ALS

aka ALSA Evergreen Chapter   |   Kent, WA   |  www.alsa-ec.org

Mission

The ALS Association Evergreen Chapter is a dedicated group of volunteers and staff that are working daily to ease the burdens of patients and families who have ALS (also known as Lou Gehrig's Disease). This fatal illness has no known cause or cure. A person who has ALS will slowly loose the ability to move and even speak or swallow. The Evergreen Chapter provides services to people living with ALS and their family members, and raises money for research to find the cure are our top priorities.

We serve Washington, Idaho, Montana and Alaska.

Ruling year info

1990

Principal Officer

Mrs. Rebecca Moore

Main address

19226 66th Ave S L-105

Kent, WA 98032 USA

Show more contact info

EIN

91-1950869

NTEE code info

Nerve, Muscle and Bone Diseases (G50)

Nerve, Muscle, Bone Research (H50)

Disabled Persons' Rights (R23)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

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Communication

Programs and results

What we aim to solve

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Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Care Services for ALS Patients

The Evergreen Chapter provides information and referral services, support groups for patients and caregivers, a medical equipment and augmentive communication equipment loan locker program (free of charge to ALS patients), Respite Care program, as well as an informative newsletter. Support Groups allow people to learn from each other on coping with ALS. Our Patient Services Coordinator can make in-home visits to help evaluate needs and meet them, as well as educate the community about ALS.

Population(s) Served

Personalized face to face patient care meetings with our expert Care Coordinators were held 1025 times in 2017. Averaging much more than three a day! During these meetings patients are connected with the resources that would best meet their needs, they are assisted with navigating the various governmental agencies and medical institutions, along with referrals for home remodeling for accessibility, etc.

Population(s) Served

1364 Durable Medical Equipment loans were provided free of charge in 2017. ALS is a progressively disabling disease which means there is an ever increasing need for medical equipment. Even good insurance does not cover all the equipment needs a patient will have throughout the course of the disease. Our free equipment loans become a lifeline for patients. Caregivers find their loving work eased through these devices as well.

Population(s) Served

Caregiving for people with ALS is extremely burdensome, especially in the final stages of the disease. Caregiver burn out means patients don't get good care. The respite program provides a grant for the caregiver to hire help or otherwise take a break from the duties of caring for someone living with ALS.

Population(s) Served

Where we work

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

To serve, advocate for, and empower people affected by ALS to live their lives to the fullest, and to discover treatments and a cure for ALS.

2017 STRATEGIC PRIORITIES
Developed at the 2016 Annual Board Retreat

1. Development of the fundraising capacity of the chapter
a. Need a Development Committee
i. Create Charter
ii. Create goals
b. Board members to help with event sponsorship leads
c. Volunteer core – strong volunteers to plan & run events
2. Develop chapter leadership
a. Add more board members
b. Develop video conferencing capabilities
c. Develop regional advisory committees with board members on them
d. Board succession planning needed
e. Continue with Executive Director succession planning
3. Challenges for Care Coordinators providing care
a. More patients, treatments to increase life span, urban vs rural, large territory
i. Look at different ways to provide services now and in the future
1. Examine technology solutions
2. Reset staff expectations & roles
a. Prioritize first patient visit
b. Prioritize clinic participation
3. Create Customized Care Plans

1. Strong volunteer core
2. Experienced and stable staff
3. Increasing participation in chapter fundraising events
4. Increasing donor loyalty
5. Conservative budgeting

These Strategic priorities were set in December 2016 at our annual Board Retreat. Since then our staff has undergone training on how to improve efficiency of our patient visits. The board of directors has voted on two new members. They have also identified a chair for the newly forming Development Committee.

Financials

Amyotrophic Lateral Sclerosis Association
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Amyotrophic Lateral Sclerosis Association

Board of directors
as of 12/20/2018
SOURCE: Self-reported by organization
Board chair

Mr. Todd Henry

Optum Healthcare

Term: 2014 - 2019

Merilyn Moore

Harborview Medical Center

Todd Henry

Optum Healthcare

Larry Nelson

Johnson International Industries

Mark Reis

Retired

Greg Wegrich

Retired

Carl Chalmers

KPMG

Donna Cherrier

Retired

Jen Eichmeyer

St Luke's Tumor Institute

David Foucault

Retired

Jean Gronewald

No Affiliation

Rick Meek

No Affiliation

Nancy Regalado

Premera Blue Cross

Erik Schroeder

Retired

Scott Vukcevic

NCR Corporation

Marc West

Retired

Sonja Zimmer

Visiting Physicians of America

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? Yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? Yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? Yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? No