Educational Institutions

Death with Dignity National Center

  • Portland, OR
  • http://www.deathwithdignity.org

Mission Statement

The mission of the Death with Dignity National Center is to promote Death with Dignity laws based on our model legislation, the Oregon Death with Dignity Act, both to provide an option for dying individuals and to stimulate nationwide improvements in end-of-life care.

Main Programs

  1. Public Education
  2. Communications
  3. Oregon Plus One
Service Areas

Self-reported

National

The Death with Dignity National Center provides information, education, research and support for the preservation and implementation of the Oregon, Washington, and Vermont Death with Dignity laws and promotes the Oregon, Washington, and Vermont laws as models for other states throughout the U.S.

ruling year

1995

Principal Officer since 2005

Self-reported

Ms. Peg Sandeen Ph.D.

Keywords

Self-reported

Death with Dignity,physician assisted death,assisted death,death,dignity,dying,end of life,right to die,civil right,pain,palliative care,medicine,Oregon,Washington,Vermont,Hawaii,euthanasia,aid-in-dyi

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EIN

93-1162366

 Number

7067787908

Physical Address

520 SW 6th Avenue Suite 1220

Portland, 97204 1510

Contact

Cause Area (NTEE Code)

Education N.E.C. (B99)

Civil Rights, Social Action, and Advocacy N.E.C. (R99)

Public, Society Benefit - Multipurpose and Other N.E.C. (W99)

IRS Filing Requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Programs + Results

How does this organization make a difference?

Programs

Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

Program 1

Public Education

The Death with Dignity National Center is a non-profit,501(c)(3) organization which focuses on public education and legal defense.  The Center provides targeted education to a wide variety of groups who have an interest in Oregon and Washington States' model Death with Dignity laws, including physicians, lawyers, medical students, elected officials, reporters and members of the media, college students, and church officials. We also conduct educational workshops in rural Oregon to ensure equitable access to the law.

Category

None

Population(s) Served

General Public/Unspecified

None

None

Budget

$129,063.00

Program 2

Communications

This organization hosts the informational web site, www.deathwithdignity.org, which receives over 97,000 visits per year. We respond to over 2,500 phone calls and emails per year providing educational materials and referrals to terminally ill patients and their family members, students, and others interested in the law nationwide.

Category

None

Population(s) Served

General Public/Unspecified

None

None

Budget

$74,222.00

Program 3

Oregon Plus One

We promote Death with Dignity laws based on our model legislation, the Oregon Death with Dignity Act, as a stimulus to nationwide improvements in end-of-life care and as an option for dying individuals. We accomplish our mission by working to defend and promote Death with Dignity laws in court and in the court of public opinion.

Category

None

Population(s) Served

General Public/Unspecified

None

None

Budget

$102,075.00

Charting Impact

Self-reported by organization

Five powerful questions that require reflection about what really matters - results.

  1. What is the organization aiming to accomplish?
    The Death with Dignity National Center works to stimulate changes in end-of-life care policy by promoting Death with Dignity policy reform. We provide education and referral services for terminally ill patients and their family members in the midst of making difficult decisions, and we work with community leaders, media personalities, and elected officials to promote thoughtful public debates about dying in America.
  2. What are the organization's key strategies for making this happen?
    In order to act as a leader catalyzing policy reform, we build national-state partnerships with local groups. Through these partnerships, we are able to effectively transfer policy knowledge, research, and analysis to grassroots activists working directly for reform. Additionally, we build and support regional centers of policy activity, facilitating a network of support among activists engaged in regional or local work.
    One critical strategy for securing policy reform is the identification of high return policy environments. We use the most innovative research and analysis available to guide the investments of movement resources in high return policy environments. Through 20 years of end-of-life policy practice, we have developed a proprietary analysis of policy opportunities throughout the country. Every two years, we apply the analysis to re-evaluate the investment opportunities and challenges. This process helps to ensure the Death with Dignity movement is focused appropriately for success.
    Other strategies include: evaluating policy reform lessons from other social movements and applying them to our own and building relationships across issue advocacy non-profit organizations to facilitate policy reform in the broadest sense possible.
    Internal strategies are important also, and to this extent, we engage high-performing staff members whose contributions are evaluated based on industry-established metrics. We invite national board membership and committee membership to dedicated volunteers whose expertise contributes to the overall mission of the organization.
  3. What are the organization's capabilities for doing this?
    The Death with Dignity National Center builds its work today on a 20 year track record of successfully leading policy reform efforts in all areas of the country. We focus on strategic leadership, data-driven planning, and engagement of high-profile supporters and enthusiastic volunteers. Our process of maintaining a narrowly-focused mission and continually re-examining the tasks and activities necessary to achieve our mission helps us maintain an efficient and effective business model. Paying careful attention to new trends in aging, living and dying, and healthcare allows us to act quickly to address emergent issues.
  4. How will they know if they are making progress?
    We are committed to transparency, and we invest resources in evaluating our accomplishments and reporting our accomplishments and challenges to our donors, board members, and contributors. To that end, our strategic plan outlines goals, activities, benchmarks, and outcome criteria against which we track our progress. In the spirit of full disclosure, we catalogue our successes and struggles in our Annual Report and our website.
  5. What have and haven't they accomplished so far?
    Death with Dignity policy reform is a young social movement, launching its first efforts in the early 1990s. In the first decade of reform, we established an acceptable policy which expands the rights of terminally ill individuals and protects vulnerable populations. In the second decade of reform, we defended this policy through the US Court system, securing a win at the United States Supreme Court in the case of Gonzales v. Oregon, and expanded the reform efforts to two other states (Washington and Vermont). During the third decade of reform, we look toward building regional centers for grassroots activists and advocates. From these regional centers, we will leverage momentum in our social movement to secure policy reform efforts for terminally ill individuals in 10 states.
Service Areas

Self-reported

National

The Death with Dignity National Center provides information, education, research and support for the preservation and implementation of the Oregon, Washington, and Vermont Death with Dignity laws and promotes the Oregon, Washington, and Vermont laws as models for other states throughout the U.S.

Social Media

Blog

Accreditations

Better Business Bureau Wise Giving Alliance

Better Business Bureau Wise Giving Alliance

Better Business Bureau Wise Giving Alliance

Affiliations + Memberships

Better Business Bureau Wise Giving Alliance - Organization

Better Business Bureau Wise Giving Alliance - Organization

External Reviews

Source: greatnonprofits.org

The review section is powered by Great Nonprofits

Financials

Financial information is an important part of gauging the short- and long-term health of the organization.

DEATH WITH DIGNITY NATIONAL CENTER
Fiscal year: Apr 01-Mar 31
Yes, financials were audited by an independent accountant.

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Operations

The people, governance practices, and partners that make the organization tick.

Death with Dignity National Center

Leadership

NEED MORE INFO ON THIS NONPROFIT?

Free: Gain immediate access to the following:
  • Address, phone, website and contact information
  • Forms 990 for 2015, 2014 and 2013
  • Board Chair and Board Members
  • Access to the GuideStar Community
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Principal Officer

Ms. Peg Sandeen Ph.D.

BIO

PEG SANDEEN, MSW, Executive Director, is a native Iowan, with a master's degree in Social Work from the University of Iowa. She is currently working on a doctoral degree in Social Work and Social Research at Portland State University. Sandeen is an experienced social worker, specializing in issues related to terminal illness and end-of-life processes. Sandeen has been a case manager with the AIDS Project of Iowa and has done volunteer work with Hospice of North Iowa and the Muscular Dystrophy Association. As a result of her extensive exploration of complex ethical, legal and medical issues related to social work, Sandeen was named 2002 Price Fellow in HIV Prevention Leadership by the Centers for Disease Control and Prevention. In her professional capacities, as well as through personal loss, Sandeen has felt firsthand how legal and medical interaction affects people's lives in both positive and negative ways. As a result, her scholarly and professional efforts have increasingly focused on health-related ethical concerns, particularly end-of-life decisions, privacy issues and mental health. Sandeen joined DDNC in April 2005.

Governance

BOARD CHAIR

Steve Telfer

The Telfer Group

Term: Apr 2009 - Mar 2012

BOARD LEADERSHIP PRACTICES

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section, which enables organizations and donors to transparently share information about essential board leadership practices. Self-reported by organization

Yes

BOARD ORIENTATION & EDUCATION

Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations?

Yes

CEO OVERSIGHT

Has the board conducted a formal, written assessment of the chief executive within the past year?

Yes

ETHICS & TRANSPARENCY

Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year?

Yes

BOARD COMPOSITION

Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership?

Yes

BOARD PERFORMANCE

Has the board conducted a formal, written self-assessment of its performance within the past three years?


ORGANIZATIONAL DEMOGRAPHICS

In order to support nonprofits and gain valuable insight for the sector, GuideStar worked with D5—a five-year initiative to advance diversity, equity, and inclusion in philanthropy—in creating a questionnaire. This section is a voluntary questionnaire that empowers organizations to share information on the demographics of who works in and leads organizations. To protect the identity of individuals, we do not display sexual orientation or disability information for organizations with fewer than 15 staff. Any values displayed in this section are percentages of the total number of individuals in each category (e.g. 20% of all Board members for X organization are female).

Gender
Race & Ethnicity
This organization reports that it does not collect this information.
Sexual Orientation

This organization reports that it does not collect this information.

Disability

This organization reports that it does not collect this information.

Diversity Strategies
Yes
We track retention of staff, board, and volunteers across demographic categories
No
We track income levels of staff, senior staff, and board across demographic categories
No
We track the age of staff, senior staff, and board
No
We track the diversity of vendors (e.g., consultants, professional service firms)
No
We have a diversity committee in place
No
We have a diversity manager in place
No
We have a diversity plan
Yes
We use other methods to support diversity